hi all how r u all doing
i have not slept for 2 nights now and im totally exhausted...
just off to take my meds hope u all are well xx
Hi Di
Poor you! No sleep at all for the last two nights. You must be really exhausted :cry:
I didn't sleep very well last night. Woke up several times and hope get better one tonight. My big toe is really painful and sore tonight and have a pain in my right thigh at the top. Think we have more rain on way lol!
Have had sun today so should be thankful for that!
Hope you get some decent sleep tonight Di. Keep going girl you can do it! :o Don't know whether to take some pain medication tonight or not. Sometimes when I take it make me need to go to toilet more in middle of night.
Well everyone get a goodnight sleep lol
Love Jane x x
HI Di, Tess
Bless you, nothing worse than not getting your sleep as with this condition it makes you feel worse if you have not got your sleep....... fatigue so distressing as you have to kind of force yourself to function, anyway I do hope we all have a good night sleep xxxxx I am in so much pain today I cannot straighten my back as my hips are so painful.... hopefully the docs will get to the bottom of my pain? :roll: I hope tomorrow is a better day for us all xxx.
Take care everyone xxxx
Hi Ses, Di, Linda & Everyone
How is everyone today! :o I have a really bad night just couldn't settle pains in my legs were really bad not had quite as bad pain as that for a while 
Took some pain tablets but did no good still tossing and turning all night :cry:
No better this morning and feel really lightheaded today with not much sleep! Oh well just have to take it easy today. Did want to do a bit of gardening if felt up to it and weather stayed fine. See how I feel later. :roll:
Looks changeable with the weather here but feel there is some rain on way! Sorry I know we all want the sunshine :lol:
Well take care everyone and keep going! :lol: :artist:
Love Tess/Jane
HI, Tess, Linda, Di, everyone,
I do hope we all have a good night sleep tonight as I am hoping to wake up with a new body ..... as the pain is so unbearable in my hip......... I feel light headed when I have had no sleep and then everything seems to be in slow motion........ I do so wish this pain would go away...... I do hope you all have a good night sleep ....... a better day tomorrow too xxxx
Hi Ses and everyone
Poor you, they really must sort something out for you as it`s only so long that you can put up with that amount of pain and no sleep. How on earth do you cope with your family and everything?! I find it hard when I`m in a bad patch but family are old enough to fend for themselves and help out. Hope you get some relief today and some rest.
Love Linda
Hi Ses, Linda and Everyone
When will you get some relief from your pain. :roll: Like Linda said it is difficult for you with a young family. I also don't know how you do it!
I didn't have another good night sleep! I had a hot chocolate before going to bed thought it would help me sleep! Wjhat was I thinking the chocolate having caffeine kept me awake doh :cry: Also my pains were bad so might not have slept very well anyway. Got up at 6 but went back to bed for a while and think I did get a bit more sleep. Don't feel too bad now apart from pain in my back and legs. Thought I would be worse as did some a bit of gardening yesterday. :o I was good though and stopped after a while didn't want to overdo it. Felt it in my wrist last night with osteo. Knew it was going to rain woke up this morning and was raining hard. Sun is out now though looking a promising day! :o
How are you Linda! Are you coping ok with your pain and tablets!
Hope everyone has a decent day!
Love Tess/Jane x x
Hi there everyone,
Started Lycra and it seems ok but the pain is still there but not as distressing as it was..... I am kind of getting used to it ....... something clicked last night and I was wondering that maybe my hip had gone out of joint...... (I had clicky hips when born too) so I am hoping this may have showed up in the x-ray with the osteo and then maybe someone will listen to me....... as I have changed doctors now and so I have to start explaining all over again, but if there is an issue with my x-ray it would be easier as it is written in black and white................... I have explained my pain over and over again as it did take over a year for my diagnosis of fibromyalgia so you can see where I am coming from........ I am so waffling now anyway I do hope everyone is having a peaceful sunday ....... bless you all xxxxxxx
Hi Tess and everyone,
Tablets seem to be going ok, I am building up gradually, as GP suggested, to what is supposed to be the starting dose, but which was obviously too much for me. Mood is much improved and pain not too bad. Its the sleepless nights and chronic fatigue which are such a problem at the moment.
