Hi all,
I haven’t posted for a while as I’ve been doing pretty well, but I do come back and read the new posts sometimes. I’m almost 9 months into my bout with mono (glandular fever, for any fellow Australians out there), and generally I’ve been doing okay. I still get heaps of joint pain and flare ups of muscle twitching/ear ringing during my period, but nothing anywhere near the horror show of those first few months.
I’m posting today though as something new has me worried. A persistent twitch of one eyelid - which seems to get worse when I’m tired, but it’s been there for a couple of weeks. Logic makes me think it’s just the ebv showing up in a new way, which it’s done countless times over the last 9 months. But I wanted to ask - has anyone else experienced eyelid twitches/tics? I have dry eye too, so it might have something to do with allergies 
Thanks,
Emma
i wish i only had eye lid twitching. Ive had body wide twitching, legs, arms, lip, eye, foot. EBV has found a way to aggravate my nerves. Ive had nervous symptoms and ive had several EMG and Nerve studies. EBV really sucks. Ive had twitching for 10 months and EBV has set my nervous system into over drive. Vitamin D, and some magnesium supps have helped.
have you been examined for Dystonia ? x
Im 33, this all started when i got EBV. I definitelt dont have that. Ive been seeing a top neuor muscular specialist in my city now for almost a year. I watched some videos of this and i dont have that. Im sure if i did my neuro would have told me by now.
I'm sorry to hear that :( Isn't this illness awful? It took over my nervous system too. Every time I think I've got it under control it rears its ugly head again.
how are you feeling now emma?
Okay - the eye twitch eventually resolved :) Took a while though. I'm nearly one year in so i'm hoping I stop getting these new symptoms popping up as often. Who knows!
lol i meant how are you feeling in general ? Did you ever get malaise(sick feeling)
oh man you and I seem to be in the same boat. im on month 9 of having mono but finally started to feel better about 3 months ago in march. but now ive had the constant twitching all over which has me worried all over again! Just when i thought it was over too..
My left eye in particular has been twitching non stop these past 4 days. Glad to hear your twitching has gotten better though. gives me hope!
hey eric . what was your symptom progression? im on month 4. did you have a low grade fever and felt fluish?
i had a boatload of symptoms that persisted through 10 months (aka present day). in the beginning it was low grade fever (fluish for sure) weight loss, chills, shakiness, really bad nausea, fatigue (which lasted 5 months) migraines. now its only the twitching which has started to go away a litte so im hoping this is the last of it. Hang in there! it does seem like an eternity but you will feel better!
did this go away? i had this 10 years ago all over body plus both eyes and now its back w a vengeance, going on 2 months full body teitching and weird buzzing. how are you doing now? i just went to neuro foe dull work uo and i have all eeg emg etc coming. please lmk