Guillain-Barre Syndrome GBS

Brain and nerves
1

I was struck down by GBS seven months ago. I just collapsed in the street. No warning. I didn't know what was happening. I was scared. Got myself to the doctors straight away where he admitted me to hospital straight away. Just had over a week in hospital (I was lucky) but then as I came home, I was on my own to cope with this condition or should I say inconvenience. That's when the fun started. I had to have carer's come and see to my every need. Also had to have meals on wheels. (Only in my 50's, I found it so degrading). I have always been independant, now I was forced to be looked after. It's like starting all over again. Learning to talk, walk and do things. Almost going back in time when I was a baby. But, here I am back on the computer, talking, walking (very slowly, still with a stick) but getting there. It's almost like I was doing too much at the time, and it's slowed me down. But, now I take each day at a time. Life's so presious.

For anyone out there just starting to get back to normal. Just keep going and never look back.

2

How are you feeling now? Are you fully recovered?

I had Guilliam Barre in late 2002 at the age of 19. I had a very severe case and was in hospital for 6 months. I found the few years after I came out of hospital very hard, but was just relieved to be back in normal life. My doctors told me that I would never walk again, but I am pretty much back to full strength now.

The only side effects that I have is extreme fatigue and recurrent pins and needles. Does anyone else get pins & needles?

I hope you are feeling much better and have made a good recovery.

3

i still get pins and needles occasionally, i had it when i was 2 yrs old and after had reoccurring polyneuritis all through my childhood and teens which the doctors said was a strand of GBS. I'm now in my 30's and completely better but sometimes i get pins and needles and cramp which i was always told was from the GBS. sometimes if i am tired i can get a bit wobbly and my eyes mite go a bit wonky but nothing like it used to be, i hope you make a full recovery!!!

4

hi, i had this desease in Std 4 and i am 37 today. i recovered after six months to a year. i just want to know are there any patients that had any side-affects after that. from that time till now i am always shaking in my hands and if its hot its worse. are there anything that can help? what side affects dis you get with this desease?

5

Afternoon all,

I was diagnosed with GBS 2 weeks ago, after 2 separate nerve conduction tests. It is the most frustrating thing I have ever experienced. The worse thing is the good days followed by the bad ones. I have a "mild" form of the disease/syndrome, have never been hospitalised and can just about hobble around the place. I was advised that I should not undergo any treatment as there "are risks attached" but today is my worst day in a while and it's starting to get on top of me. All usual issues, tingling fingers, bad balance, fatigue etc, I wanted to know is this normal i.e. good days and bad ones. I'm going back to the Dr's to request physio/hydrotherapy this week but just want to talk to other people who have experienced this beast before.

6

Hi All,

I was diagnosed with GBS when my baby was delivered by emergency caesarean section. The name GBS still gives me the shivers as I think how cruel it is. I lost power in my legs back in July 2011 and within 24 hours it spread all over, resulting in complete loss of my limbs and I had to be tubed for 8 weeks in ICU and 4 weeks in ward. I was then most to rehabilitation for 12 weeks. I got great medical treatment including intensive Physio in rehab centre. The positive side is that I've made a pretty full recovery. My foot drop which not every patient who is diagnosed with GBS gets, has been the main obstacle, as it made learning to walk extremely challenging. I get tingly feeling in my hands and fingers get tired if using iPad for a number of hours. My consultant puts ths down to fatigue. While fatigue was pretty bad 8 months prior to now, it has pretty much gone. I'm just delighted to have recovered as much as I have, and whilst time has gone fast, it also feels like the longest time ever to get to this stage. Looking forward to the day I can wear my heels and am keen to return to the workforce to help in supporting my partner and little girl (whose nearly 2). Great support from family and friends was a major factor in keeping me from getting depressed (although I did have my off days).

Interesting to read other peoples stories

7

Paul, are you still on this thread? I'm desperate for help and feeling very frightened. I definitely go backwards and forwards. I'd love to hear about how you are doing!

Thanks, Mel

8

Hi, 

Yes I'm still on here. I showed incredibly good results after high dosage of immuno therapy (Prednisilone) but have come close to relapsing when I dropped from 60 eventually down to 10mg. If it happens again I was be hospitalised (according to my Neuro) to undergo IVIG. Hopefully it won't come to that. Every day is different, it is scary but keep in contact with your Neurologist. Try not to overdo anything as fatigue is exhausting and it takes you a lot longer than before to recover!

Best of luck.

