On Thursday I am travelling to Corfu for a week's holiday. Are there any tips from you long term sufferers out there on how to combat the inevitable fatigue and possibly increased pain/stiffness that the stress of travelling will possinly cause. Any suggestions gratefully received!
I just returned from a week at the beach. I actually found that I felt so much better. I think just getting a chance to do something really fun for a bit took my mind off of the PMR. I don't mean to imply that while at home it is mind over matter, but it did seem to help me. I was stiff in the morning, and it took me a bit to get moving, but all in all it was really nice to just get away from the routine at home. I hope you have a wonderful holiday.
The usual suggestion is up the Pred a couple of grams and leave the stress at home when you go!😀
I keep seeing suggestions for upping the dose of prednisone. How does one do this when the insurance makes sure you do not refill before certain dates, etc. I am sure that if I told my doctor that I decided to go from 20 to 25 or whatever for a week that he would suggest that I get a new doctor. Not sure if he would do that, but I am thinking that we cannot just decide how much we want to take. Anyone have answers to this????
Donna
Constance hit it on the head - leave the stress at home - and take a 'holiday'. Don't overdo it and just enjoy the sun and sand.
I was concerned last year and I felt better all the time I was in Cyprus. I did delay a reduction which was due to start just before leaving and started after I got back.
Hope all goes well - don't forget to take some extra meds in case you may need them and take a copy of your prescription to show anyone in customs etc.
Do you have to tell him? Most of us don't!
How would you explain an early refill?
I've run into this before.....when I got down to 4mg a day before
sciatica hit....I only needed like 2 and a half pills before the
insurance would refill. Back in the old days the pharmacy would
have loaned me the 3-4 pills I needed. Those days are gone
I haven't run into it since that once episode. Pred is pretty
cheap in the U.S. and you can pay for it. If it happened to me
again I was going to ask if I could get small amount or half
the script and pay for it or ask your doctor to give you a
script for 50 to just hang onto and just pay for it.
Anyone in the medical world should know that it's dangerous
to just stop taking pred....
Thanks, I will remember this if needed. I know that my doctor does understand that you can't just stop, but I would be concerrned about relying too much on higher doses. I am not pain free, but do worry about more and the side effects of that. I was wondering if in the UK it is easier to change to a higher dose than it is here. Just curiouls as I believe that a lot of those comments came from the UK. I have found that I am just used to being pretty stiff and sore in the morning. I feel pretty normal by evening. Since I am having vision problems, I want to get down to lower doeses ASAP. Thanks for your responde.
Traveling is tough enough!.. Listen to these folks here and take a little xtra pred😊 Enjoy your holiday!
Hi France first of all I wish you a lovely holiday ,I have just came back from California and was dreading the 11 hr flight because T home if I sit a lot I get awful back ache from PMR and siatica.so instead of taking extra Pred I took ibupophen like the Dr sugested to me. Well I had a fantastic flight and a even better pain free PMR holiday ,only the tiniest little niggles ,could not believe it ,weather it be the beautiful hot sun ,being soooo relaxed ,no worries or stress.We did a little bit of walking every day but mostly relaxing and I felt terrific .Came home last night and today I have been back to square one haha ,very painful day ........... So why was I soooo pain free on holiday I ask my self ,don't know .so you get that case packed because you are going to have a wonderful holiday ,just like me xx
Ment Fran not France .....predictive TXT
I had the same experience at the beach. I took no extra Prednisone, took my Tylenol arthritis and that was it. I really think it was the change of scenery, the nice restaurants, the beach, all of the things to do, got in some walkilng also. I hope you have a great trip, Fran. I ama sure you will. Nice to see that you, Karen, had such a nice relaxing time. I hate those long flights too, glad yours was a good one.
Hi fran -i am trying to reply to karen but your name keeps coming up so i hope uou dont mind if i put my question for advice here.karen mentions she has sciatica and i have Pmr 6years now and am very worried as i have developed pain in left hip (different from pmr pain) and it feels really bad in night cant lay on tbat side and upstairs /steps/walking and pain sometimes radiating down i groin -could it sound like what you have as i am wondering if my hips going.ive not been to doctors yet as iknow she will say it is probably my fsult for refusing to go on alendronic acid -any input from anyone would be grateful thanks jeab
Hi Jean it's Karen , yes I have terrible pain in my right buttock , some times in my groin ears and some times down my right leg , but mainly the buttock lower back erea, Rhumy said its nothing to do with PMR which some times comes along with PMR and he advices me to take ibuprofen for , and for me that helps , I also have never taken alodronic acid tablets xx
Just me chipping in here. I understand that hip pain is a very common thing with PMR. I've certainly had it, and don't know if I'd have had it if I hadn't developed PMR later, if it is part of the whole package. I can't sleep on my side now, and have to sleep on my back, knees supported by a pillow. I've also found that a really hot hot water bottle helps somehow and I wonder if it has something to do with muscle spasm?
Never thought about muscle spasms Angela , all I know is it really hurts and cannot lie on the right side , the joys of PMR hey 😥 X
Hi Fran
we just returned from a 3 week holiday mostly in the Maritimes of Canada (7 hour flight to get there). Did lots of sightseeing and walking and eating. I felt good the entire time.
Now that im back home each day I seem to be a little more achy and tired. I'm really surprised by this as I haven't been overdoing, but this PMR sure has a mind of its own!!
my advice....just listen to your body and allow some nice rest time after you get back home. Hope you have a fun trip!
Good question fran I'm going on holiday in 4 weeks time and I too have been wondering what to do , I am currently taking 6 mg I have not managed to get below that dose yet , I had a flare a couple of months back and had to go up to 10 again I'm now reducing by 0.5 a time now and will be due another reduction before I go I'm now wondering should I stick to 6 till my holiday is over. I was in agony last year on holiday with PMR as I hadn't seen the rheumy to be diagnosed so was on no treatment I desperately want this holiday to be better . My rheumy is happy for me to increase my dosage to manage flares and my GP goes along with him .
Best wishes molly
Hi karen thanks for reply -so it may not be my hip thats detiriating it also helps to know it sometimes comes along with PMR-iam still reluctant to tell ruemy as she is still trying o get me to take the alendronic acid and is sending me for dexa scan again -its as though she determind to prove thst i should go on it i feel pressured and am getying anxious about my next appt-i know the side effects and they scary thanks x