yeah i ve feeling the same symptoms but i ve nt seen a doctor about it as i couldn't describe the symptoms. thanks it helped me to know about my symptoms
Hello,
I can relate to your balance issues. I became deaf about 13
years ago. I think it was due to Meniers, but no one confirmed. Back then, I was so dizzy and nauseous. Dizziness would
come and I would have to lie down and it would pass. Then other times it would last the entire day and I had to pick up kids from school. It was rough and I couldn't cook for them. I swear my son thought food came from windows.
Now, I'm still dizzy. When I walk it looks like I'm drunk, though I don't drink at all. I got a rollator. I suggest you try a rollator. It helps with stability. Maybe you can enjoy walks again =) Before the rollator I fell every day. And yes it made me feel like I was in my 70s. I am 45.
After feeling light headed/ dizzy for a while a few weeks ago I went to see my GP. It was then that they discovered I had very high blood pressure. The medication seems to have lowered it to normal levels now and although dizziness is usual associated with low blood pressure I had hoped that the dizziness would subside. I don't drink alcohol now and have not done so for some years but if someone were describe how I feel I would say like a bad hangover as I sometimes get headaches with it too.
My bloods came back normal but I go to see my GP this work and I suspect they will refer me to neurology. Having said that, since I have suffered with anxiety and depression for many years I think the the doctors have so far put it all down to that. If I want an MRI I am going to have to insist on it. Since General practitioners now manage thire own financial budget I always have it on my mind that they may miss something because sending someone for an MRI scan costs a lot of money.
One thing I have noticed is that when I do start to feel dizzy my hearing seems to be sensitive and sometimes everything seems loud. The doc checked my eras and said there wax build up but no infection. My condition is very debilitating and effects my work because I work as a church minister in media which involves working on audio production. This involves staring at a computer monitor and more often than not I get a kind of fuzzy,heaviness in my head that prevents me from getting any work done. I am afraid to walk too far as I don't feel totally secure on my feet and imagine that I would probably walk as though I am suffering the after effects of drinking alcohol form the night before, still slightly tipsy.
Hi
I started having the same symptems a few months ago and it has been suggetsed that I may have Labrinthitus or chronic vestibular neuronitis which is the same condition but without hearing loss, I have not hoiwever been referred for an MRI scan yet. The worst thing for me is the floaty feelling.This is making it a real struggle to focus on my job.
Would you mind sharing some details of how the condition started and what is involved in the treatment as I amy have this.
Barry are still high bp meds? If so what kind? Bp meds have lot of side effects dizziness and headaches, cough and nausea to name afew.
Dizziness and room spinning is how mine started. See an audiologist. I think I had Meniers disease. I went deaf.
Good you are going to neuro route too. They can help you focus and concentrate when at your computer.
Currently I can relate to to the "drunk" walk. I got a rollater to help with stability. Without it, I wobble all over the sidewalk or parking lot and fell daily. Now no more falls. You should try one.
Sincerely, Tro
Hi Michele
My name is Clayton. It's so good to read that other people are experiencing what I life daily( horrible feeling).
Is it possible to have your email address as I would like to get more information from you.
Kind regards
Clayton
Adding my bit of understanding for cases like mine. Since symptoms started after working in a neck-stressing position (putting and screwing stuff in a 3-feet high rack so I had to bend all the time) and the second attack after a head-down sleep that stressed my neck even more (and longer, for the whole night) I now understand that this somehow caused a pressure at the arteries that feed the back side of the brain (Cerebellum which is responsible for the stability as a general coordinator) like the trauma doctor suggested. Of course the MRI could not get his parameter (blood flow) since I guess it cannot (it's static) and my neck was not stressed at the time of the scan. These neck positions seem to trigger a deffective blood supply that somehow "damages" a little the Cerebellum. A bad night seep that didn't let the area rest has the same effect. Stressing situations also or when I lift the grocery bags! I am now going through a set of physiotherapy sessions in order to strengthen my neck mussles and I also actively retrain my brain. I excercise all the head tilting movements plus I walk and stop abruptly, walking and looking at a 90 degree angle right or left, standing up with my back against the wall as I spin having constant contact with the wall, move my head trying to focus on the same spot for every turn etc. I have to admit that the levels of dizziness have some improvement but I am not there yet. Next (and last) try with doctors will be to check blood supply, if there is such a test. Best wishes for all who suffer from situations like this.
Hi I would suggest get a different ENT and ask specifically for them to test for Meniers disease. They have meds u can take so you don't lose your hearing too like I did. It started off with room spinning and the vomiting. I could not cook for my kids. In the end I went deaf.
Today, I'm still imbalanced and find a rollater helpful (vestibular issues) if I don't have my rollater I fall frequently if the ground is uneven or I bend over to pick up a stick or leaf. That is when I lose my balance. I also can't do stairs. Sncerely, tro
Hi . I know it was a while ago this was posted but I was wondering how you are getting on now. I have been suffering now for 8 months ... i am at my witts end. No one really knows they just say it will go away....
Hello thanos,
My name is Benedetta and I've been living from the same condition for the last 2 months. It has been affecting my life so badly, I never want to go out and feel like nobody understands me. My symptoms get worse when I am walking, feels like i am walking on an unsteady floor and I feel constatly unbalanced and feel a pressure pushing me down. The only way i do not feel it is going on the bycicle and swimming.. but besides that i frel it even sitting and sometimes laying down. It all started when I was at work in my office, I used to work 9 hours a day in fron of a pc non stop and one day I got a extremely stiff neck and i could not move it for two days then the pain got better but the vertigo stayed and progressively got worse. I had my ears checked and there was an infection but now there is nothing wrong with my ears anymore. Will have an MRI in this week. I am so desperate cause the antivertigo medecines are not working and I have to continue with my life .. I am so scared. I think there was a trauma on my neck after that day and it changed everything since that day. I think that the there has to be a connection with my neck as everythig started from that. I feel that your answer was so similair to mine and I would like to know how you think in this case should improve the situation? Should I start physiotherapy and see how it goes?
