Mein Erlebnis mit Dyshidrosischem Ekzem teilen

Ich habe DE Anfang Februar 2016 entwickelt. Obwohl ich mein ganzes Leben lang leichte Ekzeme hatte. Ich bekam hier und da einige Flecken an meinen Händen, die normalerweise wieder verschwanden. Meine Probleme mit DE begannen wie mein normales Ekzem, aber diesmal bemerkte ich, dass ich Bläschen und Flüssigkeitsansammlungen bekam. Es begann an meinen Handflächen und breitete sich dann fast über meine gesamten Hände aus. Kurz gesagt, nach 6 Monaten gab es keine Besserung, alle meine Finger und Handflächen waren entzündet, rissig und nässend. Zu dieser Zeit verschrieb mir mein Dermatologe eine topische Steroidcreme und Salbe. Das half nicht. An diesem Punkt setzte er mich auf 5 mg Prednison (orales Steroid) und eine schneller absorbierende ölbasisierte Steroidcreme. Drei Monate später waren meine Hände wieder in Ordnung. Aber das hatte seinen Preis. Während ich auf Prednison war und es absetzte, entwickelte ich Gesichtsakne und Follikulitis. Damit kämpfe ich bis heute. Ich bin jetzt seit einem Monat nicht mehr auf Prednison, und die Nebenwirkungen beginnen zu verschwinden. Was ich bisher aus meiner Behandlung gelernt habe, ist, dass die Kombination aus Prednison und der ölbasisierten topischen Steroidcreme wirkte, aber mit Nebenwirkungen. Wenn ich es noch einmal machen müsste, würde ich nicht auf Prednison gehen, denn seine Nebenwirkungen und das Absetzen des Medikaments wirken sich so sehr auf deine Hormone (Nebennieren) aus, dass es sich nicht lohnt, obwohl man in der Verzweiflung alles versuchen würde, um DE zu heilen. Andere Dinge, die mir geholfen haben und die für andere hilfreich sein könnten, sind: Hören Sie auf, Bläschen zu platzen und hören Sie auf, Ihre Haut zu kratzen oder abzuziehen. Bei mir hat das Platzen meiner Haut den Zustand verschlimmert. Ich habe gelesen, dass das Platzen von Bläschen die Ausbreitung sogar noch verstärkt, ich glaubte das nicht, aber es scheint für mich wahr zu sein. Auch Stress und Schlaf spielen bei mir eine große Rolle. Stress ist schwer zu kontrollieren, aber wenn ich gestresst bin, verschlimmert das meinen Zustand, die Ironie ist, dass der Grund für meinen Stress mehr DE ist, also wie reduziert man seinen Stress! Ich hoffe, das hilft jedem da draußen, indem ich meine Erfahrung teile. Mein Zustand ist im Moment in Remission. Ich weiß, dass DE nicht heilbar ist, aber an diesem Punkt ist es managebar. Derzeit verwende ich noch zweimal täglich topische Steroide, um ein erneutes Aufflammen zu verhindern. Aber ich denke wirklich, dass ich das auf einmal täglich reduzieren kann. Außerdem hat mich mein Dermatologe in den letzten sechs Monaten angewiesen, meine Hände mit Haferflocken-Seife zu waschen und eine milchbasierte Feuchtigkeitscreme zu verwenden. Schwere Cremes, Lotionen oder Salben scheinen meinen Zustand zu verschlimmern.

Hi Mark. Was interesting to read what youve said.  Ive only been suffering since Nov with this on my hands and feet.  It has been driving me insane with the itching and I read about popping the blisters would help the itching.  Although that worked it actually spread it worse, so a viscious circle. All the heavy creams the gp prescribed seemed to make it worse to.  I have been using fusidic acid for a couple of days now and the improvement is immense. Apart from that I am trying normal E45 cream now.  Will give the oatmeal soap a go to.

Hallo, ich kann dich total verstehen, ich habe auch DE (Dyshidrose) und hatte riesige Blasen an meinen Händen und Füßen und wurde wegen Infektionsgefahr 2 Tage ins Krankenhaus eingeliefert. Ich wurde mit 40 mg Prednison behandelt und bin gerade nach 4 Monaten von den Steroiden runter. Meine DE wird auch durch Stress ausgelöst und ich versuche, einige natürlichere Heilmittel zu finden, anstatt wieder Steroide nehmen zu müssen (die Nebenwirkungen waren grauenhaft). Ich verwende momentan eine Steroidcreme, aber die scheint nicht viel zu bewirken. Du hast völlig recht, der Stress, den die Ekzeme verursachen, führt zu noch mehr Stress, es ist ein Teufelskreis!

