So a little backstory before i begin.
Since I can ever remember since being a kid is UTI’s, kidney infections, hospital stays due to kidney pain and kidney infections. Im now 28 and I’ve been suffering with kidney pain and kidney infections for many years and I’ve been to the doctors on many occasions to say I’m experiencing kidney pain. Some doctors have thobbed me of its ‘back pain’. For someone who has suffered so many kidney infections from such a young age I really know the differnce between kidney pain and back pain. I’ve had procedures to widen my bladder I think I’ve had this on 4/5 occasions to try help with my incontience as consultant was saying I maybe had a reflux. I’ve had long term antiBotics. I’ve had physio to try help incontience ever option you can think of I’ve had done or I had trailed and still consultant was continsiously telling me everything looks normal apart from scarring on both kidneys. More on the right than the left.
Anyway fast forward to an urology appointment start of this year I had a few scans due to still experiencing incontience, kidney pain and infections. A consultant had come over and covered the clinic I go to as my usual consultant was off. He had looked at allll images as he said there was so many due to all scans in the past and he noticed I had a duplex system on the right kidney. Had more tests and more scans and I’ve now found out that my right kidney is functioning at 5% and half or maybe more of it is dead and it’s not doing what it’s suppose to be doing. The letter says it’s chronically infected. So I now will be having an operation in the near future to remove the dead kidney. Which may be have been causing all the kidney pain for so many years. The dead not functioning organ. The consultant also said that he had looked at over 86 letters from urology and he had come across a letter back in 2014/2015 that a duplux kidney system was spotted but nothing further was done. Even tho I was experiencing infections after infections.
Now my questions are..
if somebody has a duplux kidney isn’t it meant to be monitored? And if so what do they do to monitor a duplux kidney system?
If they had been found by urology and it was put on a letter back in 2014 how has my consultant not linked all of this up before and thought this lady has a duplux kidney let’s see how that is functioning?
Instead i feel like I’ve been left and I’ve been brushed a side to suffer so many years in pain and infections after infections to know that all of this could have been avoided if my duplux kidney was monitored?
Wasn’t the symptoms I was having not obvious enough to put two and two together?
I’m left feeling angry and very confused. I feel robbed of many years of my life laying up in bed, losing money due to hospital stays, losing jobs due to all the time I spent off due to infections and the pain. Losing time with my child due to pain and long hospital stays.
Has this ever happened to anybody else? Has anybody duplux kidney been left and not monitored and only been noticed years and years down the line when it’s too late?
It’s not like they’ve had minimum images to look at. I’ve had so so many scans over the years. How can they not realise that my kidney was not healthy? My right kidney is a total different shape to my left healthy kidney and a total different color.
I mean some people have told me I have a medical negligence claim but feel like they might dead me off if I sue before I have the operation😂 I feel so failed by the NHS. Any thoughts?