I don't even know where to start other than saying I'm glad I found this site. The level of support from fellow members is very reassuring.
I'm a 37yr old male, not in the best shape but far from out of shape. I'm active, I go to the gym, I race dirt bikes, hike, and you normal every day guy. Since my 20's I've had a left knee that has steadily been getting worse. Last year diagnosed as Patella Pain Syndrome. In 2014 I had a bad skydiving landing (tandem) and the instructor made us land on our butts, needless to say my tailbone took the weight of both of us and I spent a year going to a chiropractor for lower pack pain and neck pain. I stopped going in fall '15. In Oct 2015 I did a very rough dirt bike race which left me beat up, my hands were buzzing, sore back and wrists. This wasn't abnormal and I know I'm getting older so I didn't think anything of it however over a month later my right wrist was still sore and then at night I started waking up with my hands and feet feeling numbish (that feeling as your limb is falling asleep but not fully pins and needs asleep). I never had the pins and needles feeling, just the numbing type feeling. It extended to my mid forearms and upper calves. I saw my PCP who told me it was probably stress related (panic or anxiety disorder) and gave me some xanax. I hate taking pills so I never took them and instead followed up with a neurologist.
My neuro did the in office quick evaluation and said it probably wasn't ALS or MS because the symtoms would disappearing and reoccuring and sure enough around Dec, the symptoms disappeared while I was gone on vacation. In January I resumed work and the numbing feeling returned in my right food and right hand. Again, no pins and needles but a numbing feeling. When it would get really bad the tips of my pinky and second last finger would go cold and really hurt. I was also experiencing concentration issues. This lasted about 6 weeks til mid-Feb when it went away. About a month later it occurred again in early March. I got tired of my PCP saying it was anxiety so I took the xanax and while I felt relaxed and it help with the concentration issues it did nothing for the tingling/numbing feeling.
Mid march the numbing stopped altogether however what's persisted is a feeling of my calves and forearms being tight and lightly cramped. When I wake up in the morning I feel like my calves ran a marathon the night before and they do ease up as I stretch and move thru the day. My calves fatigue very quickly especially on stairs. and... I continue to have twitching in my calves (this has been going on since Oct.). My forearms.... similar. Tight fatigued feeling which makes for stiff hands and sometimes weak hands gripping things, like weights at the gym.
As of May (today), I still don't get the numbing feelings however I still get the tight fatigued feeling in my calves and forearms. The twitching continues 24/7 and now includes the arches of my feet. This twitching is very light and hard to see but it is observable. I can feel it in the muscle. Lately in the evenings when I finally sit down after a long day I've started feeling my quad muscles near the connection to the knee spasm very hard 3-4 times. This has been occuring daily and lately in the last 2-3 days I get this feeling in my right thigh of a very fast pulsation (feels very deep in the muscle) in my right thigh side (it can't be seen and only felt).
I still have concententraion issues. My right eye has apparently started to get lazy since Oct ('15) so I'm having issues focusing and glasses won't fix it. I'm tired all the time even though I still force myself to the gym to lift weights and cardio daily. But I have to say its really starting to weigh down on my. I try to ignore it and just go on with my every day life becuase I'm tired of my Dr (GP) telling me he can't find anything wrong with me and constantly repeats anxiety/stress. I've dealt with stress all my life I know this isnt' stress related. I just don't know what to do or where to go to come up with answers. LOL why can't the healt system be like on TV where you whizz in, blab your symptoms and an hour later they have a cure.
Anyone else experience anything like this?
Parece una situación compleja con, sin duda, varias causas. Dos cosas se me ocurrieron con respecto a partes de ella, ambas de mi experiencia pasada. Si aún no lo has hecho, podrías querer revisar estas. Síndrome de Raynaud con respecto a la sensación en tus dedos. Anemia por deficiencia de hierro con respecto a la insensibilidad (también tengo una sensación muy, muy leve y fina de hormigueo). Ambos podrían explicar potencialmente algunos de tus otros síntomas también. ¡Mucha suerte!
Hi
I am 43 year old woman and I have the same exact symptoms you are having!
I did all Bloodwork test for RA ,lupus Lyme , tried prednisone but did not work, now I have. To see neurologist to. I have been looking online and I have found that my symptoms could be fibromyalgia even though the doctor doesn't think so or some kind of myosotis or myopathy. I am really at at a loss on what's going on. I do feel muscle weakness and fatigue easily, I have never felt this way before and it started to affect my life! I have had symptoms for 2 1/2 months now.
Chris,
Espero que aún estés revisando este hilo/pregunta y que estés bien.