Hi Mark - can sure relate as I too have this. On right palm and 2 fingers. Usually flares up every winter for last 10 years - for whatever reason flared up especially bad this past winter. Will not take oral steroids again (took them 12 years ago for a painful thyroid problem) however as you say there is a cost to that. Won't go into it here.

Twice this past winter my hand got infected and had to go on antibiotics. Last prescription about 4 weeks ago and seemed to help the DE a bit.

There is no cure only managing it. 2 things I am having some success with.

1. Emu oil (in Canada can purchase it at Jean Coutu pharmacy)

2. For the itch and to soften skin do Emu oil absorbs I put boiling water in a bowl then place affected hand over the bowl and place dish towel over hand and bowl and keep there for 15 min.

When itching is totally out of control I have put baking soda or apple cider vinegar in water as hot as I can stand it and soak hand. It'll sting a bit but far better than itching and it does take itch away for about 24 hours. However this doesn't help heal - just control itch.

I also wear a cotton glove most of the day and night. In last 4 weeks slowly started to see improvement. However I normally see improvement every summer as weather warms up and I am able to let the sun shine on my hands.

Sure wish I could live someplace warm all year round as I think this would be my answer for keeping this horrible problem at bay.

If I had $1 every time someone told me to just stop scratching I'd be rich - lol.

I am new in this site. Been on here for cataracts but thought I check here too for anyone else's suggestions for DE.

Hi Mark and co. I too was diagnosed with DE about 18 months ago and went to see a dermatologist privately who prescribed Prednisalone following a biopsy confirming eczema. Yes it worked but then when I stopped it after 12 weeks, I suffered big time on hands, legs and lips. I joined a Facebook group which promotes no steroid use as apparently it causes worsening eczema. I am now over a year without steroids and find that by protecting my hands ( e.g. avoiding cleaning products, wearing gloves when preparing veg etc) when they show signs of eczema, my flare ups are minimal. A recent spell in hospital which saw me on antibiotic drip also caused a huge flare up but that has now disappeared. I would say avoid steroids if you can and use emollient creams etc when a flare occurs.

Hi Mark!

So froh, jemanden kennengelernt zu haben, der unter der gleichen Dermatitis wie ich gelitten hat. Ich hatte mein erstes Erlebnis mit DE fast vor zwei Jahren, aber ich hatte seit ich einen Monat alt war atopische Dermatitis am ganzen Körper, habe aber nie daran gedacht, mich an die Gemeinschaft zu wenden.

Meine DE waren überall an meinen Handflächen und Sohlen und haben vielleicht eine lang anhaltende atopische Dermatitis an meinen Handflächen und Sohlen verursacht. Sie haben völlig recht, was den Stresszyklus angeht! Ich hatte Angst, als ich DE zum ersten Mal bekam, weil ich mit dieser Art von Ekzem nicht vertraut war und feststellte, dass sich die DE umso mehr ausbreitete, je mehr man juckte, und dass sie auch die Haut meiner Handflächen/Sohlen verdickte, was das Ausführen alltäglicher Aufgaben erschwerte.

Mir wurde dasselbe orale Steroid verschrieben, und es wirkte wie ein Zauber, aber dieser Zauber hielt nur etwa eine Woche an. Die Nebenwirkung, die ich bekam, war Gewichtszunahme durch das Medikament, aber ich habe das Glück, dass dies die einzige Wirkung war, die es hatte. Die Steroide waren außerdem sehr kurzfristig, da mein Ekzem in den Wochen danach in voller Blüte stand.

Manchmal denke ich, dass ich mein Erwachsenenleben mit dieser Krankheit verbringen werde, und das macht mir Angst. Es ist finanziell belastend und emotional belastend für mich. Aber ich versuche, natürliche Heilmittel wie die Verwendung von Apfelessig und Kokosöl sowie Aloe Vera zu finden; hoffentlich helfen das und eine Ernährungsumstellung mir! Bitte wünschen Sie mir Glück und ich hoffe, dass Ihr Ekzem auch verschwindet! Bleiben Sie stark!

Hi There,

I've been suffering from pompholyx on the sole of my left foot for nearly 5 months now. It started as a very small intensely itchy patch & has now spread to an area which is at least 5 times bigger 😩 I've tried steroid cream, dermoil , e45, a fungal cream, coconut oil, & soaking my foot in a solution of potassium permanganate. Nothing works!! I have been under tremendous stress for some time & im suffering from depression. It is a vicious circle, the more I worry, my anxiety levels increase & then my pompholyx gets worse 😩 It is now affecting my daily life - it's painful to walk. I asked my gp for a referral to a dermatologist & she said they will laugh me out of there! (Her actual words) my question in return was how bad do I need to get?? Not being able to walk at all??!! She said i was in for the long haul, it will take along time to clear up! Great, more stress!! I feel for anyone who has this, it's not nice.

