Hi again
Does anyone else have the symptom of feeling faint with their CFS ? And have you actually fainting ?
I constantly have a faint type feeling and I’m worried one day I’m going to faint .
Any tips to help with this symptom ?
Many thanks again
Cath
Hi, I have had this feeling. Almost like I start feeling hot all over and feel like I am going to faint. I have never fainted, just that weird scary feeling. It lasted a few months and then all of a sudden it was gone. No tips on how to deal with it because I was trying everything and nothing helped.
Thanks for your reply
I get the faint feeling most days but some days are more overwhelming than others .
Just curious whether anyone’s actually fainted rather than just feeling faint .
I hope you feel better soon .
Hi Cath,
Feel faint constantly but don't believe I've fainted.
Tips: do less as it's your system telling you you are doing or have done too much.
Beverley
I’m in the middle of moving houses so it’s really hard as I can’t rest as much as I’d like 
Hoping for a better day tomorrow
This is one of my main symptoms. I'm so terrified of fainting that I have never *actually* fainted in my life - I can get really close, like losing vision, hearing, going numb etc but I will battle against it as hard as I can because I'm so scared of losing control. I thrash my arms and legs, dig my nails into my skin etc to try and stay conscious. Not suggesting you do this as I don't think it's healthy! But it's why I've never actually fainted.
It seems like low blood pressure is common with CFS. Has your doctor checked this? Staying hydrated will help, as will eating salty things. Sometimes sugar helps too but if you have too much it can actually make things worse.
As another commenter in this thread says, feeling faint is your body's way of trying to shut down so it can get some rest, but you can't always do that unfortunately. I know how hard it is moving house with CFS. I hope you can catch up on lots of rest once it's all over 
I am dizzy most of the time and if i go out and walk somewhere it gets worse and my vision gets blured. Never fainted though.
I keep trying to tell myself over and over again I won’t faint even though it feels like I’m about to collapse . It gives me major anxiety if I’m outside or driving . I really don’t feel good today. Can barely stand up and had to eat laying down
I’ve had my blood pressure taken a few times over the past 5 months and it always comes back as normal .
I try and eat if I feel faint . Although it doesn’t really help I’ve tried to convince myself it does just so I feel a bit better about the situation .
I’ll try and rest as much as I can for the rest of the day now
Are you on any medication at the moment ??
Not for dizzyness no, I went to my doctor about it, she gave me a steroid nasal spray. That didnt help, so had blood tests now i am waiting for her to get me into an ME clinic. Over 3 years with the illness and olnly now i get sent to an ME clinic. I asked my local pharmacy about meds for dizzyness and they recomended something but i never took it.
Its still may be dysautonomia. My blood pressure isnt way off but im taking midodrine for POTS anyway. Did you teat your blood pressure when lying then standing? If it fluctuates then that may be the reason. I dont have the dizziness too bad. Only when bending over then back up sometimes. My main symptom is heart pain if i stand too long or do too much so i follow the remedies for POTS and it helps! High salt, tight leggings or hose, leg lifts when laying down. I elevate my leg or legs even when standing , lol, I'll raise it up on the counter while fixing food. It helps! Good luck!
I found betahistine helped with dizziness and feeling faint, but the doc said i shouldn't take it for more than a month because it would lose its effectiveness. I've had CFS for 30 years to different degrees and i've tried most things during that time! I think Evening Primrose Oil is helping me so i've kept on taking that.
I already take primrose oil for another issue but I can’t see any difference taking it for my CFS symptoms .
I’m really depressed as I feel so terrible everyday I don’t know how I’m gonna cope as this is a long term Illness . My life has been turned upside down and I don’t know who I am anymore
I get quite a lot of chest pain too . But I haven’t had my bp tested from sitting to standing though .
I recently had a 24 heart monitor fitted and currently waiting for the results from that .
Hi Cath,
Feeling faint is my number one symptom as is visual disturbances (blurred, tunnel vision, sensitivity to light, trouble focusing). When feeling faint I make sure I've eaten enough food, especially carbohydrates. I have a history of eating disorders so eating enough and keeping my blood sugar stable is a challenge as my hunger signals appear to be suppressed. I also check to see if I've been hydrating myself enough. I don't advise drinking a huge amount of water though as it can make things worse in my experience. A few years ago I had an awful time feeling dizzy and blacking out every time I stood up, and feeling faint daily. I remember a bit of sea salt added to my water helped.
To be honest I don't think it's so simple as keeping hydrated and stabling blood sugar. Any hidden infections or illness can cause these symptoms, as can severe anxiety, which I also have from time to time.
Wish you the best and I hope you find some answers soon!
I had a hard time accepting the diagnosis POTS becuz the usual symptoms werent that bad. The difference in my bps werent terrible. My bp always runs a little low like 110ish. But i do get the tachycardia if i stand too long. I have to lay down alot. My echocardiograms were normal as i thought for sure the heart pain was from the Ebv or cfs. So i thru in the towel and started taking the midodrine (still a lower dose of 5mgs opposed to 10). Whenever my heart start to hurt i do leg lifts as they say blood pools in your thighs and abdomen, and it really does help.
Hi
That would make sense about the salt because too much water can leave your sodium levels low so always good to make sure you have some salt.
Perhaps you need to get your depression treated. I have had many phases of depression so i do know how horrible it is and how it makes everything feel 100 times worse. I'm on 2 different antidepressants and that's helped with the depression. CFS isn't always long term, i guess i've just been unlucky but i've had better phases. I worked part-time for 6 years, but i'm retired now.
Hi Cath. I suffer with feeling faint which makes my anxiety worsen. Sorry I have no solution but rest rest rest.
Hi Cath.
Sympathies. Fainting or feeling faint, alas, is all too common with M.E. I fainted at a urinal once in Germany and collapsed backwards my head spinning. I hit the floor and came to with vague distant sounds of worried foreign blokes looking down on me. Another time on a plane I had to spend the entire journey on the floor in the recovery position. Part of the package I'm afraid - though embarrassing and unpleasant.
Postural hypotension is a common CFS symptom - you get up from a bed or chair, your blood pressure doesn't adapt, or drops suddenly, and you feel faint, or actually do faint. That's what happened to me in the urinal I think.
Many of us report constant nausea, which can be drug-associated, stomach-associated or neurological in origin. Its important to work out the cause. If its drugs then maybe your doc change provide an alternative without the side-effects. If its neurological there is nothing you can do, but at least you know its just your CFS playing tricks on you, nothing dangerous. If it's due to chronic excess stomach acid or allergies to certain foods it can cause long term damage like ulcers and if untreated for many years can lead to cancer. I am on Omeprazole for the rest of my life due to reflux oesophagitis. I also had a duodenal ulcer. However, the good side to excess acid as a cause of nausea is that it can at least be treated.
Prayers,
Philip
Labyrinthitis is a condition where a viral infection - like the common cold - affects the inner ear. You feel like you are falling head over heels in mid air whenever you turn or c**k your head quickly. You can get tablets for that from your doc, and it goes away when the infection clears up.