Muchos de los síntomas que describes son consistentes con el Síndrome del Desfiladero Torácico (TOS).
Hay 3 tipos de TOS: TOS arterial, TOS venosa (¿?) y lo que tú podrías tener: "TOS neurogénico" (basado en los síntomas que leí).
Si no has visto a un EXCELENTE reumatólogo, yo lo haría y les pediría que realicen las pruebas necesarias para diagnosticarlo.
Cuando dijiste que tus brazos estaban adormecidos, pero NO con hormigueo, eso no es inusual con el TOS neurogénico.
Desde tu pecho superior, EN CADA LADO, justo dentro de tu hombro, tienes la arteria subclavia, una vena y 3 nervios significativos. Estos pasan por un DESFILADERO TRIANGULAR hacia tus brazos. Si esa zona de salida es pequeña (comprometida), obtienes síntomas muy extraños, muchos de los cuales describiste.
¡Rezando por tu salud, amigo!
-Greg
Después de leer más tu publicación, los síntomas en tus piernas no encajarían con TOS, pero dudo que sea estrés. Tienes un problema sistémico (en las cuatro extremidades). Tengo síntomas similares en mis piernas, pero eso se debe a una lesión en la columna.
Si no has visto a un especialista, específicamente un reumatólogo de primera (como el Dr. House de la serie MD), creo que esa sería la persona para diagnosticar este problema. Espero que puedas conectarte con un médico que no use la palabra "probablemente". Eso me indica que está adivinando y no está equipado con el conocimiento necesario para diagnosticar tu problema.
Mucha suerte, Greg
¿Has verificado tus niveles de Magnesio mediante un laboratorio? ¿Has probado suplementar con Magnesio? ¿Alguna vez te has hecho un panel de micronutrientes para probar tus niveles? Yo me aseguraría de verificar eso y asegurarme de tener suficiente Magnesio. Algunos centros incluso hacen una IV de Magnesio si tus análisis muestran que tienes deficiencia. SpectraCell tiene un buen panel de micronutrientes. Vale la pena descartar una deficiencia de Magnesio. Puede jugar un papel en tus síntomas. Quizás no. Es algo que podrías explorar y considerar, sin embargo. ¡Buena suerte! Espero que encuentres respuestas y alivio.
Tengo que hacer una pregunta muy sencilla, ¿te has hecho una resonancia magnética?
Me sorprende que tu neurólogo no te haya derivado para un escáner.
Hola Lidia, ¿alguna vez te diagnosticaron?
Hola,
¿Qué fue eso? Tengo el mismo problema, es decir, el mismo extraño entumecimiento en los antebrazos y las pantorrillas. Incluso la misma pausa durante las vacaciones. Gracias de antemano por su ayuda
Espero que alguien esté leyendo esto. He tenido un aumento en la fatiga muscular después de muy poco uso. Brazos y piernas. Si subo escaleras, tengo que detenerme en la parte superior debido a la quemazón. Mi antebrazo se cansa solo de escribir esto en mi teléfono. He tenido resonancia magnética, ABI, EMG, análisis de sangre. Todo fue normal excepto que di positivo para EBV en el pasado. Mi neurólogo dice que mi médico de cabecera debería derivarme a enfermedades infecciosas. No tiene otras respuestas más que el EBV crónico puede causar síntomas similares al lupus y fatiga crónica. Mis análisis de EBV solo muestran una infección pasada, pero no una infección actual o reactivada. Constantemente tengo calambres musculares. Mi mentón durante una semana, ahora debajo de mi ojo izquierdo durante dos semanas. Y varios otros lugares por todo el cuerpo. Soy especialmente sensible a la luz y los olores. Intenté caminar desde mi auto en un estacionamiento hasta un evento que estaba a menos de quizás 50 yardas de distancia… Tuve que detenerme a descansar las piernas. ES TERRIBLE. Estaba segura de que era circulación por ser una exfumadora, pero el ABI fue totalmente normal. Soy enfermera y no puedo encontrar respuestas 
Por cierto, tengo 38 años y soy mujer. No tengo hijos y mido 1,57 m y peso 59 kg, así que no estoy enferma.
Hi CHRIS My experience with your same symptoms were related to vitamin b12 deficiency The symptoms became worse in a matter of months after apparently injuring my back while dancing zumba But because I was b12 deficient I could not heal and got really bad pins and needles, numbness, tiredness, muscle weakness, depression, anxiety an burning of my back and feet what I have is called subacute degeneration of the spinal cord unfortunately I was not diagnosed or tested until too late I have neurological damage not much , but enough to keep me oof the gym and dance classes Have your b12 tested also vit D They should be in upper ranges I supplement everyday get well!