Hi - I suffer from atopic eczema on my hands. One thing that has helped me with the itch is to get a pan of boiling water with a teaspoon or two of sea salt in it then I place my hand just over the pan with a tea towel over it like a tent. Leave for minimum of 10 mins . Itch goes away and leaves my pores open to apply moisture. I have been using Emu oil. My eczema is worse in winter so I am going to keep doing this in the fall and hope this winter is better than last.

Hi

... I have had this problem for more than a year now. but now seem to be conquering it. The problem started with a fungal nail on one finger ... actually I think it developed because I used tea tree oil on my fungal nail.

To cut a very long story short, I have tried various antifungals, steroid cream and iodine cream, and hydrogen peroxide which conveniently turns fungal infection white, showing you where it is. All of them worked to an extent but in every case as soon as the application was stopped it came back, and sometimes worse. I managed to keep it under control but not to get rid of it. Then I heard a program on the radio about applying yoghurt to fungal infestions and tried that.

The result has been by far the best so far and I have had no real irritation for weeks. So, naturally enough, I have tried different kinds of yoghurt. It has to be live yoghurt ... using some that I found out had been pasteurised had a bad effect. And it is better if it is fresh. AND it is much better if it is non fat. Apply the yogurt to your hands as if you were washing them and let it dry before going to bed .... and after washing in the mornings and after washing your hands, like a hand cream. If you do it carefully it is not even noticeable, but it will leave a thin dry film on your skin.

Getting this kind of yoghurt isn't always easy and I tried buying some non--fat milk and innoculating it with live yoghurt and leaving overnight in a warm place. That worked really well and you can make up just a few 10s of mls at a time so it could be more convenient. You don't need much. One note of caution... to start with as the thickened skin around the nails dissolved (?) with the yoghurt application I got some open cracks. These healed fine but were sore for a few days. By the way, the fungal nails disapppeared and cured long before the rash disappeared. This is a treatment that requires regularity and persistence. A note of caution ... I am sure some people will be allergic to yoghurt, so if you are and get a bad reaction, stop! But this has worked really well for me and is a huge relief.

I am not quite

confident about weaning myself off the yoghurt completely yet but there is no immediate resurgence with leaving off treatment ... could this be because I have colonised my skin with yoghurt bacteria?

Try live non fat yoghurt rubbed in and allowed to dry. If it works fornyou as it did for me, let people know. I posted more detail below.

Hi --- I am replying to my own post. I have completely cleared the DH Eczema form one hand and very nearly from the other using non-fat live yogurt and applying as if it were a hand cream and allowing to dry.  There were persistent patches on the tips of two fingers around the nail. I bought plastic finger stalls from Amazon and put live fat-free yogurt in them and applied them before going to bed. One week of this and the remaining hand is very close to free.  Dampness overnight previously led to flare ups. Dampness with yogurt calms everything down. My problem is associated with fungal infection and yogurt + finger stall for fungal nail is incredibly effective -- I would be fascinated to know if other people who try the same approach get as good a result as I have. For any medical people I am a 63 year old male and made by living through science, hence observational and experimental approach to the problem.

Just a note to say -- try live fat free yogurt!

 

Thanks for your post.  I have yet to try anything that works.  Mine seems to glare up during cold months which we are pretty much headed into now.  Only relief I have found from the itching is boiling water with sea salt in it and to hover hand over it with a towel over it to keep the steam.  For whatever reason it takes the itch away but does not cure it.  The only other thing that has brought moderate success is emu oil when it is in the drying stage.

Going to try live yogurt.  Does plain Greek yogurt work?  What brand do you use?

 I put foderma serum on my hands at bedtime, put on cotton gloves to cover it.. It helps my  skin stay hydrated  for long time.  I would recommend it to anyone with dry sensitive skin.

Hallo, habe gerade Ihre Antwort gelesen. Haben Sie noch nie darüber nachgedacht, eine kleine medizinische UV-B-Lampe zu besorgen? Sie könnten sie zweimal pro Woche (z. B. 5 Minuten) verwenden, um Ihre Hautstörung in den Wintermonaten zu lindern.

Rthanks DanR - my mom has one of those lamps.  I perhaps should look into that.  I have had my bouts with skin cancer so I always weigh benefit to those lamps (or sun) with risk of more skin cancer.

This winter - just starting all is good for moment.  Haven’t had an outbreak in months.  Hoping this year (predicting milder temps) will be better.  I keep with emu oil and now have gotten into essential oils and using those too.  Fingers crossed (no pun intended) this will be a better winter.  Headed to a sunny destination for a bit this year too so hopefully that helps.  Saw my family doctor not long ago and she thinks the more severe flare ups due to menopause years too - affects the skin apparently.  Also thinking this has something to do with my early onset of cataracts.