After months of dealing with vertigo, tinnitus, fatigue, and palpitations I have been diagnosed with MD. I've always been healthy, only taking a vitamin a day. Now I have quite a few. The only med that has done anything is Ativan. It helps with the palpitations. The other helpful item is beer. For some reason it helps. My fatigue and headaches are rough. I've had my friends and husband comment that I dont look sick. This frustrates me because it dometimes takes every bit of strengh to get up and try to function. I have become very irritable. Ive haf to take leave from work and have missed out on many social functions. I want my active life back. Im 45, not 85.
I have felt like this first 2 months it was hell and I was depressed! I started a new job and was calling out so scared i could be fired. Night classes I dropped because I was missing so much it would effect me.
Now finally I am doing acupuncture, on duiertics, and take Valium and ativan when I feel the dizziness is coming. I am waiting to see the Dr again for a second opinion and ask when I can go back to enjoying my life like the gym and social gatherings.
I wish I could drink a few cocktails! I'm terrified I've read it could trigger it.
For me I think I got mineres because of my stress and anxiety levels.
Hello momo45.
I was diagnosed with Meniere's for many years. I did not have the disease. I was having frontal lobe seizures.
You need to see a nurologist and get an EEG - or the best test now to look at your brain. Meniere's looks like several other problems. It is worth a try.
Dan T.
Have you seen an ENT who has done an MRI of your brain and have had complete blood work ?are you following a low salt diet? Have you seen a cardiologist about your palpitations (that could be just stress but best I think to check .you may need a second opinion
My concern is what is the main cause of your not being able to function ?fatigue due to Ativan ? And I you may need to see other specialists if you haven't about these symptoms to see if it's the menieres causing you not to be able to function .
My ent has me on a low sodium diet with a diuretic. My family dr has me on ativan and celexa. Im going to see another ent for second opinion and neurologist. Would love a "magic" pill..
I take Ativan at night. Ive had horrible insomnia. Just a snowball, causing stress
Definitely will give it a try, thanks.
I am not sure where the fatigue comes into the diagnosis. I know it is an issue as you are not the first person to say that the fatigue was to the point of being disabling. For some reason, it does not get the attention that is needed and for that I am sorry that every one who suffers from it must do so because you "don't look sick". I wonder if you have spoken with your doctor about how problematic this fatigue is and if a trial of one of the newer antidepressants like Lyrica may prove beneficial. Sometimes all that is needed is something to help with this added stressor in your life until you find your balance again. You will need to make changes in your life because of MD but it need not make you miserable. It would be a good idea to see a cardiologist. I had very frequent PVCs. Turned out that I was in premenopause and the hormonal changes were driving the PVCs. I was given Metopranol and was able to come off of it after I went into menopause and the hormonal drive was gone. These changes can also add to your fatigue and depression. Take care of yourself.
Liebe momo45,
Ich verstehe deine Gefühle zu den Symptomen, die du hast, vollkommen. Egal, ob MD oder nicht MD, diese Symptome verursachen viel Angst und Erschöpfung. In Bezug darauf, normal auszusehen: Ich hatte einmal ein langes Gespräch mit meinem HNO-Arzt darüber, warum nicht mehr für MD-Patienten getan wird. Er sagte, es sei langsam vorangegangen, das Bewusstsein zu schärfen, weil MD-Patienten zwischen den Anfällen ziemlich normal aussehen! Wir fühlen uns vielleicht nicht besonders normal, aber wir sehen ziemlich normal aus (wenn wir nicht am Boden liegen und uns übergeben oder "Möbel surfen", wenn der Schwindel kommt). Er sagte auch, dass Erschöpfung und Angst sehr häufige Beschwerden von MD-Patienten sind. Ich hatte im ersten Jahr schreckliche Erschöpfung und Angst.... Es war furchtbar. Ich musste so viele Pläne in letzter Minute absagen, und Freunde verstanden es einfach nicht. Mein letzter Urlaub im letzten Jahr waren die teuersten 11 Tage, die ich auf einer Couch verbracht habe! Wenn du eine Bestätigung bekommst, dass du tatsächlich MD hast, gibt es weitere Schritte, die du unternehmen kannst, wenn die Schwindelanfälle behindernd sind: Es gibt Injektionen in das Innenohr mit Steroiden, die für viele Menschen mit schwerem MD (auch für mich!) sehr wirksam waren. Einige haben über lange Zeiträume Linderung mit Injektionen in das Innenohr mit stärkeren Medikamenten, aber mit radikalereren Nebenwirkungen, erfahren. Das sind alles Dinge, die du mit deinem Arzt besprechen musst, nachdem er jede andere Ursache für deine Symptome ausgeschlossen hat.
