Eu desenvolvi DE por volta de fevereiro de 2016. Embora eu sempre tenha tido eczema leve a minha vida toda. Eu teria algumas manchas aqui e ali nas minhas mãos, que geralmente melhoravam. Meus problemas com DE começaram a aparecer como meu eczema regular, mas dessa vez notei que eu teria bolhas e acúmulo de líquido. Começou nas palmas das minhas mãos e depois se espalhou por toda a mão. Para resumir, 6 meses depois não houve melhora, todos os meus dedos e palmas estavam inflamados, rachados e com secreção. Naquela época, meu dermatologista me receitou um creme de corticoide tópico e pomada. Isso não funcionou. Nesse ponto, ele me colocou em 5mg de prednisona (corticoide oral) e um creme de corticoide à base de óleo de absorção mais rápida. Avançando 3 meses e minhas mãos estão todas limpas. Mas isso tem um custo. Enquanto estava tomando e reduzindo a prednisona, desenvolvi acne facial e foliculite. Com a qual ainda estou lutando até hoje. Estou fora da prednisona há um mês e seus efeitos colaterais estão começando a desaparecer. O que aprendi até agora com meu tratamento é que a combinação de prednisona e o corticoide tópico à base de óleo funcionou, mas a um custo. Se eu tivesse que fazer tudo de novo, não teria tomado prednisona, seus efeitos colaterais e o desmame do medicamento fazem tanto com seus hormônios (glândulas adrenais) que não vale a pena, embora em tempos de desespero você esteja disposto a tentar qualquer coisa para curar a DE. Outras coisas que funcionaram para mim e que podem ser úteis para os outros, pare de estourar bolhas e pare de coçar ou descascar a pele. Para mim, estourar as bolhas piorou minha condição. Li que estourar bolhas faz com que se espalhe ainda mais, eu não acreditava nisso, mas parece ser verdade para mim. Além disso, estresse e sono são muito importantes para mim. O estresse é difícil de controlar, mas quando estou estressado piora minha condição, o irônico é que a razão pela qual me estresso é mais por causa da DE, então como você reduz seu estresse! Espero que isso ajude alguém aí fora compartilhando minha experiência. Minha condição neste momento está em remissão. Eu sei que a DE não tem cura, mas neste ponto é controlável. No momento, ainda estou usando corticoides tópicos duas vezes ao dia para evitar que piore. Mas acho que posso reduzir isso para uma vez ao dia. Além disso, nos últimos seis meses, meu dermatologista me fez lavar as mãos com sabonete de aveia e usar um hidratante à base de leite. Cremes pesados, loções ou pomadas parecem piorar minha condição.
Hi Mark. Was interesting to read what youve said. Ive only been suffering since Nov with this on my hands and feet. It has been driving me insane with the itching and I read about popping the blisters would help the itching. Although that worked it actually spread it worse, so a viscious circle. All the heavy creams the gp prescribed seemed to make it worse to. I have been using fusidic acid for a couple of days now and the improvement is immense. Apart from that I am trying normal E45 cream now. Will give the oatmeal soap a go to.
Oi, eu totalmente simpatizo com você, eu também tenho DE (eczema dishidrótico) Eu tive enormes bolhas nas minhas mãos e pés e fui hospitalizada por 2 dias devido ao risco de infecção. Fui colocada em 40mg de prednisona e acabei de sair dos esteroides após 4 meses. Meu DE também é causado por estresse e estou tentando encontrar alguns remédios mais naturais em vez de ter que tomar esteroides novamente (os efeitos colaterais foram terríveis). Estou usando creme de esteroides no momento, mas não parece estar fazendo muito. Você está totalmente certo, o estresse de ter eczema causa mais estresse, é um círculo vicioso!
Hi Mark - can sure relate as I too have this. On right palm and 2 fingers. Usually flares up every winter for last 10 years - for whatever reason flared up especially bad this past winter. Will not take oral steroids again (took them 12 years ago for a painful thyroid problem) however as you say there is a cost to that. Won't go into it here.
Twice this past winter my hand got infected and had to go on antibiotics. Last prescription about 4 weeks ago and seemed to help the DE a bit.
There is no cure only managing it. 2 things I am having some success with.
