Isso pode parecer ridículo, mas uma crise de insônia me deixou com medo de sfi. Já tive problemas para dormir antes, mas esse tem sido o meu pior episódio em um tempo. Começou há cerca de duas semanas após algumas noites de sono ruim devido a várias razões que agora levaram a um ciclo de temer não dormir e não dormir! Claro, nas horas escuras da madrugada, eu começo a temer que tenho isso e nunca vou melhorar. O sono em si tem variado. Tive uma boa noite em que acordei brevemente apenas uma vez em 6,5 horas e uma ruim em que dormi talvez 3. Meu médico suspeita que o estresse/ansiedade é a causa, e logicamente sei que isso faz mais sentido, mas não consigo tirar o medo de que realmente tenho Insônia Fatal. Qualquer tranquilização ajudará, por favor?
I'm sorry but, yes, this does sound ridiculous!
There's no way you could have fatal insomnia, either the sporadically occurring or familial kind. I'm a former neuro nurse btw.
This is an incredibly rare prion disease with an incidence of one in 500,000. "Fatal insomnia" is actually a misnomer, as insomnia only really sets in during the terminal stage. By this time the patient is completely unable to take care of himself, let alone read, write or post on forums.
Olá, eu recomendaria consultar seu médico e pedir um teste de estudo do sono, pois você pode ter um transtorno do sono. Esses transtornos são muito disruptivos e um estudo do sono ajudará a chegar à raiz do problema. Você já tentou Mindfulness, Meditação, exercícios de relaxamento? Esses são realmente úteis. Às vezes, a medicação pode piorar o problema.
Cuide-se
Desculpe pelos erros de digitação. Meditação. Tentei. Interrupção. Útil.
I'm not sure how you are doing but hoping better. I've had progressive insomnia for 5 months and been on various sleep aides without success. I have transient double vision, muscle twitches, heat intolerence, headaches, neck stiffness, very small pupils, anxiety and depression. Been very scared it's SFI and have corresponded with Dr Mastrianni in Chicago who said sleep study will tell a lot. Just had my sleep study and report showed I slept for 278 minutes, 12% in stage 1, 76%in stage 2
0% slow wave sleep and 11% of REM.
Also had 268 limb movements. I know SFI robs deep sleep and that's what I was afraid of when I got results. I never get restful sleep, face has aged greatly with deep eye hollows. Memory and thought processes and worsened. 48 year old man with 2 young children. Very scared and know there is no cure or definitive diagnosis until autopsy. My DR has no clue. I'm at a complete loss and only feel regret and despair
Most physicians have no clue how to treat any form of sleep problem outside of sleep apnea, so the fact that your doctor doesn't know how to help isn't cause to believe you have sporadic fatal insomnia.
Also, just read this forum for other peoples' experiences with sleep medications. They have no positive effect for the overwhelming majority of insomnia sufferers. So again, the unresponsiveness to meds just means you are like most other people with insomnia.
Problems with cognition are not limited to SFI. Everyone, literally everyone that experiences insomnia for any extended period has problems with memory and cognition. It's often referred to as brain fog and you will find that it is a consistent theme in this forum.
I'm no doctor but also don't think you would have 76% stage 2 and 11% REM if you had SFI. People with SFI barely have any time at all beyond stage 1.
What you are going through is tough as hell already, and believing that you have an incredibly rare, incurable, fatal disease is making your anxiety worse, and in-turn making your insomnia worse. It is easy to start thinking that you can't be fixed when your doctor offers no help beyond a prescription for sleeping pills. I used to worry myself that I had SFI, or something else that has not even been discovered when my insomnia went on for awhile and nothing seemed to help. I got straight through a combination of antidepressants (taken for a few months), cognitive behavior therapy, and sleep hygiene.
Have some faith friend. Get your anxiety and depression treated. Your sleep will improve.
Back in July I had a scary bout of insomnia and didn't sleep for 9 days. I discovered the disease that you are afraid of not long after I had the insomnia. I became scared that I had it, but here it is four months later and I am sleeping a lot better and getting 7-9 hours of sleep. I had the same exact fears you are having. I still think of the disease and know deep down that I don't have it, but my anxiety will not let me let go of the worry.
É bom ouvir isso. Tenho tido insônia há anos, de vez em quando. Mas recentemente, venho tendo… lucidez. Quase como névoa cerebral todos os dias. Tenho dificuldade para falar e outras coisas. Durmo, mas me sinto muito cansado quase todos os dias. Isso me apavora. Sempre tive medo de FFI ou SFI. Cresci com transtorno de pânico e me deparei com essa informação há anos. Ficou comigo desde então. Até agora, infelizmente.