there was a thread from 16 years ago about endrometriosis in the lung. Is there anyone else going through this.
Hi sophie15062!
Hope you are still reading the thread. I guess I have endometriosis in the lungs.
I am 29 y.o., woman. For the last 5 months I had 3 catamenial pneumothoraxes, although I have never experienced any endometriosis symptoms. I recently had one VATS surgery (pleural abrasion, no signs of endometriosis even with histochemistry, no fenestrations in the diaphragm, a couple of small bubbles found). But the surgery didn’t help as pneumothorax appeared again with the next menstruation. Now I am waiting for Endotest (saliva test) result and also I am going to make the MRI of the pelvic organs.
Doctors want (and don’t want at the same time) to do one more surgery: pleurodesis with talc. And also I guess that my gynecologist will prescribe we hormone therapy, which I am really afraid of because of its awful side effects and because I had thrombosis + lung embolism in the past when I took combined oral contraception.
How are you now?.. Hope you are fine.