does anyone have these symptoms?

Digestive health
1

Hi there

I have always had a bit of a dodgy stomach but for the past year or so i have been diagnosed superficially with oes reflux

I get worried that there missing something

i get pulsing in my stomach which radiates up my chest to my head so my whole body pulses, i get dizzy and my legs sometimes fell weak and that i'm walking like the man in the mr soft advert!!

the worse is the breathing, its like i can't get air in my lungs, like something is pushing up from my diaphram and pushing the air out and then like someone has there hands on my neck, i have to lie down and breath no matter what i'm doing as i feel i might pass out, i also get very itchy like i'm uncomfatable in my own skin!

CAN IT REALLY BE THIS BAD. cause if it is i can live with it, but i'm so scared its something else and i'll be found dead from a heart attack or something (i'm 35 years by the way)who will look after me dogs then LOL

any response appreciated, just want to know that i'm not alone!!

cheers

2

Got diagnosed with acid reflux three months ago, got many of your symptoms. just started to feel better in the last few weeks! Your note alone mate. Im 32 and thought i could eat and drink anything untill christmas. In January I thought i was going to drop dead with it, the best advice i could give you is to slowley change your life style (diet) and start to think posative. The best thing to remember is that lots and lots of people have this and simpley learn to live with it... Once you go down that road you WILL start to feel better. All the best mate, John.

3

So sorry to hear your troubles.

I would advise two things:

Pure Aloe vera juice - twice a day

Manuka Honey - as higher factor as you can buy but definitely 10+.

take care and god bless

xx

4

hi

i have most of your symtoms and feel like im dying this could be panic attack due to u feeling ill try to divide the two and u will learn to live with the panic good luck

panic attacks can feel worst as u don't know whats happening to u and u think u have something else its hard but try

5

I get many of your symptoms also and the thing that triggers me to think its not \"just\" GERD is the weak legs feeling that you described - so reading this is somewhat reassuring.

I used to get panic attacks also but once I accepted my condition it was possible to seperate the feeling of not being able to breath with the reality that I could. Sometimes the feeling of palpitations or even heart-attack I have learned that it is not actually a heart problem but a spasm in the oesophagus - so not to worry to the point of having an anxiety attack.

I was first diagnosed with anxiety and later with GERD. I believe the anxiety is/was triggered by the worrying symptoms caused by the reflux and I hope for you that you can also learn not to panic when your symptoms arise. Remember it is digestive system not respitory system!

6

Hi there

I am so glad I have found this site. I thought I was going mad.....I too have these kind of symptoms and its driving me nuts now!!

Does anyone know what we can and can't eat?? I to feel shaky and dizzy all the time. I also have low blood pressure to which contributes towards this...

Thanks

Sue

7

Hi I am 37 and was diagnosed with GORD last year so far suffering for 6 months or so, I originally had bad panic attacks when I slept until the girlie told me to go get them checked out, I was originally thinking heart attack so on so forth, so I went had all the tests possible and they found nothing in regards to my heart, which they said was perfect.

As i continued to suffer with chest pains I went to my doctor who said what would you like me to do, I decided to see a specialist who after a barium and xray confirmed that i was suffering from GORD and that it was time to change my lifestyle, I am still suffering and if anything it's worse as i now suffer slightly from mono phobia as in the back of my mind i still think it's something more.

as for the other posters symptoms i have also had those the feeling of not breathing weak legs so on so forth, I have decided that it's time to change my diet and way of life and health, otherwise I can defeat this disease.

it's great to know that others have the same symptoms and hopefully we can all help each other going forward smile

