Désespéré à la recherche de réponses - aidez-moi

Cerveau et nerfs
1

Hi all, 

it all started for me in 2009 after a stressful experience and a bad cold/flu. I came down with post viral symptoms, from excruciating headaches to inability to walk etc. Eventually I had to stop work and go to my parents' home for a few months. I checked into a private hospital in Greece, I did a bunch of tests/MRI etc and they found a thyroid issue (autoimmune) which I now control plus got given antidepressants which miraculously worked! I was taking 20mg Cipralex for the last few years and I have managed to stay healthy and i recovered. I don't think you ever get rid of this thing, but at least the antidepressants helped a lot.

For the last few months, I have been seeing a private doctor who has prescribed a bunch of supplements etc. that I have been taking. I have been feeling good, so I foolishly thought I could come off the antidepressants and asked her advice, she seemed to think it wouldn't be an issue so I started reducing them since May 2016.

In mid Sep 2016, and whilst almost off the antidepressants (on 5mg every other day) I came down with a cold again. Since then, my life has been hell. To cut a long story short, most of my initial symptoms started coming back, headaches, dizziness, malaise, aches etc. I have started back on antidepressants in an attempt to balance my system out, it's been 10 days now that I am back on 20mg Cipralex and truth be told I have improved a little bit, but I am so worried that I have unbalanced my system and will take ages to function again.

My worst fear is that the specific antidepressant has stopped working for me (they do 'poop out' after a while), and as I have been on it since 2009, maybe it has run its circle.

Every day is hell, I am also panicking a lot, and experiencing anxiety, depressive thoughts and even suicidal ones.

Could it be the antidepressant taking effect again? 

I am so confused and don't know what to do. Said doctor hasn't been very useful, she said I suffer from Pots/Dysautonomia, which I think is not true as I don't experience tachycardia /palpitations which is the hallmark of the disease. I think she 's got it wrong, and I don't know what to do/who to trust.

Anyone with a similar experience? Please help.

2

Hi Katperd

Firstly I am so sorry to hear that your health has declined. I am assuming you live in Greece? Do you have family/friends who can support you at this time whilst you are so low. Feeling y well and panicky is not pleasant at all. Has your doctor offered any medical support with this?

I feel like you are feeling pretty desperate and from your feelings at the moment it seems really important you tell a professional person the emotional thought you are having.

Try to hold the thought that you felt so much better with the anti depressants Andy you can and will feel well again. They do take some time to have their positive effect. TRy and review how you are feeling over a weekly basis.

Are your parents nearby? Can you confide in them?

Please go back to your doctor, or see another.

Wishing you feel stronger emotionally very soon

3

As-tu essayé l'hypericum (Millepertuis) et d'autres herbes qui s'accordent bien avec lui comme la damiana, le ginseng, le ginkgo biloba, etc ?

4

Did the "private doctor who has prescribed a bunch of supplements etc" include Vitamin B12 among them?

5

Vous avez déjà été diagnostiqué avec ME ou SFC ? Je sais que la dépression elle-même peut causer un horrible éventail de symptômes physiques, alors si j'étais vous, je voudrais qu'un médecin vous fasse passer d'autres tests pour éliminer toute autre chose qui pourrait se passer. J'ai vu que vous aviez un problème de thyroïde, et cela peut faire dérailler le corps. Mais vous a-t-on déjà diagnostiqué avec ME ou SFC ? Peut-être que j'ai mal lu ou que je n'ai pas lu votre post en détail, mais je n'ai pas vu ça. Quels autres tests ont été faits en plus du test de la thyroïde ? Je souhaite pouvoir être plus utile, mais je voulais que vous sachiez, au moins, que j'avais lu votre post et que je vous souhaite tout le meilleur pour retrouver l'équilibre qui vous faisait vous sentir bien.

6

D'accord. C'est encore moi. J'ai relu votre message et j'ai vu que vous aviez bien « une série de tests et une IRM » lorsque vous étiez à l'hôpital en Grèce. Je m'excuse. Ma confusion mentale a parlé, et je dois rester hors ligne aujourd'hui. Encore une fois, je m'excuse.

7

Hi GeorgiaS

St Johns wort I believe can be helpful but also bus not advised to be taken alongside certain medications so please. Heck first if you decide this may be useful to you

8

Nope! She said she's not sure it will help. Although I will definitely try it in a couple of weeks

9

Thank you :-) I have never been diagnosed, no. My thyroid is under control however and I truly feel there's a deeper root in this

10

Vitamin B12 Deficiency is also linked to thyroid problems as well as CFS/ME

11

Thank you for kind thoughts, I Iive in London but my parents are in Greece hence the hospitalization there. I live with my boyfriend who is very supportive and talk to my mum on the phone every day. They are all worried.

I'm seeing a number of doctors next week when I fly to Greece for half term. And will rerun all tests. I will also see a neurologist to discuss antidepressants and my options. What a messy situation!

12

Si votre antidépresseur fonctionnait avant que vous ne commenciez à réduire progressivement la dose, je ne sais pas pourquoi il cesserait d'être efficace alors que vous le reprenez. Lorsque vous avez commencé à le reprendre, l'avez-vous augmenté très lentement, ou avez-vous soudainement commencé à en prendre une grande quantité ? Cela pourrait poser problème. De plus, un antidépresseur peut mettre plusieurs semaines avant de commencer à agir pleinement.

13

True, I'm worried that it has lost its magic! I literally bumped up to 20mg overnight. That was not fun! I honestly thought that with the bigger dosage everything would click again and I d be feeling perfectly fine within a week. Although I'm better I'm nowhere near perfectly fine and on top of that in have anxiety and suicidal thoughts to boot. I hope and pray it's just the drugs taking a hold again and that in a few days I ll be as good as new. But I am honestly petrified that I got my grace period of 6 years and now it's back with a vengeance

14

The new doctor has me on B complex pills but I have read that injections are so much better

15

If you are B12 Deficient and with all the medications you are on you may well have an absorption problem and Injections will be the solution.

Ask your doctor for a serum B12 and a serum Folate test as the two essent6iallly work together.

I wish you well

16

Je les prends, ainsi que d'autres herbes, au lieu de recourir à des médicaments, qui peuvent avoir des effets secondaires terribles. Et je pense que les gens sont assez sensés pour se renseigner sur ce qu'ils vont dépenser de l'argent et consommer.

17

Si j'ai pris 20 mg d'un antidépresseur pendant la nuit, je finirais à l'hôpital. Commencer par une faible dose et augmenter progressivement est une méthode beaucoup plus sûre pour prendre des médicaments, surtout des antidépresseurs. Votre corps peut s'adapter à cette dose soudaine. Au fait, si vous avez le ME/SFC, la sensibilité aux antidépresseurs en particulier est très courante.

18

Give your antidepressants a chance to work.  You know that some of the symptoms you describe are side effects of some anti-d's?  It will take some time for the chemicals balance to be achieved again.  I am so sorry you feel so unwell again and understand the frustration that you feel.  In the first instance I think you need to just give yourself a break, give the medication time to settle and hopefully you will get back to where you were.  If not, then a different medication may be required.  It is good that you have a supportive boyfriend and parents who care too.  Get your bloods checked again for thyroid as you may need a change there too.  Good luck to you, and I am sorry I can't help you in your journey except to say I am thinking and praying for you.