9

Wow Paul, I honestly didn' t think thay you would get back to me, so first of all thank you very much! I gather you were diagnosed over a year ago (?) so I'm very sorry to hear that you are still struggling. I'm going to apologise in advance for the barage of questions I have for you. I haven't really found anyone to turn to as the doctors seem somewhat uninformed.

First of all, can you walk now? If so, how long did it take to regain your ability?  I more or less my lost my ability to walk (I hobble, as you said) more than a few steps 2 months ago. My legs simply buckle or go rubbery.  The odd thing is that I would seem to make progress and then if I "overdid" it, boom -- they would go backwards (sometimes a LOT) again.  This has happened a few times now. Did this happen to you, too?  It's incredibly frustrating and depressing. I have some odd sensations in my arms, too but mostly just an awful burning (which I frequently get in my legs.)

Did you have abnormal nerve conduction tests?I know that some doctors diagnose GBS by omission. I alos have pain in my ligaments, esp. behind my knees and I try to hard to mix moving my legs a bit so they don't get weak and resting them so I don't make things worse.  

I have been blessed with 5 children and an incredibly supportive husband but I spend so much time crying these days as I can't begin to care for the youngest two -- so hard.  I have a wheelchair, which helps and on good days I can walk 20 steps or so holding on to it.  

Thanks again for responding. Here's wishing you a full and speedy recovery!

10

Hi, I should probably clear some things up straight away. I was initially diagnosed with GBS after 2 rounds of NCS (results of which were abnormal, scanty and absent) by a Neurophysiologist in LGI (Leeds) but my condition worsened and after several other examinations, and MRI scan, 2 ultra sounds, a lumbar puncture and several blood tests (carried out between LGI and the Heath Hospital (Cardiff)) it was confirmed that I have CIDP. I was immediately prescribed high dosage immuno therapy (60mg) which took 4 months to work.

I never suffered pain or sensory loss. I could always feel everything, just not move.

I can truly appreciate how you feel, as I would hobble along and then fall over, bruising/cutting myself. It was terrible. I went from being incredibly active, very strong, very fit and very healthy to nigh on bed ridden, not able to use my hands, lift my arms, or lift my legs. Once the drugs started working I slowly made improvements back to being able to (very slowly) walk. Only recently have I become able to properly jog again, although the fatigue is something that still wipes me out. I am now quite capable of walking 2 - 3 miles on the flat, although steep inclines take me a lot longer (whereas before I could sprint up them).

I have started weight training again, but am currently only lifting half the weight I use to be able to, without the fatigue overwhelming me. I have terrible trouble remembering that I am ill, and have overdone it several times, paying for it in aches, pains and reduced motor function. The best thing you can do is rest. Do what you can, and yes, some time be prepared to push it, but know that the next day (or 2) will involve a lot of resting.

The closest I came to relapsing was after my stag do. I although I dont avoid alcohol now, I don't drink heavily, and I steer clear of high volume alcohol as it is a neuro toxin. I truly believe the reason for my near relapse was me pushing it too hard (2 very busy and heavy nights of drinking and paint balling).

As I say, the Prednisilone prescribed worked well for me, and there are plenty of other options that I can move on to when it comes to weaning off them. My symptoms started manafesting around Christmas 2012 and I was diagnosed with CIDP in June 2013, I was back in full time work in November 2013 (where I still work). The doctors thought I should have phased myself back in, but I don't see the point in doing things by halves.

I started writing a blog about it but slowed when I started showing improvements, and stopped completely when I started work. I should really carry it on, but it's a long tale that I have to tell.

My advice is as follow, unless you have absolutely amazing GP's who know whats wrong with you then deal with the as little as possible. They are paper pushers who do not deal with our condition regularly enough to have any great knowledge on the matter. My local GP Googles it in front of me and my wife. I was absolutely furious, and refused to see him again.

I now keep in monthly contact (by email) with my neurologist with the express knowledge that if anything goes wrong, he wants me in hosptial right away. My advice as above, only deal with neurologists. Ask around, and make sure you find a good one for your region.

My wife and family were, and are an enormous support to me, and I know I wouldn't be here in the position I am in today without their care, help and support. I am glad you have such a great support system there for you too. I wish you a speedy recovery, it is possible, and dont give up until you've spoken to a neuro and got the answers you want.

