Fibromyalgia Pain (New)

Bones, joints and muscles
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I just wondered if any other female sufferers of Fibro had pain in their vaginal areas?    I am newly diagnosed and just coming to terms with the symptoms and pain that this illness brought along with it but this new pain has begun recently and seems to accompany my hip and lower back pain   I am hoping that they are related and that I dont have something else that I need to worry about   Any advice or information ????  Thanks  Wendy    

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i get pains all over  hun including the vagina even get shooting pains in the rectem sometimes.

lowerback ,hips, shoulder,elbows toes , heels, fingers jaw,ears etc welcome to the club 

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Thanks for the reply   I guess its just another pain to put up with then   Its just that I kinew that the pain in arms. legs. hips elbows feet and neck etc were the fibro but this vaginal pain and needing to pee all the time is new to me    How long have you suffered FMS?

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oh you'v got that as well bloody annoying that need to pee every 20/30 mins .even changing to decaff tea has only helped a little

 

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I have changed to green tea but its made no difference at all  In fact to be honest - it may even be slightly worse  Sticking to water mostly now 

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My cousin works in health food shop and has suggested that I start using zerrazyme   Have you any knowledge of this at all?

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not heard of this one i am in the uk maybe your in another country.

iv heard of serpeptese . but not zerrazyme

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Yeah  She says they are one and the same thing apparently   May give it a go  Am hoping it does something for the pain cos the Amitripylene and paracetomol does nothing   Not even sure what they are supposed to do to be honest 

 

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dont punish your self hun ,if you prefer tea or coffee have it it makes no differnce what you drink ,iv tried cutting down at night , i still  keep getting up but just for little drops instead of larger amounts if i drank normaly 

just as annoying . 

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Thanks for the advice   Its nice to have someone to talk with about all of this    Confused about a lot of how I feel and nobody seems able to give me answers   Thanks again 

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Hi Wendy..Welcome to the Fibro pain club...we all have it, one place or another..

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iv used serpepetese for several months i didnt find they did much .

try D- manose not sure its spelt quite rigth but near enough so should be able to find it easly enough , and i swear by magneisum oil and bath flakes ,.

 

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Thanks Anne   Its nice to be able to share   My husband is great but says things like - how long will you have this?   and Its not worth making plans in case you have a really bad day - I know he loves me and I know most of it is my fault   I was only diagnosed recently and I am not really sure of the illness myself and find it really difficult to explain it to others  Thanks again

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Thanks   I will definitely give them a go

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iv had it 10 yrs  and still cant explain it to people hun .

i know what you mean about people saying including husbands its not worth making plans in case your not well enough.

its so dishearting

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Hiya Wendy...yes that also seems to be prevelant with us Fibro sufferers, I take 25 mg of  amitriptyline before bed..works fir me beautifully..good sleep...numbs the ends of the nerves and therefore stops pain from travelling to the other nerves in the body..it was originally an old antidepressant, but they found it was great for numbing pain etc...I've been on the same dosage now for 16 years..had Fibro for 22 years-diagnosed anyway, keep blogging Wendy, the support and encouragement is sometimes better than some meds..hope you find what is good for you soon..it took me a few yrs...:-) xxAustralia

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Hi Wendidly,

I've had endometrosis for years but after surgery in 2007 the pain subsided and going on the mirena coil a few years back (albeit painful at the time) has eased it significantally.

Recently my bowel, hip, lower abdomen and lower back pain get that dull ache that almost mirrors period / endo pains and I find it hard to tell what it is.

Could it be that the fibro has heightened the pain I thought had gone or is it new fibro pains?  These things I'm trying to suss out too!

Try not to worry too much, I was only officially diagnosed last year too so all these new pains appear and I have no idea what they are.  I'm keeping a diary to track my "pains" to see if its menstrual cycle, stress, emotional, diet or other condition linked.  I only do this for my own piece of mind and if it persists I take my book of findings to my GP to see what she thinks.   

I'd say welcome to the Fibro club, but it isn't the best club I've ever welcomed anyone into lol xxxx

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My partner came to a support group with me only last week and it finally sunk in that this was life long, not neccessarily all the time but it will be around in some capacity.  He admitted he'd completely misunderstood Fibro and was much better informed now he'd talked to professionals and other fibro fighters and their partners.

You always give up the things you love first and sacrifice your own happiness, so if you can work as a team to get some of this back then great.  

We're now learning to be positive about making plans and we are trying to get some long term goals together to have things to look forward too as this positive enforcement can help fibro too.  

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Hi Wendy, it made me sad to read what you said "I know most of it is my fault". NONE of it is your fault Wendy; none of us have asked for FMS. I struggled for a few years with pain and fatigue, and only after diagnosis have I 'allowed' myself to feel that I need to be kind to myself and don't need to force myself to do things I can no longer manage. My husband has accepted that this is how things are, although I'm not sure he completely understands the condition. Take care. Jeanne x

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you done good kid .