Sind deine Schwindelanfälle mit Hörverlust und/oder einem Gefühl der Fülle in einem oder beiden Ohren verbunden? Das ist ein bestimmendes Merkmal. Und das MD-Muster des Hörverlusts ist eigenartig und leicht auf einem Audiogramm zu erkennen.
Ich verstehe deinen Frust aufrichtig. Das ist etwas, das dich im mittleren Alter trifft, wenn du am beschäftigtsten und produktivsten bist. Es tut mir so leid, dass du damit fertig werden musst.
Vielleicht stellst du am Ende fest, dass du etwas ganz anderes hast und einfach eine gezieltere Behandlung benötigst. Aber wenn du MD hast, dann weißt du, dass du noch nicht alle Behandlungsprotokolle ausgeschöpft hast. Es gibt noch Hoffnung, dass du dich viel besser fühlen kannst.
Ich wünsche dir alles Gute.
Herzlichst,
J-
Thank you. I had testing that confirmed bilateral MD. I havnt shared this with many friends or family. I have chosen just to stay home. Baby steps. Was able to get out and walk my dog for a few tonight. Can only go up from here.
I TOTALLY UNDERSTAND.WE AREA JUDGED ACCORDING TO HOW WE LOOK BUT NO ONE KNOWS HOW WE FEEL.IF POSSIBLE LET THE DR.EXPLAIN MENIERE'S TO THEM . IT'S HORRIBLE.
I can totally relate beer does make it go away for the moment! Three years I suffered until theyfibslly diagnosed me.. I have daily attacked but more of a side by side feeling.., high anxiety will provoke it immediately..,, I'm afraid to swim I don't go on rides cuz I don't know when a attack will happen, I do get vomit attacks out of no where..... I'm trying to live a stress free lifestyle as I am only 38! My balance is so off but I have learned to control it!! Does anyone on here have these symptoms? My ears ring I have nystigimus and after a attack I need to sleep...., some people say they run I can't imagine running? Love someone ones input
How long did it take?
The ringing is so intense. Im with you on the daily attacks. Im taking it slow. I dont feel safe driving right now.
I'm new here,,, everyone says oh u look fine but don't seem to get I feel like I'm dying inside,,, I'm s pretty girl and they look at me like oh nothing wrong with her.... Does anyone one have balance problems along with all the other symptoms, any medications that I shd know about?
Yvette, I have always had little vertigo as s child about three years ago my life turned upside down... In and out of er telling them something is wrong I'm dying, had cat scans etc,,... Went to ents, neurologists to no Avail,, finally I went to Columbia had major tests done found it was central vestibular dysfunction along with meniers... Basically it's a inner ear damage somewhere there is not s cute I take the water pill does it work I don't know.... Stopped working cuz it only intensified it... Stress n anxiety trigger them off..... I take Valium and honestly I swear it puts it away.... But rite before my menstraul I'm all over the place..... No one understands how horrible I feel n I just wish I can wake up n feel normal again..... Anyway,,,, i noticed cold cuts n anything salty is definitely a no no
Have u tried Valium? I take the water pill, I have tried hard with a low sodium diet but, a couple of times this summer I drank beer like u and felt great but the next few days it was rite back to my daily life! P
No I havnt tried Valium. This is all so new. I was just a vitamin a day person until this.
When I feel the ears getting full the off balance the anxiety the Valium offsets it just a little bit, I can function a little more,,, water is a big help too.... I thought I was the only one suffering with this 😳