8

Hi just to let you know you're not alone. I'm 36 and suffered complications after my second child was born 3 years ago. My weird symptoms started then all of a sudden. Docs first said it was asthma but I didnt have a wheeze and my peak flow was fine. All I had was a hoarse dry cough and a horrible taste in my mouth and felt like I couldn't swallow properly. I get a strange feeling in my stomach which feels raw and pain in my back. I feel like my whole body is pulsating my legs go weak feel like i'm going to pass out. When I try to breath it feels like my lungs are shutting theres pain under my left breast going through to my shoulder and down the top part of my left arm. My pulse races, I have been in and out of a&e as I keep getting taccacardia (scuse the spelling) with it although cardiac xray show all fine. My blood pressure shoots up I feel like I constantly need to wee all the time and I get diorreah(oops spelling again). Afterwards for several days I am left feeling completely weak and exhausted I also get quite a lot of poor cognitive issues where I forget what I'm talking about or can't get my words out properly. Docs thought at one point I had ms. I have however recently been diagnosed with fibromyalgia docs say this explains a lot of the weirdness but I never heard of silent reflux before. I was so scared when it first happened to me 3 years ago I actually thought i was dying. I'm so glad I came accross this blog as now I can go to gp and explain this to her it might help sort out the rest of the horrible weird symptoms.

9

Hi guys

I have been told i have acid reflux too it's scary for me as i'm convinced it's throat cancer due to me being an ex smoker I'm 38 by the way ,I just can't seem to relax and am worried all the time I try to say to myself that it's gerd but can't believe pshycological issues can make me have such real symptoms, I'm going to see Ent specialist and hopefully it will give me some piece of mind and be clear of cancer , my symptoms seem to be a strange feeling when i breath in the back of my throat and a tight chest occasionally when i take a really deep breath, i can swallow ok although have been worried bout that since Doc asked if i can swallow ok but it's my mind running away with me. Do any of you have any of these symptoms guys?

I hope you all get better and it's good to find somewhere to let out some emotion.

10

Hi I have a similar problem, it started as burning in my throat and I took omeprozole and that is helping with the throat pain.  However I was left with always being overwhelmingly tired, shakey and dizzy all of the time.  What seems to really help is going for a short run every night about 15 minutes, just enough to get the heart rate up.  Also sitting somewhere during the day with plenty of ventilation and eating sugar or chewing gum really helps!

11

I'll try to keep this short(ish) and as informative as possible for others who find this vine/blog. 

I've Had GERD (Gastro Esophegal Reflux Disease) or at least been on Nexium Esemoprezole (or weaker UK alternatives sometimes) since around 2001 when I was 22 yrs old and diagnosed without a camera inspection or scan. 

Living in the UK I am now pushing for an operation to fix this once and for all as my meds 20mg once per day of Nexium aren't working any more. I need to have a camera down into the Esophegas in about 4 weeks as (believe it or not) I've only ever had 1 (in 2007) which came back with no issues. However I was kept on the meds I'd been on as clearly there was a sever problem. 

I HAVE THESE BREATHING PROBLEMS. THE REAL PROBLEM IS THAT THEY ARE NOT BREATHING PROBLEMS. SO THE DOCTORS (who have been taught this, not gone through what we have remember) DONT RECOGNISE THIS AND DISMISS IT. 

The problem I think is that the Esophegas gets burned by stomach acid coming up into it. It gets sore, red and swollen. This makes it feel like you can't get air. But take a deep breath, the air comes in right? Your chest inflates? You're fine. But it FEELS HORRIBLE. 

Bare with it as it will pass. It comes in waves for me. Funnily enough when I gain a few extra pounds. I'm 15 stone (210lbs) and when I dip below that I don't get these symptoms as bad. Because I'm eating omelettes and tuna and salad. 

If I start eating pizza and McDonalds and fizzy drinks, I suffer. After a few weeks it gets really bad and now I'm looking online for help. But I know the problem. Diet. 

Want to know what not to eat?

Here's a rough guideline but it might differ for you generally speaking. 

I PERSONALLY CAN NOT TOUCH

* Fresh Orange Juice

* Raw Onion

* Garlic

* Spirits or alcohol anything over 5% vol

AND IF INEAT AFTER 9PM I'm in trouble and munching Rennies (orange ones are the best) like 3-5 before I sleep. 