All the best - Paul

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11

My goodness, Paul -- what an ordeal you have been through! I am thrilled to hear that you able to walk a few miles now and even jog!  I can't even imagine walking to the end of my driveway in my current state and some days, the depression really does get the best of me.  I was just like you, super active, fit and healthy. Walking has always been one of my favourite hobbies and stress relievers, so straring at these four walls all day is tough.  I've read about CIDP and I'm so happy to hear that there are medications that can help to combat it. I;ve also read that it can go into remission, so here's sending you some positive thoughts and prayers!

As for me, well I should tell you that I actually live in the US now (I'm from the UK)  I joined a support group here, but noone ever seems to be on it.  The doctors don't actually know what is wrong with me, although GBS has been thrown around.  My symptoms were textbook for GBS, sudden onset starting in my feet, then within an hour I couldn't walk as my feet and lower legs "just weren't working." They felt wooden and rubbery and my legs ket buckling.  It rose futher up my legs in the next day or two and of course I was put in hospital.  I had 2 MRI's (neck and back) as well as a spinal tap (that headache afterwards was not fun!) and a TON of bloodtests.  They meant to do a nerve text also, but then didn't and sent me home!  I just had one a few weeks ago and it was normal.  The only thing I can think of is that if it were GBS, my nerves healed in those 2 months but my body hasn't caught up yet?? I don't even know if that's possible.  I will say that the anxiety of not having a firm diagnosis is as bad as not being able to walk.  My anxiety is through the roof, which is tough all around.  It's seems absurd to me that I suddenly couldn't walk and still can't and noone knows why.  

Anyway, I've seen 2 neurologists, my GP and most recently a Physiatrist and they are all stumped.  I'm trying to find another neurologist but noone here is currently taking new patients.  I'll keep trying to find another neuro however.

I think that your blog sounds like a great idea! Goodness knows there are many people out there who would love to hear about your successes!  It really is so great to hear that you are "getting back in the swing."  Here's wishing you all the best and again, thoughts and prayers for a full remission!

Take care, Melanie

12

Hi Melanie!

I just joined this site when I read your discussion. My situation sounded a lot like you. I had what they think was a mild case of Guillain Barre though I have never had a confirmed diagnosis. I had 6 MRI's and 2 EMGs that were normal so that ruled out other disorders but never confirmed GBS. I also had a spinal tap that resulted in a hospitalized migraine. Not fun! I live in the US and have the best neurologist in my area. I am 5 months out with this. It started in my toe with tingling then moved up me leg with numbness that caused weakness in both of my legs along with my arms/hands to a lesser degree. My back,neck,and head were eventually affected somewhat. Things are much better now. Great PT and symptoms continue to improve along with my strength. I never have gotten the official diagnosis but my Neuro refers to it now as a possible mild GBS. Hope you are doing better. This has been a frustrating journey but I am feeling more positive and stronger these days! Hope you are! 

13

Hello Tarhealing! And thank you so much for your message! It's nice to know that I'm not alone out there, although that said, I wouldn't wish this on anyone.  It is so frustrating, isn't it?  I've read more than a few accounts where people were diagnosed based on symptoms alone and I do wonder if a different doctor would have called it GBS from the get go? They apparently did my spinal tap too early (it can take up to a week after onset for the protein to show up and they did it on day 2) but when they offered a second one, I ran the other way (well....wheeled myself....I've discovered that you can't make a dramtic exit in a wheelchair wink  And yes, the headache was BRUTAL!!  It took 2 months for the EMG which was ok, of course, but every time I googled my onset or symptoms, GBS came back EVERY time!  I think for me, not having a firm diagnosis has been extremely difficult.  I suffer with anxiety at the best of times, so when I would be out in my wheelchair -- say at the school for an event -- everybody would want to know what was wrong. The minute I'd say "They are not sure," it was always the same response -- "Really? Have they checked for MS? Are they sure it's not ALS? A brain tumor?" No joke. For someone with anxiety issues this was NOT helpful! Anyway, God willing (and I don't want to jinx anything) things are slowly improving. And I mean slowly.  The pace of recovery is so hard to deal as it's painfully slow and I keep reminding myself that I have to be patient. Some days are better than others and it's not unusual that I'll have a day or two where I can "push" my legs a bit and then a few days where they don't want to do anything as they feel as if they'll "go" again. Did you have this experience too? It can be so depressing that I just want to disappear for days on end.  I'm used to being so incredibly active and seeing how exhausted my husband is looking after the children only makes me feel guilty, too (he's been incredible all along.) Soooo frustrating! Anyway, I'm so happy to hear that you are improving! Are you able to walk unassisted yet? May I ask where in the US you are? We are in PA.  Anyway, all the best and hang in there!

