Tengo 19 años y me diagnosticaron chiari 1 hace un año después de un año de completa insensibilidad en mi brazo izquierdo. Además de eso y de dolores de cabeza por presión al reír, etc., no tenía problemas reales, así que decidí no operarme en ese momento. Desde entonces, he estado teniendo dolores de cabeza más frecuentes, problemas de equilibrio y problemas para tragar. Más recientemente, me he estado desmayando y, según las descripciones de los demás, tengo convulsiones cuando me desmayo. ¿Alguien ha tenido esto con chiari? También, ¿en qué período de tiempo empeoraron o se desarrollaron sus síntomas?
Gracias
Hola
Mi hija tiene 26 años y ha perdido repentinamente su campo visual derecho y tiene un fuerte dolor de cabeza, debilidad en los músculos de las manos, no puede abrir la puerta, dificultad para tragar. Le diagnosticaron malformación de Chiari tipo 1, pero no he encontrado un médico que realmente sepa por lo que está pasando. Todavía estoy buscando.
Espero que te mejores y encuentres un buen médico.
Los mejores deseos
Dear Emma,
I am sorry to read your post in regard to your symptom, I have been there just like you are now 2.5 years ago. I used to work as a medical rep.advicing health professional what to prescribe etc..etc..I also detest drugs and mostly surgery, I refused to have decompression despite being adviced that was the only miracle symptom reduction. So I went to spend lots of supplements only realised that supplements or healthy eating could not help denegeration - such as: hip replacement, Back operation or hernia, Chiari is like brain hernia - I thought I was going to get better if I start to live in a healthy life style, taking EPA/DHA/ALA you named it - but my symmptom getting worse, in a state that I was housebound (I could not even walk properly) and the aching was getting horendously unbearable- so i went back to my Neurogist to be referred to 2 NS (for second opinion) I was lucky that my 1st Neuro Surgeon agreed with my request - as I liked to be seen by Mr Flint - I knew fro this website that he was extremely fantastic, I also talk to the nurse in Ann Conroy Turst about him - there you go..I got decompression 5 months ago - the first 2 months post surgery was hell, but now, I am free from any drug, but I keep maintaining my healthy diet, mostly fish, eggs - to get protein for my brain, plenty of green juicing, I do not have any of the symptom anyomre, what I have now is back pain - because I had so many Lumber punctured (I guess) I am seeing Mr Flint again in February for Post surgery check up. - In my opinion I have done the right thing, I wish I listen there and then (2.5 yrs ago) rather wait and torturing myself, but hey..you can only learn.. just make sure you get the best one in your area, I have to travel 3-4 hours to Mr Flint- Are you in the UK?, if you are perhaps you would like to ask your gp to refer you to him, he is at QE Hospital. Be positive, do not do too much, take it easy, but HONESTLY DO NOT WORRY = THERE IS A LIGHT AT THE END OF THE TUNNEL - GOOD LUCK
dEAR jEHAN, I SUPPOSE YOU ARE ABLE TO READ MY POT TO eMMA, If you are in the UK you can contact Ann Conroy Trust, they will be able to find NS that on their list (THey are good) but if you could ask your daughter to ask the GP or your neurologist to be referred to him that woud be good. When I talked to their staff, he has got more than 95% success rate - that is something and he operate every Tuesday (once a week) do not leave it too long - as the condition can get worse. Good Luck
Hola, me alegra que tu tratamiento haya funcionado y que te sientas un poco mejor. Vivo en Escocia y tengo un buen cirujano que estaba dispuesto a operar el año pasado, pero solo recientemente he tenido un aumento de síntomas que me ha hecho sentir peor y como si quizás la cirugía debería ser una opción.
Well Emma, do it as ap, that is my opinion,maybe others have different suggestion, I must admitted the first 2 months post surgery was hard, however i AM THE LUCKY ONE, who had a successful one. It might help you to get magnesium oil to spray in your area where you feel pain (I.e:neck, shoulder) but do not got to chiro.