I have always had a LOT of strength and would always conquer heavy tasks that others gave up on (I’m stubborn). I did not go to a gym, but gave my muscles a good workout with my daily tasks that needed strength. I was an armed security officer for over ten years with vigorous physical training, which I always had to counter the physical restraints/holds by my fellow officers (I had strength). It wasn’t until I attended by sixth-month gun shoot for work that I found myself unable to get up from a kneeling position after one of our drills. I could not believe that I had no strength in my legs to get up and we had to get up on assisted and after four tries at the gun range I lost my job. I noticed for a couple of years before that I was having difficulty going up simple stairs or walking very far without getting winded. I lost the strength in my hands my arms my legs and I also have problems with my feet and ankles where when I am down on my hands and knees and I’m trying to get up while holding onto a table my feet and ankles cannot bend so I actually have to drag 1 foot up at a time and a staff position. last summer I had a decompression done on my lower spine because I had so much pain in my spine and we figured that there was a pinched nerve which there was but that had nothing to do with any of my loss of muscle strength . in 2001 I was in a car accident and had one of the worst cases of whiplash . Within 10 years from that accident I started having symptoms occurring all of a sudden… my bladder had gotten week I had severe pain burning stabbing in the bottoms of my feet, I had palpitations Amongst other things. I went to two reputable clinics and what they both came up with his peripheral neuropathy in my feet and was told it would never get better it would only get worse . they gave me a whole slew of meds where I gained over 50 pounds but I knew this wasn’t the right diagnosis, at least the complete diagnosis ( because I do feel that I have a little bit of propel neuropathy in my toes because I have a little numbness there but for what I went there for with the extreme pain in my feet I knew it couldn’t be the full diagnosis and dad I’m bleeding into right now )… my brother is an orthopedic surgeon and he just happened to come across a guy on one of those flights that told me to seek out an upper cervical specialist, also known as a NUCCA specialist . I found out in my extensive search that these type of chiropractors are very difficult to find because there is only six in the state that I live in . The best I can describe it is an energy vibration and I’m not even sure if that is correct but they do not crack you. if you look it up on YouTube the word NUCCA you will see a video of a man standing over one of his patients and he has a diagram of the upper cervical and head and you’ll see what they do . I kind of got into the NUCCA thing and got off base for what is going on with me but I wanted to start from day one when all my symptoms started and thought that mentioning this might trigger something for others in this forum .as for the pain in my feet and my palpitations, One adjustment if you would call it cured every sense of pain in my feet and I was able to walk again and my palpitations left. and every time after if I ever started to have a little bit of foot pain or palpitations I would go back again for that $60 adjustment and within a week both of those will be gone . now back onto my current symptoms and that is extreme loss of strength in the upper and lower extremities , severe nodding of the muscles in my shoulders and neck , stiffness and inability to use my ankles and feet especially when trying to get up off the floor . I blamed all of this on stress while my house is being built because the builders were so difficult to work with and I really get stressed out , but I don’t think that can be the reason that I suddenly, without any real warning or me noticing , That I lost my strength. I have gone back to both Of those reputable clinics of those reputable clinics and they’ve done more tests but they really can’t come up with anything . I had a chiropractor tell me that I was just simply deconditioned and I needed to do some strengthening and that is when I found my other chiropractor who performed the decompression on my lost spine because of the pain I was having and that was due to a pinched nerve which was found on the scan . but I have no answers for my extreme loss of strength and all of my muscle tightness and pain .
I am sorry I got so wordy but when I went off-track just a little bit this may help someone else in this forum.
Thank you for reading
did you ever get answers?! same with me going up the stairs, walking anywhere for that matter, lifting stuff i get super fatigued and legs and arms shake . ill do a motion like throwing a frisbee and be sore for 3 days i also have muscle twitching all over
hi Chris, did you get any answers? I’ve been having the same issues I’ve had twitching all over my body for the last two years but it’s been the last month that my legs and arms are feeling really fatigued. Even to go up the stairs makes my thighs burn and picking up things that are slightly heavy really takes a toll on me even doing simple tasks like playing frisbee with my dog my arms will be sore for a whole week. I’m hoping you found some answers because with the muscle fatigue in the twitching, I’m in the same boat as you.
Hiya. I know this is old but just wondering if you ever got to the bottom of this? I’ve been experiencing this for a couple of years but no answers. Saw a neurologist today who’s sending me for a brain scan so I’m freaking out to say the least. Hope you’re doing OK! 