THINGS WE SHOULD ALL AVOID

* Junk Food

* gaining weight - Body Fat is our enemy

* Greasy Food - Takeaway basically and fried stuff

* Booze - especially wine or spirits

* Laying down after eating - give it  4 hours. 

TIPS

Place wooden blocks under the top legs of the bed to give you an incline which 'should' reduce acid running out of your stomach and into your esophegas when you sleep. 

THIS HAS NEVER WORKED FOR ME BUT I STILL USE 2 PILLOWS JUST IN CASE

Eat better

Exercise 

These things will limit the severity of your problems, that's a fact. But if you're in the UK push for surgery as I've been on tablets for 13 years and it's just unnecessary. 

You might have:

H PYLORI

If you haven't been tested, get tested. Many people have this and it's an easy issue to fix. Some certain anti-biotics which clear it up and you'll never suffer again. You may be one of the lucky ones so hope you have this. I didn't. 😞

GERD

If you're here I'll assume you know what this is. 

HIATIS HERNIA

This is when part of your stomach finds its way into the sphincter muscle (yes your arsehole isn't the only one you have) which is located between your esophegas and your stomach. If that's the case it'll need to be repaired. 

This is what I'm hoping the camera will find in January as it's an easy fix, relatively. But I can't see how I've developed this 13 years ago and lived with it. 

Or the sphincter can just be damaged. This can be repaired also. 

The problem we have (especially in the UK) is that nobody cares. They don't care. They treat cancer patients and have to give bad news to people daily. Your little heartburn problem isn't high on the agenda and my doctor looks at me like I'm wasting his time. 

Get past your GP and go to a gastroenterologist. Get a referral and do your best to see the resident / Specialist. Don't be fobbed off be use that will keep happening for 13 years. Believe me. 

In the short term, relax. You're ok. We all think we have Cancer. The older you get the more you'll worry about this. Don't. Worry is making you ill. Believe me. I'm sat here writing this because I feel so ill and worried. Ha. It's kind of thereputic. 

So what to do now:

1. Don't ruin your xmas 

2. But stop eating sh*t food

3. Relax and know that you can breathe

4. Make some small lifestyle changes, exercise more and eat better

5. Make an appointment with your GP

6. Get a referal to the Gastroenterologist. 

7. Have a camera down to see the issue. 

8. Don't give up. 

I should say that although I'm a bit overweight I'm not obese but when I start to feel the GERD symptoms I do feel like I am. 

I have never smoked

I don't really drink much (I would if i didn't have this condition)

But info ray rubbish quite a bit and don't train often. Especially not cardio. 

I hope this has helped and I've followed this chain now and will offer help if I can if it sends me an email alert. 

I'm not a doctor just a long term sufferer. Hope his helps. 

Good Luck

Tom

12

Hi Tom,

That's a very helpful post, thanks, and I wish you luck with getting your op. I wouldnt like to be on meds for 13yrs either!

 

I haven't yet been diagnosed, but am sure its GERD though the symptoms are apparently so similar to heart trouble that am being routinely sent for cardiac tests next week to rule that out. Obviously a stomach problem is a better option!  But pretty difficult to live with all the same.  Current symptoms are:

Nausea (no vomiting)

Heartburn.

Sharp stabbing pains in breastbone.

Lightheadedness, and also sometimes head feels like its been pumped up like a balloon.

Pain (more an ache) in left shoulder.

Burping.

Hard to take a breath quite often.

Very tired when these symptoms present.

Feel generally unwell a lot of the time.

Blurred vision suddenly, for hours.

The first 3 symptoms often start after walking at a steady pace, or going up a slope.

Does this sound like you? Have only found one online comment about the walking, which is a little bit worrying. And again one for the blurred vision.

