I noticed it at 22yrs old. It was the size of a dime and on my left ankle. It didn't bother me but it looked like ringworm. Over the next year it developed on my shins and the original spot on my ankle doubled. Several doctors and creams later, I was told it would go away by itself. Well 2years later is spread again and I was diagnosed with granuloma annulare. The cream was an expensive placebo. I was told I need to take steroids now. I'm not willing to do that. Some days are better than others, some days I look like a creature. Not much information on the causes of treatment of this. Bug bites make it worse. That I do know. I live in Florida. It has gotten worse now, covering most my lower legs and feet. My fingers have developed marks as well. We can figure this disease out together. There has to be an answer. The skin is the largest organ and a reflection of your overall health. I'm 30years old. My health is very important to me. I'm thinking it has to do with my reynauds phenomenon. Another rare condition. I'm not a doctor by any means but I do have common sense. It feels weird but doesn't hurt. It gets worse under stress or intense heat. Such a weird disease, let's figure this out!!!
Bonjour Julia... J'ai eu de l'GA pendant environ un an, j'ai commencé avec deux taches sur mes mains qui ressemblaient à un herpès circiné, maintenant je l'ai partout sur mon dos, mes jambes, mes mains, mes doigts, mon cou, ma poitrine et mon front.. J'ai essayé les crèmes à base de stéroïdes, ça n'a pas marché... puis il m'a donné de la prednisone et ça a marché, mais il ne me l'a donnée que pendant 10 jours, donc je ne peux pas vivre sans bientôt, mais j'ai remarqué que ça partait... Maintenant, il m'a donné du plaquenil, j'en prends depuis presque 3 mois, tout ce que je vois, c'est que ça ne se propage pas, mais ça ne part pas... Je veux reprendre la prednisone jusqu'à ce que ça parte et continuer le plaquenil, je pense que ça va m'aider.. J'habite en Floride et oui, la chaleur l'inflamme ou la fait démanger, démanger, démanger, donc je suis un peu comme un prisonnier dans ma propre maison, je reste à l'intérieur beaucoup... Je sais que mon médecin ne va pas me donner de la prednisone, j'ai entendu parler de cette thérapie ROM, ça semble assez fort antibiotiques que j'ai lus et qui aide les gens, donc je dois demander à mon médecin à ce sujet... Oui, nous devons savoir ce qui cause cela... C'est si embarrassant de se promener avec de gros anneaux partout sur moi, l'autre fois, j'en avais comme un cluster de vésicules, les plus petites, mais comme je l'ai dit, je l'ai partout sur mon cou, mes épaules, mes bras, mes doigts, mes mains, le long de mes jambes, mon dos, mon front, mais ce n'est pas trop visible.. et ma poitrine, c'est si bizarre que l'endroit où je ne l'ai pas, c'est mon ventre, mes seins LOL et mes fesses.. donc en gros, de ma tête à mes pieds - ces quelques taches... Bonne chance et je vous tiendrai informé de ce qui m'aide...
There seems to be no rhymn or reason to this condition. The first time I got it.....very mildly....the sun/sunbed didn't affect it at all. Had used sunbeds all my life and holidayed abroad with no real effects. On hindsight before this horrendous flare in 2014 I did used to notice the odd little red spot on my lower legs (the original ring was on my right shin) so maybe the sun was having a minor effect n I didn't notice as I associated GA with the ring. But it was very barely anything. Then after an op n contracting the MCV virus directly all over my upper arms in June 2014 the GA went crazy! It has never calmed down since. The last 2 yr with this have been hell and this latest summer,2016, THE worst as spread to hands n have figured out sun/sunbed is making it soooo much worse. Don't hold out much hope of it ever going if sun affecting it. The only other difference from my first experience in 2010 is stress!! First time it didn't bother me, didn't stress and didn't change lifestyle. This time massive stress which is still on going 2 yr later a due to having GA n now can't tan without GA popping up which knocks my confidence even more. There must be a stress connection somewhere also maybe hormones and age as this time am post menopause and older (49) and maybe the immune system just can't cope as well plus all the cortisol from stress.....chronic stress!! Just wish it would burn itself out but wonder if the stress is feeding it?! Hopefully we'll all find a solution (other than living in a cave in Summer! ) to this nightmare disease. Good luck!
Hi Kendra my wife has had GA for about 40 years and it was getting worse covering about 30% of her abdomen about 6 months ago she started taking 1 teaspoon of MSM with lemon juice almost everyday it is now almost all disappeared. She puts 1 teaspoon of MSM powder in a glass squeezes in half a small lemon adds a teaspoon of sugar to make it palatable and adds a bit of water. MSM is a naturally occuring product, we have read that when taking MSM with fruit juice helps the MSM to absorb. I hope it works for you we are pretty sure it it is responsible for her GA to disapear. See this thread: https://patient.info/forums/discuss/ga-and-gluten-free-521504?page=0#2254823
Thanks for that info Grant. Definitely worth a try!
