I have been doing well the past few weeks. However yesterday the intense burning returned in the vagina as well as the vulva. I have been taking the hormone pill Osphena for 3 weeks and using a diluted baking soda wash after urination. I am taking Zyrtec and Vitamin D3. I usually take fish oil but had to stop it last Friday since I am having a cystoscopy this Friday. My urologist wants to make sure my problem is not bladder related. She really thinks it is gynecological issue. Has anyone tried Represh Gel for burning relief? This is the worst burning I have had since this horrible VA began 3 years ago. I am also doing site baths with baking soda which helps temporarily. I am nervous about the upcoming cystoscopy due to the burning. I must say I ate more sweets than usual the past 3 days. I am not diabetic. Any advice is greatly appreciated.
So sorry to hear this. I think this is another terrible reality about having these issues as we never know when it is going to strike.
Something I have been doing when the burning flares is to use Lidocaine 5 %. Now I don't know if doctors would agree but it sure stops any pain and/or burning. Just saying.
Hope you feel better soon.
Thanks, Linda.
Hi , well I use Epson salt bath, no more Replens , outer area been using steroid, yeast cream and stopped d3 for a while and taking probiotics,. Everything goes away then returns and returns so not sure about anything helping long term unfortunately in my case. Saw Dermatologist, maybe gonna cancel urologist cause no uti and what next cream to use there Idk, been an awful problem. If you get relief let us know the magical cure! Wishing you relief!
I have been the same with bathroom trips five times a night and burning back everywhere I have been using estriol cream since April and take once a week now which I split into half twice a week on a Wednesday and Saturday because when I used it once a week half of it fell out the first time I used the bathroom. Everyone is different in what works for one is no use for another. Using soap of any kind brings back all the symptoms and have found it's when I use anything to to wash with that's when it all returns. I am using YES VM moisturiser but can't say it's working sometimes feel better than others when I use it. I am not sure about using anything at all after emptying your bladder just plain water and a clean cloth washed at 60degrees works too although I am always conscious of not being clean. There's lots of advice from other ladies on here too. I think it's trial and error but have a feeling what we wash with plays a big part in how it affects us. Have you tried probiotics I only take them by mouth and I think they are helping me - about the only thing I can say has helped and where I feel a difference.
What a pest it is hope you get better again soon
Thanks, Olive.
Thanks Yolanda.
I am the same Yolanda and am fed up of it. Am sure with me it's what I wash with that affects all these things and I take probiotics by mouth and they have helped. I am trying the YES VM but only lower down not chancing it further up think it's ok as a moisturiser lower down but I suffered badly with it in an applicator. Some people are saying they have been like this three and five years my doctor did say I would have to take the estriol once a week all my life. Hope my memory stays good just imagine what we would be like if we forgot.
Let me know too if you find something wonderful
Hi maryann
So sorry for your suffering. Seems anytime there is a time of relief it’s always worse when flares up again. I haven’t tried Represh Gel. I’ve used just about everything under the sun - the Livena helped first time but second time bladder acted up for days and I’ve no idea if it was even related as the product brought such relief the first time.
Two days ago I got Emuaid in the mail. I finally gave in lol. It’s been like a miracle for me since. I’m very surprised. Even my bladder has calmed. I hope it continues- I’m so skeptical as everything I’ve tried is short-lived. This seems different. We’ll see.
*luvena
Thanks, Pat. I may try Emuaid.
Hi Pat look up Emuaid, might be a good try also wondering why Drs and Dermatologist don't give a thought to anything like this,. Was told to use Acquafor which did nothing for me . My Gyno said use only what he gave me for now but gonna ask him about this next week , just don't want to risk getting worse. Please report back and let us know if it's working for you and hopefully it is
Meant to say looked up
Hi Maryann, I have had burning since 2016 and I don’t use anything....I’m not sure if it’s VA or Vulvodynia, Vulvitis...as I have been diagnosed with all because no one is sure what it is...my gyn prescribed me estriol, but I didn’t use because of family breast cancer hx. As time went on, the burning slowly subsided....but every now and then comes back but only when I’m laying down in bed at night...I fold a pillow in half , lay on my side , and put it between my legs. After say 10-15 minutes it’s gone. I guess my point is, just cause the drs tell u it’s something like VA , Vulvitis, etc....doesn’t necessarily mean that’s what it is.....and if you try every ointment, hormones, or medications...and nothing works....I would go see a specialist...If the burning gets bad for me again, that’s what I will do....I personally think it’s a pudendal nerve thing going on...but I am burnt out from the pain for the first year that now I’m just relieved that it subsided enough that it doesn’t affect my daily life..only like I said sometimes at night in bed. My burning came on acutely in 2016 and I was out of work for a week in bed it was so bad. I had to get a special seat to sit on at work which I used for months...now it’s mostly gone...I tried several creams, but nothing worked. Hope you find relief, good luck!
Thanks she much Karen. Glad you have such me relief.
olive, I put a capital E on the days of the week I am to use it and circle the E the next morning. Not taking any chances counting on my memory.
pat, did you pay $50 for 2 oz of this cream? That sounds pretty steep for an over the counter cream. Please continue to post on the results. Noticed there is a less expensive version from Walmart. Blue Emu was $30. Was the cream recommended by someone or did you just decide to try it?
Thanks.
Hi Beverly
Well here’s my Emuaid story. I’m on a very limited income. So I wrote to the company via email and asked for samples and/or discount code. They sent me an application for what they called EmuAssist - so I filled it out and mailed it in (income type questions) and they called me. Offered me their program which I qualified for - up to two at $20 with free shipping! I said yes please! Only ordered 1 (regular Emuaid). They asked where I had purchased it before so I just said Amazon LOL (caught me off guard). So it’s a program for people who are lower income I think.
It was recommended gals in another group for Lichen Sclerosus (I have AV & possibly LS as well).
It’s day 2 and it’s still helping a lot. I’ll keep you all posted.
For burning I found a gel at Walgreens in the first aid burn section called Aloecaine. Its an Aloe gel with Lidocaine. Helped tremendously!
Thanks Sonya. I will try it.