Melanie

14

Hi Melanie! I could actually walk unassisted the whole time but it was very limited. I thought I was going to be paralyzed eventually because I was struggling pretty badly to walk. I had anxiety too when this was hitting me at the beginning because I didn't know what was happening and how bad it would get. And I had a few doctors along the way think that I was making this up because my scans and labs were not conclusive although my symptoms were. My lowest point was when my speech was affected and an ER doctor thought that I was doing this on purpose because I was able to pronounce some words more clearly but as I would talk, my speech would slur-my mouth felt so tired.They treated me like I was stupid and drug tested me. It was so disheartening! Most of the doctors I ran into early on did not understand why my symptoms jumped around so much. They said that this did not make any sense. They did 6 MRIs on me and 2 MRAs. They said they had to rule out MS, ALS, and tumors-the wait was horrible but I knew my symptoms were an ascending attack.  They did my EMG too early (1st week) and probably too late (after I had been recovering).  I  was fortunate to get scheduled for PT with someone who had treated a couple of GBS patients. It has been the best thing that happpened for me through all of this.  I have been able to get back to work and am jogging again. I'm just dying to race again even if it's a small race and I'm slow. I just don't want to over fatigue myself so I'm waiting until I know that my body is ready for it.  I laid around so much when I first suffered with this because I was fighting so many symptoms attacking my body. It was overwhelming and terrifying. I have been so happy to rejoin my life again even though I am still recovering. Oh, and I'm in NC. I planned to go to John Hopkins to search for help & a diagnosis when my symptoms started to back off and I started to finally recover. When did you first suffer with this? I hope your pace of recovery speeds up!

15

You're jogging?! Oh, I'm so jealous! God wiling that will be me soon enough.  I'm such an active person usually and avid walker/hiker with the kids, that this has been so brutally hard. Not that it would be fun for anyone , mind you. I was so excited today because I actually walked on my own (about 15 steps) from the bed to the ensuite this morning. I no doubt looked ridiculous as I waddled a bit like a duck -- but still a small victory. My legs hurt a lot and still feel quite leaden, but bit by little bit. I try not think about the fact that I couldn't walk into the grocery store or play in the park if I wanted to -- things I usually wouldn't think twice about doing. But I am quietly thrilled that there seem to be some small victories in it all. (God willing -- still don't want to jinx anything!)  I was never truly paralyzed, but at my worst, even the walker was virtually impossible as my legs simply buckled and "didn't listen" to me.  Baby steps all the way!!  How long until you went from barely functional to being able to drive again, etc? Or walk reasonably around the house?  This all started on Aug 26th for me -- so about 2 1/2 months ago.

I know what you mean about the doctors not believing you sometimes. When I was admitted I told this one doc I was worried about GBS (it had already spread from my feet to my knees) as I said I had been reading about it. At that point he smirked and very condescendly said "Oh you've been reading about it, have you ? So now you are "getting" the symptoms?"  The next thing I knew, he sent in a social worker, who told me that the doctor had said I was feeling "overwhelmed" and might need some counselling.  I've never been so angry!! By the next day, the near paralysis had moved to above my knees and into my arms -- so frightening! All of this and a doctor who thinks you're making it up.  Ugh -- anyway, on  happier note smile  my physiatrist has been great and hope will start me on PT this week.  It sounds as if it has worked wonders for you!  

Have you found that the quality of you pain has changed over time? It started with a lot of nerve pain for me -- severe burning was just the worst! But these days it a deep, achy pain, deep inside my calves and a lot of ligament pain, too. Just a reminder that I'm not quite there yet.   I try so hard not to get down and depressed, but as long as I see some improvement, I'm trying to keep my head above water. I know how blessed I am that it wasn't worse!  And yes, I think my pace of recovery is actually speeding up. Did you find that, too? I seemed to be on a plateau for the longest time and then these past 2 weeks it seems to be improving.  Did this happen for you, too?

And NC! Of course! I should've known from your name wink

All the best,

Melanie

16

Hi Melanie!

