Hi Shirley
Go onto the patient.info site, small box right hand side, key in HRT Topical, it then automatically opens another page, down the left hand side, the very first one says HTR Topical with a blue P at the front of it. Hope you can find it, lots of good info.
Any trouble come back to me.
Regards Lorna
Ok thanks for that Lorna.
To all the Girls
I saw my consultant yesterday, and she said she noticed an improvement in my condition, 3 months..... if I keep on with the current regime , it may take a year, but she sees no reason why I should be back to normal......Hope on the horizon. Yeh......watch this space.......
Sorry...should read. Should'nt....too excited.
Hi Lorna, That's great news. I was going to ask if anyone ever completely got over this condition. I have been on Vagifem since Xmas and also been using Vit E Oil recently as you probably know. I have now had 3 pretty good days and even though I have felt today like I want to wee all the time, the feeling hasnt been as intense so I'm hoping its gradually petering out. So glad to hear your news Lorna :-)
Shirley
I have used Vagifem in the beginning, but it made me redder and irritated, hence the reason I was put on Ovestin, I also used Vit E Oil, but I got the 800 iu which again irritated me, I think I should have got the 400 iu. I think the 800 is too strong for me. It is a case of finding what suits our skin the best. As to getting over this condition, my consultant seems to think Yes, only time will tell for me.
Cheers....Lorna
Hi Lorna, I noticed more irritation with the Vagifem in the first couple of months than I have done recently. So maybe for me, it took a while to get past the irritation stage. We are all different aren't we. I'm not saying its perfect now, just better than it was. If it doesn't clear it up in another 6 months or so, I will mention ovestin. I was also wondering about the strength of the Vit E Oil so you have answered that question for me. And yes only time will tell for me too. But the last few days have been a bit better anyway. I hope I am not let down tomorrow!
It's been a long haul, getting diagnosed took forever, A year ago I could not leave the house for more than an hour, but yesterday I was away for 6 hours, sitting in the car and walking about, without any real discomfort, so if things keep improving, who knows my life might return to normal, one can only hope.
Yes I've been troubled with this since about July last year. I've not wanted to go far or out for long either. Sounds like yesterday was a great success for you. I am really pleased to hear it. Yes fingers crossed things go back to normal for you, for us all in fact. Its been a nightmare. Yes all we can do is hope. :-)
Hi, I hope the ladies here have since found relief relief. It seems one solution is not for all and it's a trial and error process. As Vagifem have worked for me although I think the symptoms maybe relieved AV is not reversed unfortunately unfortunately. I also find Sylk was the best lube as you don't need to use too much and it doesn't dry too quickly. Carlsons Key E suppositories are also helpful if it's just dryness that is causing irritation sometimes just half a capsule I'd adequate. If constant thrush is a problem I have found a garlic capsule once a day reduced the frequency as garlic is supposed to impede the growth of candida. Ginseng is also helpful to increase blood flow and sex drive I'm told.
Good luck ladies
Apologise for doubled words theirs no edit button :-)
Hi Tracy, How long were you using Vagifem before they started working for you? I've been on them since Xmas. About 4 weeks ago I saw the doctor and told her they weren't helping much but she told me to keep using them twice a week. So I am still using them. Maybe the soreness has dialled down a bit but its still there, as is the wanting to wee all the time. Having said that though, perhaps the intensity of that is less too. Some days are a bit better than others and some are worse. Friday was bad. I just couldn't be bothered going anywhere or doing anything. Perhaps I should try Sylk or the Carlson's Key E suppositories. Yes I was told its the dryness that is causing irritation. Must admit I had not thought of using garlick capsules for thrush though. Glad to hear the Vagifem worked for you. This VA has been/is a real bind. Fingers crossed its not too bad today for any of us suffering with it.
Hi Shirley, it's a bit of a journey AV and hard to stay positive and keep going but please do. It was a gradual process with the Vagifem and my dose needed to be increased so maybe that might be something to talk about. I noticed I actually spent a day not being so aware of the irritation after about 3 months after the increase using them daily. Then it was reduced to a couple of times a week to maintain which all worked successfuly for me.
This was previous to my oopheorectomy where my oestrogen levels were obviously then nil. I now use Livial plus Vagifem.
Hope this helps :-)
Hi Tracy, Thank you for your message. Yes AV is a bit of a journey. I've been on mine for almost a year now. I agree, very hard to stay positive and keep going but I will try and do so. I had not thought about having the Vagifem dose increased. I'm on two tablets a week right now. Yes I may mention that to my doctor next time. Great to know you werent aware of the irritation after increasing the dose. I wonder if something similar would work for me. Yes its all about low oestrogen levels isn't it. I am 5 years post menopause and never expected any of this. It is something that nobody ever mentioned at any time in my life so its been really hard to deal with as you know. I'm off to Scotland in the car with hubby on Saturday, a trip of about 300 miles. I just hope I'm not feeling like I am wanting to wee all the time that day!! I hope to God it's one of my better days. Not heard of Livial before. Anyway thank you for your help. I'm not too bad today (So far) so I may go out a bit. :-)
Hi, again my Vagifem levels were increased slowly till the symptoms improved over time. One size doesn't fit all but sometimes any information can lead you nearer a solution. I had many different Hrt before Livial after my ovaries were removed this one has worked for me where others failed. Hopefully the journey to Scotland won't be too uncomfortable but I'm sure it will be worth it as it's a beautiful place. Enjoy!
Hi Tracy, Thanks for telling me about your Vagifem increasing slowly till the symptoms improved over time. You are right, one size doesn't fit all. I only wish it did. Though as you say, sometimes any information can lead you nearer to a solution. Sorry to hear you had your ovaries removed. Glad the Livial worked for you though. I'm hoping I won't be too uncomfortable going to Scotland as well. I managed to go out today so that's something. If I am "As good" as I am today, I will be able to cope. I just don't want hubby to have to be stopping at services every 30 mins for me to go to the ladies! Yes Scotland is lovely. I've been many times over the years. I just hope the AV doesn't get too bad whilst we are there, Oh and I hope my new left hip behaves too! It's the first time I've been on holiday with it! Take care. :-)
Really low today 
Had a great day yesterday. No A V symptoms at all!! It was fab. No soreness. No wanting to wee all the time.
But today its back again!!! Just wanted to be on my own so I could cry my eyes out
Instead I have had to keep going with getting ready for tomorrows holiday to Scotland and take brother to see mum etc.
Not a good day. Please god I don't want to feel like this on holiday.
Right hip/knee are bad too and giving me a lot of pain so taken my Naproxen which has helped.
Sorry.
Hi, sorry to hear it's been such a bad day. It does make it miserable when all you can think about is the discomfort. Have you been back to the Dr I went so often till they got the dose right? I now have the flexibility to up my dose according to how bad my symptoms are and rarely go now.
Hopefully you will feel better for your trip :-)
Hi Tracy, Thanks for your message. Yes a miserable day with it after such a great day yesterday. Not seen the doctor for about a month but I will make an appt when I come back from holiday and discuss upping my dose. Can't carry on like this. Before you upped your dose did you get good days sometimes? Then back to bad ones. So irritating. Anyway it would be good if I could up my dose like you and rarely have to go the docs with it. Will we ever get over this or is it a case of being on medication permanently do you think?
Hi yes I did get good and bad days I guess because your hormones fluctuate like they did beforehand. I was told by my Dr that some women like myself might continue to need a small dose due to my not having ovaries but maybe others can do without overtime.
Take care