First of all i will say that i published something similar on other groups but this shouldn't be a long post,i'll use a short version just to point out key details in the story and yet to prevent it from being too long.Recently i went to a night club for a first time and in the beginning everything was fine,i had a great time!Later i was gradually becoming dizzy and had a weird feeling in my head,it was barely noticable while i was inside because of the atmosphere but when i got out i felt horrible:it was a combination of vertigo,ear ringing,lightheadedness and odd feeling in my head,it was nearly impossible for me to function normally.Then i went home and fell asleep,when i woke up in the morning things were good but it was still ringing in my ears(it disappeared gradually).Could the trigger be loud music,lights or something else i am unsure but i can guarantee i wasn't drinking and my friend said it is normal,it happens because of the loud music but i still feel like it's too much.Now i would like to point out my history because this whole year was my nightmare.I am suffering from a lot of symptoms which are..according to doctors only from mix of stress,anxiety and bad life habits.9 months ago and 5 months ago i had those "peaks of my stress and anxiety" because of my symptoms and the remaining period including now is better but not too much.In a nutshell my symptoms are:headaches(sometimes frequent sometimes not,depends of the period,used to have ice pick headaches as well as migraine ever since i know about myself),constant brain fog(cognitive impairment and similar,like the capacity for complex tasks and thoughts is reduced),odd sensation and feeling in my head as well as temporary pressure,brain zaps,some form of derealisation where i feel like there is something off about my perception of reality through eyes.I did a lot of tests and they all turned out to be fine except i still didn't have an MRI but 2 neurologists,a psychologist and everyone else see that as unnecessary because i did an MRI 4 years ago when it was something else and they also think it's nothing serious.But my life is now different because of everything and i'm struggling for the solution that's why i seek helpful advice. Tried to keep it shorter but this is the best i can.
Please read my post on here.
Think there are different possibilities but if your routine blood tests are coming back clear I would think of the possibility of an auto immune dysfunction. I had similar problems with this and there are no definitive blood tests but rather indications in things like inflammatory marks esr crp and ana shouod be looked at. Also 8s your general health good. Do you have tummy or bowel issues or any joint pain or muscle pain.
been dealing with the same thing since march...your symptoms are the same as mine. weird head feelings, zapping, etc. and feeling "spacey" . I too have been told by neuro amd doc that it's stress. mri ct blood all came normal. in the néw year I'm going to a naturopathic doctor to run tests. they are expensive, but I can't take it anymore. I don't get dizzy like spun off my feel, just constant off balance feeling. walking bothers me sometimes, and lately when I put my car in park, I have to make sure it's actually in park cuz I feel like I'm moving still....it's terrible....your not alone. please let me know if tou find anything out and I'll do the saem. loo into naturopath in your area, and see if your insurance covers it. mine doesn't unfortunately, but I need to do it.
Sounds a lot like vestibular migraine gone to a chronic form. A trial of a migraine preventive medication at a high enough dose would probably be a good idea. I'm surprised one of your neurologist did not mention that especially with your history of migraines.
I suggest you go on an elimination diet for a few weeks to rule out food sensitivities and/or mild allergies , it could also relieve your symptoms anyway. Afterward you could try gluten free. Try also to stop coffee and all stimulants ,it helps many people , my health improved when I quit coffee , I became very sensitive to it in the last few years.
some info about migraine symptoms that don't involve the classic headache...
Amplification of normal bodily sensations (eg normal sensations or absence of awareness of sensation may become tingling, pain or throbbing, noise, light and smell may be amplified and become uncomfortable and balance input may be amplified asymmetrically so that dizziness arises because of vestibular imbalance).
Autonomic disturbance (involvement of the nerves that regulate automatic body functions, leading to symptoms such as red, runny or drooping eyes, facial swelling, blocked or runny nose, nausea, eructation (burping), diarrhoea or flushing, etc), and
Brain dysfunction - this may manifest in the sense of aura symptoms in one in fivepersons whereby abnormal visual disturbances, dysfunction of speech or altered sensation occur; mood may change, leading to irritability, depression or even elevation of mood; there may be a prominent component of fatigue; memory may be subjectively poor and lead to confusion; in rare instances, patients may even describe symptoms of Alice In Wonderland Syndrome where they may note a distortion of reality and experience a feeling of body parts not belonging to them or being the wrong size, they may feel the wrong size compared with the environment or they may even hallucinate.
I did,thank you for the info,could be helpful!
I'll definitely have that in mind,my routine blood tests are clear and general health is also good,i don't have bowel issues nor joint or muscle pain but i went to one doctor who thought that gut might be the cause so he gave me something to drink but i didn't feel much change.
