hi all
just wondered if anyone else struggling with fibro and overdoing it ? We're in temp accommodation at the moment, stuff in storage, parent under palliative care and trying to work but had to go off work, fibro playing up, today head light headed, speech stuttering in head and can't think, anyone else have this
Hi Jill,
Sorry to hear you're having a tough time. What you're going through is bad enough without fibro knocking on the door wanting to play out 
I overdo it every time I go out lately but the past week or so I've been experiencing fibro fog. I've also had a banging headache but i've been doing really silly things like walking into the kitchen to make a cup of tea and forgetting what I went in there for, then remebering and making a cup only to realise after I'd thought 'urgh that tastes wierd' that I'd made coffee instead.
I keep getting my words mixed up, especially if I'm speaking fast. It sort of feels like I've had a drink and can't pronounce words properly.
Who put you into temp acc? the council?Are they aware of your fibro? you should tell them if not.
Anyway, hope you get sorted soon
Gentle hugs x
Hi Jill I have light headedness migrains and stabbing pain my head. speech is a problem that I have on a regular basis.fibro fog with me is constant some symptoms come and go but other symptoms can last days weeks or longer.stress worry doesnt help our condition it makes it 10x worse. if you over do it as we have all done it can cause a flare up which can last for days or longer and make you bed ridden. Trying to keep working with fibro is very hard some keep working but are struggling and others have had to give up work alltogeather. fibro affects each every one of us differently.take care
Just like to say sorry for the hard time your having at the moment . I've have this a lot I also find my space is affected when really exusted but my fibro fog has played up today I just wish I could shake my head and it be gone . Sending gentle hugs 😊
Hi jill
Sorry to hear you are having a hard time at the moment. I overdone things at the weekend and I paying for it now have had to be off work all week. Light headed n fibro fog been bad too just try to pace yourself n relax when you can. Hope you feel better soon
Gentle hugs
Debbie xx
Hi Jill,
it sounds very much like fibro is taking advantage whilst your already having such a tough time. Unfortunately this is quite common, that it becomes more difficult to function when your already under stress.
So sorry that your having such an incredibly difficult time of things right now.
There is always someone on here that will be able to relate or help in some way.
Take care, gentle hugs Lisa xx
Hi Hun , long story don't want to go in to detail here, but paying a mortgage on family home and can't pay rent elsewhere x just been panicking today , feels like your head isn't right xx
take care of you x
Thanks Kaz
not that I want you to suffer, but it does help that you are not on your own with these weird and different parts for fibro
take care of you x
Hugs back to you Hun, wouldn't it be great to shake your head and it goes away xxxx
Thanks Debbie
mot had the light headed thing before and stuttering , started to panic that it was something else xxx
hugs to you and although we pay for overdoing things, would rather do that than nothing at all xxxx
Thanks Lisa
fibro really does get you at times, trying to de stress just hard right now , thanks for your thoughts and hugs back to you xxx
your definitly not on your own hun with these symptoms its amazing what different symptoms fibro likes throwing at us.Paceing yourself is something we all have tolearn to do. if we over do things fibro makes us pay for it. take care gentle hug
Morning Jill; yes, I have found that with every extra stressor (just as you are having now, with house moving and relative in Palliative care), is just enough to set off our Fibro, and in my case, have found it affects another part of my body.....when we moved house last year (thinking a down-size was in order), my TMJ started......even now to even go away for a break/holiday, is enough to set me off, with another issue (or flare as others say).......but to me, I actually find another part of my body goes.........so do So hope this does not happen to you! as for the "stuttering/brain fog", always there, and the misery/tears too, lately.....am joining you in your feelings................Bron
Live with it on a near daily occurrence... to the point when stress is high my brain just shuts down completely and even the messages to my limbs fail me... Balance goes right off. For me I think the balance is also a visual thing.. As I can deal better with balance in open spaces, put me in a hall way or enclosed with moving things or people and I'm all a punch drunk sailor... likened to concussion.
I've been in similar stressful moves and I struggle to get assistance at any time for help so I've been left mostly struggling in painful agony, stiff agony, and huge fatigue. I've managed though to get things done, albeit slowly, painfully, BUT I've had times I have just crashed and burned and cannot get up off the floor, cannot eat... A real mess! It has cost me hundreds in extra rent because of it... Totally ripping me. But what can one do aye! I've got to the point I've pushed so hard I've collapsed in a comatosed state of sleep, when finally awakened it's the same stressful condition I have to live and deal with, no one to help move boxes or shampoo carparts.. I have had at the last hour, at different moves, some one to assist moving bedroom suit mattress and chest draws, last move the kind landlord to where I was moving to assisted me with the same. Gosh I was so relieved... It took me months to get things organised, days to get my bed put up as my hands didn't belong to me, tearing pain and body swelling..Sweats like you wouldn't believe due to the severe body pain. Trying to concentrate using ones brain in that situation is not a practical 'go to' situation, as all it wants/needs to do is shut down... sleep.. I absolutely fear having to go through that all again now.. It's been 3 yrs and I still have stuff in boxes I cannot deal with.
