Graves’ disease block and replace method

Hormones
1

Hi,

I have been diagnosed with Graves’ disease 15 months ago and have been put on the block and replace method at a level of 125mg of Levo per day but I always felt I was too high due to having heart palps constantly, brain fog etc and feeling generally anxious but the endo said for me to continue to take the 125mg as I was in the normal range......until 5 weeks ago, I had a blood test and he said I was at the high end of normal and I could come down to 100mg of Levo per day. This was music to my ears.  He asked had anything changed in my life over the past 3 months for this too happen and I said I gave up smoking.  He said this might have had an influence.   I reduced to 100mcg 5 weeks ago and I’m all over the place.  I’m not complaining that much as I’m not as anxious as what I was like at 125mg which is good but I’m still very hyper than hypo.  My heart palps have calmed in general but I do have a rush once a day where my heart starts racing and I have very bad brain fog.  Also I can go from very calm to very anxious or irritated or angry or very sad.  Is this normal on a decrease?  Have anyone decreased via a block and replace method and did you experience similar things and if so how long did it last please as I feel like a right mess. 

2

Sorry I can't respond to the block and replace question but I wondered what was the cause of your hyperthyroidism?  Did any traumatic events precede your hyperthyroidism?

3

Hi Linda, I have Graves’ disease.

4

Hi James

I suffer from hyperthyroidism and Graves disease with double vision and am also on a block and replace regime which I started in January 2018. 

My dosage is 3 x 20 mg of Carbimazole and 25 mcg Levothyroxine daily all of which I take first thing in the morning.  Obviously people can be at different stages in the control of their thyroid problem and I am now slightly under the normal range so this is why I am taking a combination of medication.   Even so I do still have the occasional 'brain fog' and plenty of bursts of overheating but no palpitations.  Now I'm no longer off the scale hyper as I was in Sept, Oct, Nov, Dec 2017 mood swings are not an issue.  In short I feel lots better although the double vision is certainly an ongoing problem.

I am not an expert on this subject and I can only say how this has affected me.  I just hope you feel lots better soon and that this helps.

Rosie