I've had symptoms of fibromyalgia for about 18mths but didn't know what it was till recently, had all kinds of tests and was told im a 'medical mystery' but the more i read about fibromyalgia the more I'm convinced thats my problem. I really want to go back to the Dr's but don't wanna get fobbed off again!! and really don't kno' what else to do..I can't sleep cos of pain, i ache all the time due to stiffness, i have restless legs, spasms, sensitive to pain, slowed speech and painful periods..i get emotional when i try to talk about the symptoms cos im so frustrated!!
You need to be referred to either a reumitoligist or to a pain clinic.
They will be able to diagnose you fully and give you guidance to try and get control of your pain.
I am now under the wing of the Walton Centre Liverpool pain management team who I am hoping that they can get to grips with my pain issues.
Best of luck
im just bothered about being fobbed off again by my Dr...i feel like the she thinks im making it up..she i see a different Dr? you see im so tired i get upset easily an find it difficult to talk with out crying, which makes me feel even worse!! :-(
I would get a second appinyone hun you need to get yourself sorted. I know how you feel i have all the exsact same simptoms you have to persivere with the doctors hun give it a nother go and good luck
I would recommend definately seeing a different doctor. I phoned up my doctors and asked if there was a doctor who has specialised in Fibromyalgia, then asked to see that doctor (it is a specialism). Take a print out with you of Fibromyalgia symtoms which you have found on the interent and put a star against the symptoms you feel you suffer. Then you can say I've been doing some looking on the internet as the other doctor said I'm a 'medical mystery'. I've found Fibromyalgia symptoms and feel I have the ones I've put a star against. Do you think it could be fibromyalgia or something else? Some of Fibro symptoms are very similar to other conditions ie, ME/CFS and Autoimmune diseases. Not sure I've heard of painful periods connected to Fibro but it might just be that I don't suffer that way. Good Luck and take a hankyx
go back to your gp and tell them you think you have fibromialgia thats what i did he then said i think you proberly have , and did the pain point test .by pressing on the percivic points on the body .
They do very much go on the pain points which are described on the internet. Not sure if it might be 11 out of the 18 to be considered to have Fibro - something like that.
I agree with everyone on here, go back to your dr and ask to be refered to see a Rheumatologist. They will help you..Good Luck..Anne...
Can you take someone to docs with you or falling that write everything down and let them read it. Good luck
Not much I can add. Everyone has covered it.
You deserve a doctor who treats you well. That is huge, and you need a specialist. The Gupta program helps you manage tour anxiety/stress which is SO part of fibro, unfortunately.
I can say that light stretching and some calming teas and/or herbs will do you wonders. I know you feel tired so thinking of something to calm you more sounds odd. Your body is exhausted from the stress & pain. It needs a break.
Hiya. It took my docs almost 3 years to diagnose me. I was sent to a rheumataologist
who said what it was. I've had it with my gp, a couple of weeks ago she put me on Amitriptyline and a week after the pains were sooooooo bad I had to stop taking them. Now I can't even get to see her til the middle of November. I've lost all trust in them and when people say to me go see your doc this is why I don't. I'm so with you on the emotional side of things as well. Just thinking about it makes me well up and I can't really confused and muddled up as well. Demand your doctor send you to a professional who can give you some more help. All the best Hun. X
I never mention the Internet to my G/P. it makes him grind his teeth.
Hello Kyroar,
What a difficult position you find yourself in. But there is lots of good advice on here. You need to get yorself referred to a rheumotoligt in the first instance. Your Doctor needs to look at this site, and if not willing change your Doctor. Very important that you have a doctor that is interested in this condition.
Good luck, and let us know how you get on.
Take care, Anne
iv got one of those gps. dont think they like the fact that alot of people are taking there health in there own hands and searching for advice and information and not relying on them .
see another doctor if you can .
Yeah. They hate that.
Hi Kyroar, I really feel for you. I've had FM for 20 years now. It started after a severe viral lung infection that went undiagnosed for 6 months!! (It can come from any type of trauma, including surgeries.) I have been to all kinds of drs. and have had every test under the sun. It is very frustrating to try to get people/drs to understand what you are going through. I am from the states and I found this book that all FM sufferers should read... it was written by a female DOCTOR who touches on everything you have - and will - experience. She is brilliant and you will feel like you have someone who finally understands and it is great because you can take this to your doctor and show them that this is real and this is how you are feeling and they will listen because a doctor wrote it! The name of the book is "Fribromyalgia & Chronic Myofascial Pain, A Surival Manual" written by Devin Starlanyl and Mary Ellen Copeland. She explains how the myofascial tissues between the muscles becoming tightened (instead of supple) and this has something to do with the nervous system. AND, a good thing that I also found after 20 years of doctoring (15 w/ a rhuematologist that only wanted to give me muscle relaxers and pain pills...) is that a drug for the nervous system called Lamictal (lamoTRIgine), helped with the nerve relays from the brain to the muscles WITHOUT pain meds! It greatly reduced my pain. Not sure if this will work for everyone, but I want to get it out there in hopes that it my help others. Do you have this med available in the UK? I am going to copy this note and paste it in other discussions on this site so that it becomes so redundant... in hopes that everyone can check this book and med out. Best wishes to you and hang in there.
does anybody else suffer with walking problems, i sometimes walk like I've had a few too many when ive not even touched a drop, i have like a floaty feeling as if my feet wanna do their own thing...i still haven't plucked up the courage to go back to Dr's yet about my sympoms because im scared of bein fobbed off....
Hi ,yes I have terrible walking problems I always feel light headed and as if my feet carnt find the ground and I often trip over my own feet ,it's truly frustrating and people think I'm drunk which dosnt help . I was once a compedant gymnast with brilliant coordination but now I'm a clumsy oaf . The only thing I find that helps is almost shuffling my feet and walking very slowly and to make sure I walk on even ground . good luck and persrviere with your doc !
yes i often said i walk like i am drunk .
i broke my nose 2013 because i didnt feel a slight rise of a paving slab under my foot until it was to late went down with a hell of a bang broke my nose and a bone in my hand ,and gave my self slight concusion as well
.now i make sure the boots i wear are a good fit not to loose and i only where 2inch heel and a normal sole it was the slight platform sole that made me fall .and no matter what if i am not with someone to hold on to i take my stick , 