I pretty much sense our common symptoms,the most irritating feeling for me is that constant sense of your perception and focus through eyes to be somehow different and shifted,it's disastrously hard to explain.Also for me going to cinema or a night club increases this feeling and i sometimes get pressure in head as well es red eyes.I will definitely let you know..i might be doing an MRI soon but it's uncertain.Send me a message in private if you want we can talk.
Thank you for your opinion,it could actually be vestibular migraine as far as concoction of dizziness,headaches and similar is concerned but i don't know what is the link between vestibular system and impaired cognitive abilities,can it be related somehow or can something else caused by vestibular migraine be the trigger.
I will have that in mind,thanks a lot!
Hi, to be honest not sure what he gave you to drink but I had quite intensive treatment with immunosuppresants and finally interferon as my symptoms grew worse over the years. I am in remission now but if it's something auto immune not sure addressing the stomach symptoms will help to be honest. Problem I had was that inflammation was causing my issues including the stomach issue and treating the problem generally in a systemic way was the only thing which addressed it in the end.
Unsure if it's autoimmune but have to leave the plausible possibility for that.How exactly were you diagnosed with this
After years of similar sorts of symptoms described here and being passed from pillar to post I began to get joint pain and my doc referred me to rheumatology. The rheumy I saw was great. She took a full history of all symptoms...when they began etc. She recognised that I had an underlying inflammatory condition which linked all my symptoms together and referred me on to an immunologist. After a year if seeing her and being monitored I was diagnosed. These systemic illnesses are v hard to diagnose and with little showing up on scans or blood tests a lot of doctors are stumped by it. Once you are properly monitored and your multi symptoms logged and properly assessed it begins to make sense. I am now in remission with 'little' symptoms going on. But vertigo and migraine have gone now. 3 years in meds now 2 years without meds I went from having to give up work because of chronic fatigue and pain to taking up nordic walking and cycling. I now only have minor issues and no major flares. But I was almost 40 by the time I was diagnosed.
Margaret, sorry if I missed it, but which condition were you diagnosed with? I have a lot of fibromyalgia symptoms, mildly positive auto antibodies, but not enough to be diagnosed with lupus. I just started seeing rheumatologist who is running more bloodwork. My biggest issues nowadays are aching all over and fatigue.
Hi Lizzy, you didn't miss it I often don't tell people in posts what I have because I think that it kinds of leads people down the wrong path and they dismiss the possibility of auto immune illnesses because they don't have some of my symptoms. But lots of ai issues have overlap symptoms without being the same. And some people even with the dame disorder vary so much in terms of how they are affected by it. I was diagnosed with Behcet;s about 15 years ago now but I rarely have the ulceration associated with Behcet's but mainly had neuro issues. Some people don't have neuro issues at all.
But I often have the butterfly rash associated with Lupus and I also have dry eyes associated with Sjogren's but both have been ruled out. The immunologist I saw at first ruled out Sjogren's quite quickly.
I don't know about you but my symptoms developed slowly over years. So I had been diagnosed with irritable bowel and vestibular migraine but both were wrong diagnosis. I do have gastritis which lingers still but is def not as bad as before. And have been without migraine or dizziness for at least 7 years. But until you are properly diagnosed you are in a bit of a no man's land without proper treatment. Once you do get treatment it can be life changing. I admit some people in my help group never find a good medication which works for them but I was very fortunate to find the right specialist and the right treatment. Treatment and opinions vary so much even amongst specialists and even when you have a diagnosis.
Are you in the UK?
And Lizzy that sort of migraine syndrome with dizziness is also a symptom very associated with Lupus.
I found this on a Lupus information site....
LupusWarriors might experience the dreaded lupus fog bringing the mind and body often to a confused state and difficulty remembering potentially crucial parts of their life. And on top of that, the inability to adequately express themselves could also leave individuals who suffer from this condition feeling isolated and alone.
The struggles of lupus are real and severe. However, there is one symptom that people really dread—the lupus headache.
In the past, doctors and individuals had a difficult time understanding whether the “lupus headache” was a real issue. The event closely mimics either a primary headache or a migraine headache making it difficult to distinguish between the three. However, it’s imperative to differentiate, because there are different treatment strategies for migraines and lupus headaches.
josip- brain fog is quite common with vestibular migraine, any type of migraine as a matter of fact. Migraine is a brain disease with multiple symptom presentations. If the nightclub had any type of strobe or flashing lights, that could trigger it. As could loud noises- is music was loud. Most importantly you have a history of migraine.