Had for 2 years off and on. Neurologist has me on that nerve medicine everybody takes. Works during the day but makes me sick and tired. At night it fires up no matter how much I take and can't sleep. Can't take this much longer. I realize there are people with worse things but this is in the picture! Any advice would take. Thanks.
Hi AEP
Have you had an MRI? Do they know you have compression of your Trigeminal nerve by a pesky artery?
You need to know this before your neurosurgeon (get referred to one as soon as you can, you won’t regret it) can list the options available to you for surgery etc and give you a good idea of the probable outcome in your personal case.
I was on industrial amounts of tegretol for a long time but MRI gave a neat diagnosis and MVD operation was a great success. I have a life now.
Good luck to you and let us know how you get on.
Cheers
Big D
Hola - desde que me diagnosticaron con NT, me han recetado varios medicamentos anticonvulsivos. También me enfermé, perdí el apetito, etc. Además, fui alérgico a un par de ellos. Tuve que dejar de tomarlos porque el medicamento me empeoró. Tampoco ayudaron con el dolor nervioso. No es un buen informe.
had MRI, take tegretol like candy. Want next step. what is MVD operation and can any neurosurgeon do it? worse thing I have ever had.
yea tired, sick and don't work very well especially in the evening.
Todos podemos relacionarnos aquí con lo increíblemente terrible que es el dolor de la neuralgia del trigémino y los efectos secundarios/beneficios, etc. de los medicamentos.
Tu publicación me impactó porque me recordó los primeros años del viaje con la neuralgia del trigémino... que aún continúa... pero el principio es duro. A veces me concentro tanto en mi dolor actual/procedimiento, etc. que olvido lo DIFÍCIL que fue llegar a este punto, así que gracias por humillarme allí. La mejor cosa que he aprendido es estar agradecido por lo que tienes y mantenerte tan positivo como sea posible incluso cuando quieres cometer un asesinato.
Suena como si hubieras dado el primer paso. Tu neurólogo puede ayudarte con información sobre opciones después de leer tu resonancia magnética. También recomendaría la Asociación de Dolor Facial para obtener información, especialistas y recursos de fondo.
Medicamentos: hay MUCHOS y todos reaccionamos de manera diferente, por lo que nadie puede realmente recomendar el "mejor" para ti. Todos tuvimos que sufrir a través de prueba y error. Apesta, toma mucho tiempo y probablemente nunca encontrarás uno que no tenga efectos secundarios molestos; pero esperemos que uno que tenga los menos/ayude lo más posible como puedas rezar por ello. Lo siento por lo que te ha pasado. Mantente positivo y mantennos informados.
Thank you, going to acupuncture right now, not to high on results. This tegrinal or whatever it is is losing its effect. You say there are other meds? Hope to get neurologist to listen when I go back. I can live with it during the day. It is when I try to sleep it drives me nuts.
Hi AEP, I have the same problem, once I'm in the middle of an attack sleep is impossible. I was on Carbamezapine which did help a little. What it did was make the attacks less frequent. Once I was having an attack taking more of the Carbamezapine didn't do anything. It helped me sleep pretty good but after about 8 months I started feeling nauseous all the time and stopped taking it. I also take Lyrica on the day of an attack, it gives me some mild relief and does help with sleep as well. I was asking the doctor about sleeping pills and that's what he prescribed. I still think if I had a good sleeping pill I could just sleep through the attack but for some reason doctor's would rather not prescribe them.
Good luck, I hope you can find some relief.