I know what you mean Ses about explaining everything to a new doctor I tried when my GP was on a 6 month sabbatical and it was easier in the end to wait until GP came back!! You cannot do that, it must seem like going back to before you had a diagnosis.
Well take care everyone, hope you`re not suffering too much
Love Linda
Hi Linda & Everyone
No what you mean about sleepless nights. If we could get a good sleep would be able to function better during the day lol :o I was told to try horlicks before bed for a drink but haven't tried it yet. Have you tried it before and do you have to make it with milk! Can't have milk or upsets my irritable bowel. :cry:
Will just have to try and keep going one day at a time. Yes it is difficult but all we can do lol :cry:
I hope you didn't need to go to the hospital Ses with your hip pain and things are a bit better today.
Hope everyone else is ok!
Love Jane/Tess
hello all my good friends
sleep..what is that..im so exhausted... i know what u mean with pains in ur legs..i get that with restless legs.. pain sometimes starts in my big toe then off it goes all over the body..
i feel so guilty if i dont get things done in the house.. no one ever says to me.. just leave it if ur ill i think thats what im looking for as sometimes i basically drag my mind and body round the house doing housework... i started to make cards but i find i dont get time like i would like to do them.. if i do get time im exhausted or sore...
hope u get on well with ur new doc ses.. and linda hope ur feeling better now the sun has been out..
speak to u all soon xxx
Hi ses and everyone
Not been sleeping too well either, the pain in my hips was really bad yesterday and my neck and shoulders are hurting which is giving me the headaches. Good news to report though after waiting since may I have finally got my mri scan on 31st August for my prolapsed discs so am getting somewhere at least with my back but still not heard from the reumatologist on an appointment, suspect that will take just as long if not longer.
I can sympathise with you and restless legs had it for a while now and it is so annoying you just cant get comfortable to sleep and as soon as you think you have you start aching somewhere else!!!!
Keep smiling
Helen A
HI there Everyone,
Thanks everyone for your kind words xxxxx, I phoned the doctors today and I need to see the doc but it is not urgent, so I predict the osteo has got worse, I would have to the Gp's this week but there is only one doctor on and he is the doctor that is a useless waste of space, he said I had mechanical back strain....... an idiot....... we know are own bodies!!!!! anyway the pain is worse walking but I am kind of putting up with the pain due to the fact they will only probably give me other meds that do not work.... so I will see how I am when I go and see doctor next tuesday (another doctor I have to explain, I have not seen ever) so this will be a task!!!!!!
Anyway everyone I do hope you all can sleep tonight I was awake several times last night so I hope I can get a full night sleep also, Di do not worry about the house work, why make yourself ill? it's not worth it hun, just do what you can do..... but don't do too much on a better day as then you feel it later, we have to pace ourselves....... easier said than done............. I have degenerative disc also Helen so I do hope you get sorted soon xx
Gentle hugs to you all
Hi Ses & Everyone
I hope you get some answers when you see the doctor next Tuesday. It is so annoying when you have to explain everything time and time again.
Its pointless going to see a doctor who doesn't take you seriously. I know we have one at our surgery and I won't ever go see him again. I complained about him and he got away with being rude to me. At one point the practice manager said I would have to leave the practice and go somewhere else.
Luckily I didn't leave the practice as I wasn't in the wrong, although she sided with the doctor concerned. I had to have a note added to my medial records to say I wasn't obssessed with my joints so other doctors took me seriously. As I was labelled in my medical records as been obsessed!
As it happens I did have OA going on with my joints so the doctor was wrong.
I hope everyone gets a good night sleep. :lol:
Love Tess/Jane x x
Hi Tess/Jane,
I know what you mean when you think that doctors do not take you seriously, as before I was going through the DLA appeal the doctor did not say anything about the Osteo, he did not add this to my ailments and as it was I told him I had \"Fibromyalgia\" before the Pain Specialist diagnosed me!!!! as I was told I \"could have it\" six month before by Occupational Health Doctor and I read about it on here and then I realized that everything coincided........ The Osteo I found out for my DLA report confirming that I have it in my hip!!!! and so I feel that the doctors do not take me seriously...... and now I have to see them due to the results of the x-rays, so obviously there is a change?