I'm so glad you are improving! I plateaued for a long time it seemed then started gradually being able to do more too. Everything started for me around June 15th a couple of weeks after I received a Tetanus Vaccine. One month later, I was at my worst with slurred speech, difficulty chewing, burning pain, and weaker overall. That's about the time that I had more trouble with pressure in my head and face, difficulty turning my eyes and blurred vision.  I could not drive for several weeks because I was too weak and my vision was bad even though my optic nerve was perfectly fine. After 2 months, I was driving again though my leg would shake as I would hold my clutch in at lights (at first I was discouraged but then I thought this was probably good exercise).  I made it back to work about mid August because my vision was no longer impaired and I was regaining my strength. It was hard!  I stand all day and the only thing that got me through 2 work days was the PT that I was getting twice weekly. It would take me about 4 days to recover from working 2 days then after I worked my back would tighten and I would have to work to stretch it back out, rest, get better over a few days, then work again and mess it back up. PT really helped me to break the pain cycle that my body was trying to get into and work exercise into the mix without over fatiguing. 

When I first got to PT about the time I went back to work, my pain level was about a 7 or 8. My pain has changed tremedously. Now only around a 1 or 2 at worse. It is amazing! I really toughed out much of the pain only taking ant-inflammatories because I did not want anything to impair me when I went back to work or cloud my recovery. Early on they gave me a muscle relaxant but that never really helped my symptoms because my muscles were already weak - I didn't need them to be weaker. Massage helped me a lot along with PT. Stetching my dura through PT made the burning in my back eventuallly stop.  My back was tightening to compensate for the weakness andlack of endurance.  I think that my recovery began turning around after 2 months and really took off after 3 months.  It's been slow though. I started lifting a 3 pound weight a couple of times with each arm every other day at home. I tried to run on the treadmill for about 2 and a half minutes but that was too much. I tried the elliptical but that was worse.  The best for me was the recumbent bike with no resistance-so easy on my back. I would just do that at the gym for less than five minutes at first then I could barely walk down the steps to my car. My PT had me to switch to walking in the pool. At first it was hard for an active person used to running races-5ks, half-marathons, and marathons-to accept only walking in a pool but it was what has gotten me back to being able to jog again with minimal pain. She told me it would be a work out and she was right! Felt like I had run a marathon. Just less than 5 minutes walking back and forth for 10 feet or so was a work out. Then I got to start doing serpentines(like making s's) walking forward and backward in the pool. I finally got up to 20 minute sessions. If you first start, make sure someone is there with you in case you need help. It's a tough workout. It is a safe way to strengthen the core when it has taken a hit like ours has. Then I started out walking small distances, first in house, then down my street, then jogging. I have over done it and had set backs at times but shake it off, rest and recover, then try again at a slower pace. I am running a race on Thanksgiving Day with my dog (1 & 1/2 miles)-I'll let you know how that goes. I am just dying to run (or jog) a 5K race but dont  want to try it too soon. Sorry to go on so long but I hoped to share with you so that I might could help. It's a miracle that I am even where I am today and I never would have believed it. In the beginning, I was so limited with walking around my house especially with all of my stairs - so many doggone stairs- I was basically confined to my couch and struggled to walk just to the kitchen! When do you start PT? Good luck! Just don't give up! 

17

I should start by saying thank you as always for getting back to me. Seriously. And never apologize for writing too much. Everything that you had to say was so helpful and I'll certainly have to push the PT aspect and see how that goes! We belong to a YMCA (I haven't been since August sad ) but they have a lovely pool, so perhaps one day soon I can give it a go? I'm not too sure if I'm there yet as I fear my legs would just give out, but that said, it would be a good workout for my arms!  So happy to hear all that you are able to do now. I hope and pray I follow in your footsteps!  I actually had my very best day so far yesterday. I managed to walk several times on my own (maybe 5 - 10 steps) and I could crawl a bit, too. (I know, that sounds funny, but several weeks ago I tried to crawl so I could play with the little ones and simply couldn't do it -- so nice to know I can crawl a bit now. And it must be good exercise, right?  wink  That said, my legs were in terrible pain last night and I am definitely a lot worse today -- pain, feel wobbly and shaky all over and subsequently very depressed.  It sounds like this is how it would go for you, too? I mean days where you pushed it and saw improvement followed by set backs? Did you find that on your bad days, all of you felt bad?  That seems to be the trend with me.  I try to keep telling myself that they have not gone back to zero (as they used to) and just to rest them, but I'm always so tempted to make them work just to make myself feel better (way to risky, I know.)  On the good days, I finally feel like I will get better, but the bad days like today always get me down. Sigh. Oh well, time to count my many other Blessings! Oh, and thanks for the tip about the recumbent bike. I'll have to give that a go, too!