I have been told I have labrinthitus but without wishing to worry anyone on hear I believe that the same symptoms care also related to early stages of MS. This is why it worries me that my GP has not sent me for an MRI scan.
He tells me that this condition can last days, weeks and even years but I have had this for around 8 weeks now and don't understand why I am not being sent for tests. I would suspect that an MRI scan it is quite expensive and since I think it is paid for by the medial practice I do worry that their budget is being put before my health.
Hi just wanted to let you know I am suffering this dizzy spells feeling gonna faint walking on thin air only when I'm standing on my feet I actually am ok when I'm laying down only I can't even sit up with out going dizzy and feeling I'm going to pass out it all started Feb 2017 and it came out of know we're and I haven't had my life back ever sense I have to do shopping on line ask people to cook for me and my life as been taken over I've had medication after medication and all they keep telling me it's vertigo it's anxiety it's not anxiety I am not worried only thing I'm worrying about is this illness and I cannot get answers had bloods I have been referred to ENT and they saying nothing doctors are saying I have crystals in my ears but I cannot get my life back until they address this situation I wouldn't wish this on anyone I cannot even drive my car anywhere it's Terrible
Hi Dee,
It sounds to me like your problem has to do with the vestibular part of your brain malfuncting. I don't think an ENT will help unless you are vomiting too.
I spend tons of time in bed as well. I cannot drive. This sucks as I am only 45. I can't bring my chair with wheels in my house. So, I can and have lost my balace on flat surfaces like the kitchen or bathroom. But for walking on sidewalks and in store parking lots it has proven invaluable. My rollater helps my stability. I don't go shopping or to restaurants without it.
Sincerely, Tro
It's like only when I stand on my feet when I'm laying down it's fine when I'm sitting up I start feeling funny and no I can't drive and then I start panicking due to not knowing what's going on with me it's horrible I'm also 45 years old to it sucks ive actually ordered the oil called di-vertigo you should look it up its cost me £30 but everyone swears by this so I've brought some and awaiting delivery hopefully this helps me thru the day they say it takes effect with in 5 min so let's see if that's true so really no one can help me with this then it's something you have to self medicate and get on with life
Dee,
Wow I've never heard of this oil. Let me know if it helps you. I do suggest you get a rollater to help when you are up and about.
Tro
HI Dee
What is the diagnoses you have been given?. I too find it very debilitating. I can walk around the house okay but not for long without having to sit. My cognitive skills are effected too as I have noticed that I have to think about every little thing I do before I do it. It is like when you are learning to drive and everything you do is stilted and is not natural to you but then over time you become one with the car and just do things automatically.
I no longer feel one with my body and so can no longer automatically shift from one task to another. My job can be complex, involves a lot of multi tasking and requires careful planning and focus. I can do most of my work from home but it is just impossible with this thing. I have been unable to work for about two months since this thing kicked in fact some days just peeling an orenge can be a complicated task for me.
My GP tells me I have labyrinthitus but I am not so sure. The worst part of this for me is the uncertainty because there are so many neurological conditions that have the same symptoms. This is why it is difficult for doctors to properly diagnose it even with MRI scans. What can make things worse is the feeling that you are alone. I am sorry you are suffering but I thank you and the other guys for sharing because it is good to know we are not alone. Please keep in touch so I can hear how things are going.
All the best
Barry
Hi Barry I haven't propley been diagnosedas they keep telling me it's vertigo and libriaithis and tbh my ears are fine they don't hurt keep telling me I have a infection in left ear and waxy in the other but I've had several meds and it's not helping I can't even stand and cook a slice of toast without having to run back to the sofa to find my comfort so it calms down again the only way this is controlled is laying down Barry it's the most herrondouse feeling I've ever experienced
Hi Dee
I have also been told that my condition is due to Labyrinthitis too and my heart goes out you you, it really does. Obversely I won't say anything that would depute what your doctors say in regard to an ear infection but I understand your frustration. It is unusual to have an ear infection without any pain. That being said, it can manifest itself in headaches. This is certainly my experience anyway but at any rate, difficulty with hearing is as you may know typical of labyrinthitis
When you start googling and read that it should clear up in a few weeks it can be quite scary because it is easy to imagine that you in fact have something else far more sinister. This is particularly when the symptoms are as bad as you describe. It is also easy to lose confidence in your GP but the condition is notoriously difficult to diagnose and treat What has helped me however is not so much articles that provide a medical judgement on the condition.
Some articles on the subject have the effect of making you feel even more anxious because you quickly learn that the condition is diverse in its effects, in other words an unknown quantity. No, what has helped me is rather getting a comprehensive perspective of it from those who have experienced it. The website below is really encouraging and informative. It has helped in that regard and if you go through the pages my hope is that you will find some comfort in it too. Stay strong Dee, I am rooting for you. http://www.labyrinthitis.org.uk/diagnosis.htm
Hi Debbie, I want to thank you, I've been doing some exercises that I found on YouTube about vestibular rehabilitation and I feel much better now, before I felt dizzy and off balance every day, now I only feel imbalance couple of times at day.
God bless you