Hello
Today after 10 years of suffering with HS and not telling anyone, not even my partner) I went to the doctors to get some help.
I have never left the house or been in the house whilst others are here without wearing a jumper or cardigan, even in heatwaves.
I have no confidence in the bedroom side of things either. Lights of and as many clothes left on as possible. I wish I could of been a normal one!!!
Anyway I wanted to describe my HS story hoping maybe someone could share some advice and help understand whys/what's/ and hows....
10 years ago I had my first child, soon after this HS started along with bad tonsillitis (which I had never had before) tonsillitis lasted for four years then finally they let me have them removed.
Has anyone else had HS and tonsillitis start at the same time?
My son was born via c-section and I have always wondered if maybe something was triggered through the operation/recovery or even pregnancy?
I am a smoker, but never smoked through any of my pregnancies and never seen any difference with HS and not smoking.
Does any one find smoking makes any difference to HS?
Also my weight has been up and down for the last 10 years. From size 10 to 18 at worse. I haven't ever noticed my HS has been affected by my weight. Have you?
HS is restricting my life so much. Like swimming with my children, the clothes I can wear, my relationship with my partner.... How have you managed to deal with/ overcome these things?
Also has anyone noticed a flare up caused by food or shower gels etc.... I am willing to try anything and everything
What drugs worked best?
I am getting married next year and the thought of wearing a wedding dress because of HS is giving me nightmares.
I have never told or let ANYONE see me, I feel like I have some dirty condition or people may think it's an sti or contagious.
Haven't got a clue where to turn for help.
Today after plucking up the guts to go to the docs I got given this HS name and a website to read all about it along with two months of anti biotic
Where can I go from here?
Any advise please even if it could cure me for just my wedding day :''''(