I failed the twoc again yesterday, I was able to pass urine which is an improvement from passing none at least - but I could only go in very small amounts and very stop start. I had a constant urge to pee.
they sent me home to self catheterise after doing it successfully before leaving hospital. I tried to self cath all night but couldn't get it in and it was very painful. I spent most of the night in agony on the toilet desperately trying to go with very small amounts coming and pain in my urethra like a UTI. I managed to self cath once first thing but 40 mins later had desperate urge to go again which i know shouldn't happen that soon if I'm empty. I was also freezing cold and felt generally unwell.
so I've been put back on full catheter and been given anti bis for for a suspected UTI. My catheter is draining full of sediment? Does that mean UTI?
im getting really anxious that in a weeks time I'm going to be stuck in the same situation. Can anybody reassure me? Has anybody been stuck forever with a catheter?!
what is the reason, they said its psychological and in which case what can I do to empty properly?
thanks if you're still reading!
Ellie, I'm so sorry you're having such a dreadful time! I've not heard of this happening before so am so sorry it's happening to you. I don't think you'll be stuck with a catheter permanently. If they're saying it's psychological, can't they give you something to relax you (assuming it's tension, but maybe it isn't!). Sediment doesn't sound normal and that's a physical thing, not psychological, but I'm not sure why there is sediment. Maybe someone else might know more about this? I hope you're better soon though because it doesn't sound much fun!
If you've got sediment in your urine chances are it's a UTI but I think a lot of the pain is probably bruising to your urethra. This is going to take time and it's not unusual and I don't think it's psychological at all.
Hi
I can fully understand how you feel, I failed my twoc test last Friday and Saturday. They sent me home with a flip/flow and I went back on Tuesday this week and like you really felt I was bursting to go and only managed a dribble. So I was re catheterised and sent home with the flip/flow. On Wednesday I was convinced I had a uti and contacted my gp who asked for a sample. Which was then sent to my local hospital. But no results until Friday. I am due to go back to the ward again tomorrow. To try again!!
I know just how horrible you feel but hang on in there. I hope we both get better quickly xx
Oh Ellie, you are living the nightmare that we all dread. I feel for you very much indeed. I'm sorry that this is happening to you.
l do hope that you are on the correct antibiotic and that the UTI will very soon cleared up.
Sometimes when 'they' say a situation is psychological that means that 'they' don't know . . . a cop out. Can you get another opinion.
I send you my warmest good wishes for a resolution before too long. R
Thanks Chris, no they didn't give me anything but my husband gave me a diazepam in the night to try and calm me down!
they said i might be more relaxed and find it easier to go at home hence the self cath but it didn't quite work out.
Thank you Matron that's so reassuring. And I agree my urethra is really bruised and irritated, I think I've had about 7 different cathetars in and out in the past week.
Pearl I'm so sorry you are going through this too, it's awful isn't it. Please let me know how you get on tomorrow, I hope it's sorted. x
did they give you an explanation why you were having difficulty? How long ago and what op did you have?
Hey thanks for your kind words. I'm hoping by tomorrow the anti-bis kick in.
yes I guess they probably don't know exactly why.
Hope you are recovering well.
I've seen what Matron said Ellie, and that it doesn't sound psychological at all, but of course you'd be in a panic when you couldn't wee in the night. The only time I've not been able to wee was the first two attempts at supporting prolapse pessaries after my repair failed and that few moments of wanting to wee but not being able to really frightened me. Fortunately I could go straight back to the gynie's office and have them taken straight out, but I can imagine what it would be like at home overnight! When I could wee after the third pessary was fitted I felt like yelling out 'Eurika!'. But it's a horrible feeling when you want to but can't! I imagine it's not that easy to self catheterise. I can't imagine being able to do it. But you'll get there. I'm sure you'll soon be putting all this behind you, so hang on in there and just give it a bit more time - this is just a hitch, I'm sure.
With that many catheters ellie it's hardly surprising that you're in so much pain and despite how hygienic you are it's extremely hard to prevent an infection.
Yes you are right it's so hideous when you are busting to go and can't, it's almost like pins and needles. I can't wait until it's all over and I'm back to normal, you really appreciate your health when you don't have it.
When I just read you'd had SEVEN over the last week .... phew - my heart goes out to you!
I had my operation last thursday 19/11/15. That was a walk in the park compared to this, I really do not know what to expect tomorrow. My operation was for prolapse bladder/bowel and mesh support. I really do not know how I would have coped without my husbands support. I hope they sort you out quickly.
Do you think keeping this one in for a week will give the urethra a chance to recover?
Absolutely ellie. It will give your urethra time to heal and it can do that in a week.
Great! I'm going to relax and stop stressing now. Thank you x
We are on the same track except I had mine the day before with no mesh but also perineum repair. I agree this has been the worse bit. I had got to a point where I wasn't in pain from the op until I had this UTI cath problem. Are you in the States? Good luck tomorrow.
No in the UK Plymouth. Thank you for the good luck. I think I am going to need it. I really do not want to come home with another catheter.