I'm reluctant to take prescrip meds for acid reflux till I know whether its too little acid or too much being generated. Do they give you a ph test? Don't want to take prescrip meds that reduce acid if there isnt enough being produced in first place, which is often how come people stay on the meds for years because the meds alleviate the discomfort at first, but actually perpetuate the problem!  I am finding that Apple Cider Vinegar does a good job of calming my symptoms, and ACV can be taken as and when you like as opposed to meds.  Also drinking water helps quite a bit!

I also cant take garlic as I just found out!  In fact it could have precipitated all this.  I ran out of blood pressure meds over a weekend and online advice was to take concentrated garlic and/or cayenne pepper capsules.  These did work, but not consistently, meanwhile whole load of heartburn set up!  

About 5yrs ago I did have a camera down the throat and they said mild gastritis, for which i took the lansoprazole and nowadays was only taking those if plannng a spicy meal or even a glass of beer. My gastritis symptoms then were abdominal burning and heartburn, but never did I have this dizzyness and nausea and chest pain and feeling absolutely sh*te!

Best of luck everyone,

Birdy1

13

Thankyou for posting this. It's 4.00 in the morning and i'm up waiting for my pulse to return to normal,the pain in my breastbone to subside and for the dizzyness and neusea to go away. It has been so good for me to read all of these accounts.  The first time I had this I my gf phoned the doctor (101) and they sent an ambulance out. it was very embarrasing but at least i know it's not my heart!  so far i have worked out that light excercise is good,apples are good, taking antacids early on is good.

garlic is bad,coffee is bad,oranges, tomatoes,chocolate is bad.

I would offer comfort to anyone suffering with this (gerd).

IT WILL PASS.  it feels awfull, but.

IT WILL PASS

14

hell yea- when i first got it i thoguht it was a heart attack and now imon acid blocker but if i miss a dosee i get same symptoms--- feels like im breathing out more than in, shakes all over, chills, dizzy sometimes, rapid heartbeat feeling like i ahve to pee or take a bowel movement, the dosc in the hosp diagnosed acid reflux but had no heart burn -oh got very thirsty also- my gi doc isnt convinced 100 per cent it is reflux cause i dont cough much but i wheeze sometime, had lung xray and ekg cat scan and all were negative for anything - but my dooc wants more tests just the same- once i take a pill the synptoms stop again also

15

i got it once after i walked 2 miles hoe from work which i usually do- i did some research on over production of acid  due to nervous or anxiety constantly- and poor diet rcih in acidic foods- i have been diagnosed with reflux thoguh my gi doc isnt 100 oper cent sure, but the research says that your lungs will try to expel the excess acid resulting in diminished intake of air, tries to expel it through your kidneys so if they are being taxed(they can only expel so much acid daily) u will feel unwell , etc good luck with it

16

ty so much -my doctor isnt convinced yet it is acid reflux cause i dont cough with it , but anyway ive read its bad to prop your head up if u ahve a hernia -it will press against it and make it worse just lie sttraight with the head of our bed elevated- and i hope if i do need repair its simple and lasting 

17

Does anyone feels stomach spasms then feel really weak? This has been happening to me for three weeks almost everyday!!!! I think it might be reflux because i wake up everyday with an awful taste on my mouth and sore throat.

18

I'm not sure  but  i kind of having the same one.. feeling burning in my throat .back of my throat and having  a panic attack which is very scarry and my stomach hurts as heck and my back. dunno what to do. but i went to the doctor and told me that im normal my blood pressure is normal but still having palpattation 

19

Hey Irene, I had a similar problem with my throat for a long time, but its getting better now.  Have you tried eating only soft foods for awhile and seeing if the pain goes away?  Also just curious if you drink out of plastic bottled water containers?

20

I had a lot of these symptoms. Didn't realise it might all be connected. Mostly reflux in my case.

When medication failed. Taking Milk thisle tablets from Superdrug worked like magic for me. I stopped having all symptoms eventually. I now take them approx twice a year for three days. Usually after a party. (Maybe eating or drinking something I shouldn't) I hope this might help you, and every one else.