Bonjour Grant
Je viens de lire votre histoire sur votre femme atteinte de Ga.. J'en suis à plus d'un an et environ 50% de mon corps est couvert.. Le seul endroit où je ne l'ai pas est mon visage, mon ventre, ma poitrine.. Le reste de mon corps est couvert, ça s'est propagé comme des fleurs sauvages ces derniers mois. Les médecins m'ont mis sous tout, des crèmes stéroïdiennes aux médicaments contre le lupus. Une chose qui a fonctionné, c'est la prednisone, ça partait, mais seulement pendant 10 jours... Mais les médecins ne veulent plus me la donner 😆 donc je cherchais ce MSM et je sais que vous avez dit que votre femme prend la forme en poudre, mais j'ai aussi vu les comprimés, donc je me demandais quelle était la différence entre la poudre et les comprimés avant de commander... Merci
Bonjour Julia
Oui, j'ai moi-même la GA, je l'ai découverte il y a un peu plus d'un an. Je suis allée chez le médecin, ils m'ont donné tout ce qu'il y a sous le soleil et rien ne semble aider. Je vis également en Floride, donc je comprends que le soleil l'aggrave vraiment. Ça brûle et ça démange. Je suis à peu près 50% couverte de GA et ça s'est répandu comme des fleurs sauvages ces derniers mois. Le seul endroit où je ne l'ai pas, c'est sur mon ventre, ma poitrine et mon visage. C'est tellement embarrassant. J'ai les mains, les doigts, les bras, le dos des bras, la poitrine, le cou, les jambes, le dos, le devant et les pieds complètement couverts. Je suis à bout et c'est tellement difficile à croire que le gouvernement ne fasse pas de recherches parce que ce n'est pas mortel ou n'a tué personne. C'est fou ! Hier, je suis allée dans la piscine que nous avons dans notre jardin, pensant que le chlore pourrait aider. Mon Dieu, ça l'a tellement aggravé, ça a enflammé, démangé et brûlé. Donc juste pour avertir tout le monde qui a la GA, ne allez pas dans une piscine au chlore... Je viens de lire un article ici de Julia de Grant à propos de sa femme et elle a pris du MSM en poudre. J'ai regardé et je vais faire plus de recherches. J'ai vu la poudre et les comprimés, donc je vais lui envoyer un message pour voir lequel fonctionne mieux, mais je vous tiendrai informée... Bonne chance. Quelle partie de la Floride êtes-vous ? Je suis dans la région de Tampa Bay...
I live in key west Florida. The mosquitos down here seem to trigger my reactions. I also noticed that the chlorine has some effect on it. I have researched that food allergies and caffeine may has play a role. I'm going to try that approach and see if it helps.
Hi Stephanie I wasnt aware of a MSM tablet but I assume the powder would mix with Fruit juice better. There is a lot of info on the internet some say the Flakes are a better way to take it. For us the Powder is readily available at most Chemist. After reading other people that have managed to reduce there GA it seems to be diet and food intolerance that seems to work, my Wife must have been lacking in some sort of Sulphur so the MSM worked for her. In this thread Patty has had good results after a hair analysis and diet change. I hope you find what works for you, regards, Grant.
https://patient.info/forums/discuss/granuloma-spreading-536059
hi Grant, Please tell me what MSM IS AND HOW TO ORDER IT? WAS THIS DR. RECOMMENDED? THANKS,Maxxxxxx
Hi Max, MSM is a naturally occuring chemical see (https://en.wikipedia.org/wiki/Methylsulfonylmethane) I read somewhere that it may help GA so we just bought some powder from the chemist. Some Chemist and health food stores stock it. The article said take about 1 teaspoon with a bit of fruit juice so she tried it and the GA is almost all gone there is still a small bit of discoulred skin in places. I think you have to find out what you are lacking in you diet she must be lacking some sort of Sulphur and the MSM has helped. I hope you figure it out.
Hi Stephanie,
i realize this post was over a year ago, but I, too, live in the Tampa Bay area (Valrico) and I'd love to correspond with you about the treatments you've tried. I completed one cycle of the ROM therapy (took 3 different antibiotics one day in a month for three months). Unfortunately, it did nothing for me, and my doctor does not recommend continuing the treatment. I will be trying the MSM powder. My derm is actually recommending that I sit out in the sun for 15 mins x 3 days/week. I've avoided the sun since my GA diagnosis over 3 years ago, and I'm a bit hesitant to do that.
Good luck to everyone with this disfiguring conditioning!
Bonjour Gail
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Le mien a commencé il y a un an et est également général. Je sais que le mien s'étend en étant au soleil. Je n'ai également rien trouvé d'utile mais j'ai essayé de nombreuses solutions possibles.
Combien de temps lui a-t-il fallu pour commencer à voir des résultats ? Je l'ai commencé la semaine dernière après avoir lu votre publication
Hi Ginger she said it took about 4 months for it to show conclusive results but she was only taking it occasionally. It is probably about 2 years now and it hasn't returned and she only takes a teaspoon full about twice a week. I hope it works for you.
Merci beaucoup. J’essaie de le prendre quotidiennement. Merci pour l’information. Je suis ravie que cela ait fonctionné pour elle !
Grant, what milligrams is your wife using of the MSM?
Hi Ruthann It comes in a 300g plastic jar on the jar it says 100% pure crystaline MSM (methysulfonlmethane) Directions for use say; add1/4 teaspoon (1 gram) daily to food or beverages. She has 1 teaspoon 2 or 3 times a week. It hasn't been recommended by any professional just our own research and giving it a try. I'm not sure if it has worked for anyone else but I hope you can fix your GA.
I found my cure for GA.
It's Keratin. I have to avoid it completely. I threw out over 24 hair and beauty products that contained Keratin. Shampoo, face creams, conditioners, hand lotion, hair dye, even mascara had Keratin in it.
After I got rid of all Keratin products, it took 2 months before I saw that the bumps were really looking better. It's been almost 6 months and now they are healing very nicely. Some spots have disappeared completely.
See if this works for you.