I think that your goal for Thanksgiving sounds terrific! What kind of dog do you have? We have the most wonderful white German Shepherd on the planet, but for some strange reason she will only go for a walk if I'm present, so needless to say she's getting decidedly pudgy these days!  My husband and children get her outside a lot of course, but still not the same thing.  

My dream for Thanksgiving would be to be able to walk to mailbox on my own. We live in a very hilly area however, so it might be a challenge (our drive is very steep.) Still, that will be a day when I would love to get the mail....oh, not that there would be any that day...Or maybe just be able to hobble around the house on my own? That would be amazing!

And I hear you about the stairs! We have stairs everywhere, too. I can slide down them, but getting up is tricky.  My  poor hubby has carried me up more times than I can say (then the children want a carry, too!)

Well, all the best as always and keep me posted on your run!

Melanie

18

Hi Melanie!

You need to keep going at it slowly but keep working at it.  Make sure when or if you do the pool, that the water is cool.  They told me to stay out of the hot tub because the warmth makes the symptoms worse.  I have found this to be true for me.  I think the cooler weather is helping but too cold is bad too.  The pool supports your body so it helps but you should definitely have someone with you.  It really made me feel normal to be able to walk so much better in the pool.  You may not be ready for it yet.  You can swirl your arms while you walk in the pool too and get an arm work out when you are ready.  

After I did anything it seemed my legs would hurt more, twitch more, and I would feel much more wobbly.  That's great that you did the steps and crawled!  I know how hard it is to do activities again no matter how small they seem.  Those are huge steps forward!  Don't get depressed though, you are improving.  I did have setbacks every time I did anything but that has gotten better and better for me.  So, I bet it will for you too! Just think of it like a bouncing ball.  The ball will bounce up (bad days) but it will keep bouncing lower and lower but it goes up then down.  I had to keep reminding myself of that.  I can remember the day I could whistle-seems dumb and insignificant but it wasn't for me.  Oh, and I shot some baskets at the gym when no one was around last week just to see if I could.  I did but boy were my arms tired later. I'll try it again though sometime soon.  I also went to my first movie in the theatre last month.  Before I could not have done that because I could not sit up that long.  

I have a black and tan coon hound who is getting ready to turn a year old.  I couldn't take her out much this summer but my daughter was home from college.  Thank goodness she could because my puppy has so much energy and will eat the house if she doesn't get to run.  I can remember my first trip to the mailbox.  I even felt strange when I finally did walk further down the street like I needed someone with me in case I could not get back.  It's been hard to learn where my limitations have been at different times but fortunately they are less now.

You will get better.  Celebrate the small triumphs but don't let the setbacks take you out.  They are temporary.  I think your body will respond like mine because of the past working out.  It seems to really help with recovery.  I can't wait to hear about your first trip back to the mailbox and hope you have lots of mail!  Keep your spirits up!! And feel free to ask about anything.  Before you know it, you will recognize your life again and actually forget the GBS more times than not.

I'll let you know how the run or slow jog goes! Happy early Thxsgiving!!

19

Thanks so much, Tarhealing! And a very early Happy Thanksgiving to you, too! I think I shall have to come back and reread your message on all of my tougher days.  I know that time and patience is of the essence, but it's just so darned difficult some days! No doubt I'll have more questions for you (sorry in advance!) but I look forward to hearing about your Thanksgiving run! Please keep me posted wink

Melanie

20

Good morning! So here I am with yet another question for you (sorry, that didn't take long wink ) I was just wondering how exactly your pain changed over the recovery process, if at all?  By that I mean, that originally my pain was mostly intense burning and an odd "buzzing" sensatioj in my legs that would be just brutal.  These days the burning has almost gone, but I have a lot of deep tissue pain and ligament pain, at times it's so deep it almost feels as if it's coming from my bones.  This may of course be my muscles complaining a bit, too! Did you pain change like this also? I'd like to think it's all part of the recovery process and that it's actually a good thing?

Anyway, I forgot to say that I love coon hounds! They are absolutely gorgeous dogs and so sweet and gentle, but super energetic ( as I'm sure you know!) Your pup will no doubt be thrilled to do a mini race with you....then onto the next one and the one after that!

As always, thank you so much for your encouragement and kind words...some days are just so difficult (although that said, it'd always busy with 5 children!) and everything that you said really do bolster my spirits! And congrats on the whistling! Maybe when you finish the race you can whistle a victory tune...wink