excruciating daily headache

Brain and nerves
1

I was diagnosed with CRPS last Novemeber after breaking all the bones in my foot.  The foot is getting better at a glacial rate, but more rescently I am experiencing debilitating headaches on a daily basis that respond to nothing.  I am at my wits end.  It feels like a combination migraine/tension headache accompanied with dizziness and nausea.

Anyone else experiencing these headaches?  Know of anything that helps?  I'm on gabapetin and elavil, but neither helps.  I literally can't do anything!  work, think, read, go on the computer, watch tv, exercise.  It's impossible to deal wiht this.  Open to suggestions!

Thanks,

Violet

2

Have you asked your doctor if you can come off the pills you are taking ?Look on the advice sheet enclosed with them ,maybe one of them or a combination of both is causing your headaches .

3

I can't come off the pills, because they are the only thing keeping my foot functional.  We've tried lots of stuff and the gabapentin and elavil keep my foot from turning into a hot poker or curling up into a frozen nut.

Ever since being diagnosed with CRPS, which originated in my foot, I have had really bad spasming all over my body:  hands, low back. neck, face...and the headaches are just another area, but they are by far the most painful.

thanks for your reply.

4

Oh I am so sorry for you .

5

Hi there, i also have CRPs, left lower leg, diagnosed 2years ago. Shortly after the operation that caused the CRPS I woke unable to see properly and with excruciating headaches, mostly on the righthand side.  I have been under a local neurologist but recently he decided i should be referred to a specialist headache clinic, i am going to have to travel, but he referred me to Stoke. Apparently they are very good. It is quite a wait, appointment is in October, but i am hoping they may have some answers! All i can do is try to reassure you as I have had headaches since 2013 and i am still here! So reassuring that nothing too sinister is going on, although extremely debilatating on the very bad days. I sympathise because nothing does work. I am on oramorph for my CRPS pain and that helps to knock me out sometimes! I have had a brain scan which revealed nothing but does help to reassure you.

i wish you all the best.

6

Perhaps Imitrex. It was a lifesaver for me.