1. Emu oil (in Canada can purchase it at Jean Coutu pharmacy)
2. For the itch and to soften skin do Emu oil absorbs I put boiling water in a bowl then place affected hand over the bowl and place dish towel over hand and bowl and keep there for 15 min.
When itching is totally out of control I have put baking soda or apple cider vinegar in water as hot as I can stand it and soak hand. It'll sting a bit but far better than itching and it does take itch away for about 24 hours. However this doesn't help heal - just control itch.
I also wear a cotton glove most of the day and night. In last 4 weeks slowly started to see improvement. However I normally see improvement every summer as weather warms up and I am able to let the sun shine on my hands.
Sure wish I could live someplace warm all year round as I think this would be my answer for keeping this horrible problem at bay.
If I had $1 every time someone told me to just stop scratching I'd be rich - lol.
I am new in this site. Been on here for cataracts but thought I check here too for anyone else's suggestions for DE.
Hi Mark and co. I too was diagnosed with DE about 18 months ago and went to see a dermatologist privately who prescribed Prednisalone following a biopsy confirming eczema. Yes it worked but then when I stopped it after 12 weeks, I suffered big time on hands, legs and lips. I joined a Facebook group which promotes no steroid use as apparently it causes worsening eczema. I am now over a year without steroids and find that by protecting my hands ( e.g. avoiding cleaning products, wearing gloves when preparing veg etc) when they show signs of eczema, my flare ups are minimal. A recent spell in hospital which saw me on antibiotic drip also caused a huge flare up but that has now disappeared. I would say avoid steroids if you can and use emollient creams etc when a flare occurs.
Oi Mark!
Que bom ter conhecido alguém que sofreu da mesma dermatite que eu. Tive minha primeira experiência com DE quase dois anos atrás, mas tenho dermatite atópica por todo o corpo desde que nasci, mas nunca pensei em entrar em contato com a comunidade.
Minhas DE estavam por toda a palma das mãos e solas dos pés e talvez causaram uma dermatite atópica duradoura nas palmas das mãos e solas dos pés agora. Você está totalmente certo sobre o ciclo de estresse! Fiquei aterrorizado quando peguei DE pela primeira vez, pois não estava familiarizado com esse tipo de eczema e descobri que quanto mais coçava, mais a DE se espalhava e também engrossava a pele das palmas das mãos/solas dos pés, tornando difícil realizar tarefas diárias.
Tive o mesmo corticoide oral prescrito para mim e funcionou como um encanto, mas esse encanto durou apenas uma semana ou algo assim. O efeito colateral que recebi foi o ganho de peso da medicação, mas sou sortudo o suficiente para que esse seja o único efeito que teve. Os corticoides, além disso, foram muito de curto prazo, pois minha eczema estava em plena ebulição nas semanas seguintes.
Às vezes penso que vou viver minha vida adulta sofrendo com isso e isso me assusta. É financeiramente desgastante e emocionalmente está me afetando. Mas estou tentando encontrar remédios naturais, como o uso de vinagre de maçã e óleo de coco, além de babosa; espero que isso e uma mudança na dieta me ajudem! Por favor, me deseje sorte e espero que sua eczema também desapareça! Fique forte!
Hi There,
I've been suffering from pompholyx on the sole of my left foot for nearly 5 months now. It started as a very small intensely itchy patch & has now spread to an area which is at least 5 times bigger 😩 I've tried steroid cream, dermoil , e45, a fungal cream, coconut oil, & soaking my foot in a solution of potassium permanganate. Nothing works!! I have been under tremendous stress for some time & im suffering from depression. It is a vicious circle, the more I worry, my anxiety levels increase & then my pompholyx gets worse 😩 It is now affecting my daily life - it's painful to walk. I asked my gp for a referral to a dermatologist & she said they will laugh me out of there! (Her actual words) my question in return was how bad do I need to get?? Not being able to walk at all??!! She said i was in for the long haul, it will take along time to clear up! Great, more stress!! I feel for anyone who has this, it's not nice.
Hi - I suffer from atopic eczema on my hands. One thing that has helped me with the itch is to get a pan of boiling water with a teaspoon or two of sea salt in it then I place my hand just over the pan with a tea towel over it like a tent. Leave for minimum of 10 mins . Itch goes away and leaves my pores open to apply moisture. I have been using Emu oil. My eczema is worse in winter so I am going to keep doing this in the fall and hope this winter is better than last.