I think the majority of doctors think because you have fibro that is the pain we have, but the point is the pain is different in my hip!! due to the osteo, we do put up with it everyday and do know what is what and doctors should listen more to their patients not a text book diagnosis???? anyway again I am waffling :oops:
I do hope everyone is having a good evening and I hope you all have a restful sleep :wings:
Hi Ses & Everyone
I think you are right! Some doctors can only deal with one condition at at time. Too confusing for them if you have several on going conditions. lol :roll:
I am very lucky that I have found a good doctor at my Surgery :lol: Don't know what I would do if I had to see someone else now that I have finally got somewhere :cry:
I slept a little better last night but woke up this morning feeling really congested. Hope not got cold on the way! Could be hayfever as suffer from that :cry: Still got horrible aches and pains in ankles, legs, knees and also got a pain in my right hip today :cry:
The weather doesn't help as it is dull, very windy and cooler here today.
My right knee feels quite hot today with the Osteo compared to my other one.!
Sorry about the moaning of all my aches and pains! Hope you are all not suffering too much :cry:
Going away on Friday 22nd to Telford Shropshire for a few days. Be back on Tuesday 26th Aug. Trying to sort catch up on ironing before I look after Molly today. Not got her tomorrow so then need to clean the van.
I do now try to do everything in smaller chunks as I have learnt from the past it catches up with me a few days later! :cry:
Keep Smiling! :o It is a bit hard with this lovely weather we are having in Summer! :cry:
Love Tess/Jane x x
Hi Tess, everyone,
I was awake several times last night as I seemed to wake every time I had turned over?........ and so my hubby got up with my little one as we take it in turns due to him working 12pm-6pm three times a week Mon Thur, Fri, two hours on a Tuesday and eight hours on a Wednesday 12-8......so not long hours as such for him (apart from Wednesday's)but because he lost his sleep in he has been snappy all day...... I should have got up myself as I got up at 10.30 due to having an appointment with the optician........ anyway I know I won't do that again as I rather put up with the pain and fatigue than put up with his manner!!!!!! Ethan my little one is at nursery tomorrow thank goodness!!!!
So I will try and go to bed earlier tonight????? we will see? I do hope you all ok and I hope you get a better night sleep than I have done........ the funny thing is that the lycra seems to be working on the fibromyalgia but obviously not shifting the Osteo pain :oops: even if I am taking strong pain killers!!!!!!!!!
Take care everyone and keep smiling as that is all we do!!!!
Hi Ses and everyone
I don't know how you cope having to get up to your little one! I suppose though when you have no choice you just get on and do it. Must be hard for you. My husband does nights on his shift every now and again. I do miss him and never sleep as well when he is on nights as I would any other time. At least I don't have to worry about disturbing him if I do have to get out of bed during the night. :roll:
I should be sorting things out tonight for going away on Friday but comes to the evening and just feel to tired to do it. Not got Molly tomorrow so gives me a day to myself and can do things in my own time. :lol:
It is really hard having to lots of pain going on! What works for fibro dosen't always work for the Osteo.
Can't work this pain thing out lol :cry:
I say I will have an early night and don't always do it. Then next day when wake up think I wish I had. Sometimes for me staying up a bit later I do sometimes sleep better.
Well I'm going on now hope you get some better sleep. :lol:
Best wishes to everyone!
Love Tess/Jane x x
Hi Tess, Ses and everyone
Been to zoo today with my son, thought I managed very well, until I tried to get out of car when we got home. Boy was I stiff! couldn`t get up stairs at all. I`m like you Tess have learnt to do things in manageable chunks or risk paying for it afterwards. I`m certainly paying for what was a very enjoyable day out. I there no justice with this condition???
Hope you have a good break Tess and are not on too much pain.
take care all
Love Linda
Hi Linda, Ses and Everyone
Thanks Linda hope to have a bit of a rest. The hardest job is getting everything ready before we go. Try to start a good few days before so i don't have to do all in one day lol! :lol:
It is a shame that when you have had a good day out it has to be spoilt by our aches and pains. But if we didn't do these things we wouldn't get out anywhere. :cry:
Still got a bit more loading up to do then be ready to go on Friday dinner.
I seem to take everything but the kitchen sink lol. Oh well better to be prepared.
Hope you all keep well!
Love Tess