Eu tenho 19 anos e fui diagnosticado com Chiari 1 há um ano, após um ano de dormência completa no braço esquerdo. Além disso, e dores de cabeça com pressão ao rir, etc., eu não tinha problemas reais, então decidi não fazer cirurgia naquele momento. Desde então, tenho tido dores de cabeça muito mais frequentes, problemas de equilíbrio e dificuldade para engolir. Mais recentemente, tenho desmaiado e, pelas descrições de outras pessoas, parece que estou tendo convulsões quando desmaio. Alguém já teve isso com Chiari? Além disso, em quanto tempo seus sintomas pioraram/desenvolveram?
Obrigado
Olá,
Minha filha tem 26 anos e de repente perdeu seus campos visuais do lado direito, está com dor de cabeça intensa e fraqueza nos músculos das mãos, não consegue nem abrir a porta, além de dificuldade para engolir. Foi diagnosticada com malformação de Chiari tipo 1, mas não consigo encontrar um médico que realmente entenda o que ela está passando. Ainda estou procurando.
Espero que você melhore e encontre um bom médico.
Atenciosamente,
Melhores desejos
Dear Emma,
I am sorry to read your post in regard to your symptom, I have been there just like you are now 2.5 years ago. I used to work as a medical rep.advicing health professional what to prescribe etc..etc..I also detest drugs and mostly surgery, I refused to have decompression despite being adviced that was the only miracle symptom reduction. So I went to spend lots of supplements only realised that supplements or healthy eating could not help denegeration - such as: hip replacement, Back operation or hernia, Chiari is like brain hernia - I thought I was going to get better if I start to live in a healthy life style, taking EPA/DHA/ALA you named it - but my symmptom getting worse, in a state that I was housebound (I could not even walk properly) and the aching was getting horendously unbearable- so i went back to my Neurogist to be referred to 2 NS (for second opinion) I was lucky that my 1st Neuro Surgeon agreed with my request - as I liked to be seen by Mr Flint - I knew fro this website that he was extremely fantastic, I also talk to the nurse in Ann Conroy Turst about him - there you go..I got decompression 5 months ago - the first 2 months post surgery was hell, but now, I am free from any drug, but I keep maintaining my healthy diet, mostly fish, eggs - to get protein for my brain, plenty of green juicing, I do not have any of the symptom anyomre, what I have now is back pain - because I had so many Lumber punctured (I guess) I am seeing Mr Flint again in February for Post surgery check up. - In my opinion I have done the right thing, I wish I listen there and then (2.5 yrs ago) rather wait and torturing myself, but hey..you can only learn.. just make sure you get the best one in your area, I have to travel 3-4 hours to Mr Flint- Are you in the UK?, if you are perhaps you would like to ask your gp to refer you to him, he is at QE Hospital. Be positive, do not do too much, take it easy, but HONESTLY DO NOT WORRY = THERE IS A LIGHT AT THE END OF THE TUNNEL - GOOD LUCK
dEAR jEHAN, I SUPPOSE YOU ARE ABLE TO READ MY POT TO eMMA, If you are in the UK you can contact Ann Conroy Trust, they will be able to find NS that on their list (THey are good) but if you could ask your daughter to ask the GP or your neurologist to be referred to him that woud be good. When I talked to their staff, he has got more than 95% success rate - that is something and he operate every Tuesday (once a week) do not leave it too long - as the condition can get worse. Good Luck
Olá, fico feliz que seu tratamento tenha funcionado e que você esteja se sentindo um pouco melhor. Eu moro na Escócia e tenho um cirurgião bastante bom que estava disposto a fazer a cirurgia no ano passado, mas só recentemente tive um aumento nos sintomas que me fez me sentir pior e acreditar que talvez a cirurgia deveria ser uma opção.
Well Emma, do it as ap, that is my opinion,maybe others have different suggestion, I must admitted the first 2 months post surgery was hard, however i AM THE LUCKY ONE, who had a successful one. It might help you to get magnesium oil to spray in your area where you feel pain (I.e:neck, shoulder) but do not got to chiro.