Hi
... I have had this problem for more than a year now. but now seem to be conquering it. The problem started with a fungal nail on one finger ... actually I think it developed because I used tea tree oil on my fungal nail.
To cut a very long story short, I have tried various antifungals, steroid cream and iodine cream, and hydrogen peroxide which conveniently turns fungal infection white, showing you where it is. All of them worked to an extent but in every case as soon as the application was stopped it came back, and sometimes worse. I managed to keep it under control but not to get rid of it. Then I heard a program on the radio about applying yoghurt to fungal infestions and tried that.
The result has been by far the best so far and I have had no real irritation for weeks. So, naturally enough, I have tried different kinds of yoghurt. It has to be live yoghurt ... using some that I found out had been pasteurised had a bad effect. And it is better if it is fresh. AND it is much better if it is non fat. Apply the yogurt to your hands as if you were washing them and let it dry before going to bed .... and after washing in the mornings and after washing your hands, like a hand cream. If you do it carefully it is not even noticeable, but it will leave a thin dry film on your skin.
Getting this kind of yoghurt isn't always easy and I tried buying some non--fat milk and innoculating it with live yoghurt and leaving overnight in a warm place. That worked really well and you can make up just a few 10s of mls at a time so it could be more convenient. You don't need much. One note of caution... to start with as the thickened skin around the nails dissolved (?) with the yoghurt application I got some open cracks. These healed fine but were sore for a few days. By the way, the fungal nails disapppeared and cured long before the rash disappeared. This is a treatment that requires regularity and persistence. A note of caution ... I am sure some people will be allergic to yoghurt, so if you are and get a bad reaction, stop! But this has worked really well for me and is a huge relief.
I am not quite
confident about weaning myself off the yoghurt completely yet but there is no immediate resurgence with leaving off treatment ... could this be because I have colonised my skin with yoghurt bacteria?
Try live non fat yoghurt rubbed in and allowed to dry. If it works fornyou as it did for me, let people know. I posted more detail below.
Hi --- I am replying to my own post. I have completely cleared the DH Eczema form one hand and very nearly from the other using non-fat live yogurt and applying as if it were a hand cream and allowing to dry. There were persistent patches on the tips of two fingers around the nail. I bought plastic finger stalls from Amazon and put live fat-free yogurt in them and applied them before going to bed. One week of this and the remaining hand is very close to free. Dampness overnight previously led to flare ups. Dampness with yogurt calms everything down. My problem is associated with fungal infection and yogurt + finger stall for fungal nail is incredibly effective -- I would be fascinated to know if other people who try the same approach get as good a result as I have. For any medical people I am a 63 year old male and made by living through science, hence observational and experimental approach to the problem.
Just a note to say -- try live fat free yogurt!
Thanks for your post. I have yet to try anything that works. Mine seems to glare up during cold months which we are pretty much headed into now. Only relief I have found from the itching is boiling water with sea salt in it and to hover hand over it with a towel over it to keep the steam. For whatever reason it takes the itch away but does not cure it. The only other thing that has brought moderate success is emu oil when it is in the drying stage.
Going to try live yogurt. Does plain Greek yogurt work? What brand do you use?
I put foderma serum on my hands at bedtime, put on cotton gloves to cover it.. It helps my skin stay hydrated for long time. I would recommend it to anyone with dry sensitive skin.
Oi, estava lendo sua resposta. Você nunca considerou comprar uma pequena lâmpada UV-B de grau médico? Você poderia usá-la duas vezes por semana (por exemplo, 5 minutos) para melhorar seu distúrbio de pele durante os meses de inverno.
Rthanks DanR - my mom has one of those lamps. I perhaps should look into that. I have had my bouts with skin cancer so I always weigh benefit to those lamps (or sun) with risk of more skin cancer.
This winter - just starting all is good for moment. Haven’t had an outbreak in months. Hoping this year (predicting milder temps) will be better. I keep with emu oil and now have gotten into essential oils and using those too. Fingers crossed (no pun intended) this will be a better winter. Headed to a sunny destination for a bit this year too so hopefully that helps. Saw my family doctor not long ago and she thinks the more severe flare ups due to menopause years too - affects the skin apparently. Also thinking this has something to do with my early onset of cataracts.