I/we once lived freehold, huge house etc... till partner couldn't cope with my situation, didn't want to believe I had anything wrong.. He was violent with it, so I just left after 17yrs....Had to survive on my half which wasn't much as he'd mortgaged the property over time to such a level it made me stress terribly... One has to use up ones funds here before getting assistance if one is not able to work....I was forced to do just that. It's been a cruel road, but hey, there are folks living under bridges in as much pain as we are to... I keep reminding myself of that...
Hi Jill128
I feel for you, we are in rented at the moment and are moving home next month with a small mortgage. But stil have to pay the rent here till end of year.Its so stressfull.. I am not sleeping much and are getting dreadful headaches-brain fog and everything else that our wonderful friend fibro chucks at us. Hope you can have a good day.
Oh how I could have not read your message , that has been me for years . My speech gets stuck in my head , at times I think I answered someone's questionand I hadn't . Also I refer things as "thingee's " as the words have left my brain. I totally hate admitting this. As I have always looked at my family memebers as they are the ones with the issue,not I. Since youhave me on a roll , I would say I get lost driving the same route for year about85 percent of the time, with talking GPS I get lost just as much. I have lived in the same town for over 20 years. It's horrible calling my husband saying ,"I am lost" .
Some how though I can take on a full load at school and stay on a 4.0 GPA with my other responsibilities. Now I do it in PAIN
Hi Jill
Sorry to hear about all your problems.
Yes I struggle with fibro and doing too much.
I have always been the same, I know if I do too much on one day I will be out for the count for at least 2 days after or sometimes longer.
I lost my job through fibro, but I didn't know at the time that it was fibro. My employer terminated my contract 4 months before I got the diagnosis, due to I couldn't give them a date I could return to work from sickness.
Hope everything goes okay for you.
Take care and gentle hugs
Gosh Deb; Everytime I read one of your inputs, you make tears come to my eyes.....You are One strong lady who has had to Fight hard for every little Step...........nobody can take much more than you have.......you have written re the Health System and how hard it is to get your treatment etc, now re the housing issues and doing it on your own....I Trully Admire your Inner Strength and Courage......the other interesting thing that you mentioned, is the Assistance from the Government.....this is something that I find different (or not sure how it works)....for others over the seas talk re applying for Monetary Assistance, even when partners are working etc, but we, too, here in Aussie have to have Nothing in Bank, to be elligible for any asistance.......sending you my thoughts and hoping things somehow improve for you...........Bron
Hi Bronwyn, I so hope I don't put you and folk on downer trips reading my past history and current issues/plights... I do seem to wind up writing novels... I think it's due to the fact that I find mentall it can be a challenge to converse verbally.. The brain fob/swiss cheese in combo with the muscles of neck/mouth/tongue etc gets in a tangle and the fuses pop! hahaha. I actually also find it far easier to type, than hand write anything! Weird but true... Brain just doesn't connect well on days I have to physically write. I do get very sore wrist and fingers from typing after awhile but hey, that's a small compromise.
I reckon I could write a book about our Health System here and my local Medical Centre where I actually live.
I went to the Medical centre here in New Plymouth, it's a Walk In Med Centre with a Accident and Emergency section, and Pharmacy. It was going to cost me $70 to visit a doctor, who I was told probably won't be able to help me with a 2nd opinion or a referal because I'm not local to the area. WHAT the Heck or folk supposed to do then? I/we are then MADE to be at the Mercy of our Local DUD and knowledge lacking Medical Doctors!! Just how Cruel and unjust is that! I strongly feel like ringing the Medical Ombudsman..
don't appologize Deb............I think most of us are in the same boat, when it comes to trying to Verbally communicate (all of your probs and "finding that others don't want to listen when we have something to say" is a common prob for all of us who have Fibro......and as you say, if the GPs don't Undersand, or not Directed by suitable Specialists, then you (and others) end up in "No Man's Land"..........as for the cost of visiting a Clinic, do you not have A Health-care Card, as I would say that someone in your position, should Definately have one....have you contacted a Social Worker in your Medicare Centre.....on the one Occasion that I went (when I found things becoming hard at home), I found them to be Very helpful...(but don't be directed to a Counsellor....a Psychologist can do ALL and more....even to directing you in the Right Direction for help, and proper referrals......hoping that you have them on your Public Health System.....here in Australia, you can receive 10 free consultations, after getting a referral from your GP....tell him you need to talk to one)..............I Totally agree with contacting the Powers that Be, in order to let them know of the Common Situation/s that you and others find yourself in.....even your Local MPs/Federal MP....if No-one speaks up, they don't get the REal Views, and think all is dandy......I know that I have been Very lucky with my GP and Rhuemy/other Specialsts/physios etc, as I have been given the correct treatment, and understanding......perhaps before Completely settling into your present abode, you may wish to cross the strait, and live in Australia (QLD SE) to be exact???? we could help you more than the help that you are getting, as I said earlier, I Really feel for you.............and as for the use of the computer, this is Our way of communicating to others who understand, so type away....so many of us write Tomes, Too.......Bron