Hi all, new to the forum, will try and contribute myself.
A very quick break down.
1. Headaches for 11 years, in middle of eyes and forehead ( Dizzyness, Lathergy, Blurred Vision, Squinty eyes, Pain 
2. Two Sinus surgeries and no improvement ( Alergy testing displayed nothing, blood tests nothing, acupuncture useless)
3. Tried every spray / anti biotics / Pills no improvement
ENT have now discharged me as the CT scans show an improvement in the sinus area, but I feel exactly the same.
Can anyone offer me support and advice ? Really confused / I''m not sure where I can go next.
Thanks for reading I will repay by feeding back on others.
Hey.
Sounds exactly like me but I've only had 1 surgery add burning eyeball to that list and I have every symptom
Sorry I can't offer you any advice as I've been living with this for 15 years and I'm no further forward.
I'm really hoping someone can give any advice that would even make a small difference.
Rachel X
Hi, did you get the cameras up the nose? Also what surgeries did you have?
I've had headaches for years, in addition to your areas, around the eyes, nose and sometimes upper molar toothache which is a nightmare.
No allergies although turbinates are big, they said it was a nasal spur hitting a turbinate - this was only diagnosed through the camera up the nose. In the past, cat scans revealed nothing.
If its bad, ie teethache, I tend to get antibiotics.
I did have surgery years ago, but they only tried to open up my nasal passages but it didn't really work.
They (second hospital) are saying an operation to correct the spur is needed but I've been on the waiting list for years!
It was the camera up the nose from the second hospital that helped the most because at least it proved I had a reason for my damn headaches! The worst thing is people not understanding your condition and also of course nothing working!!
I have been suffering from chronic sinusitis for about three years. I have allergies, dust mites, cockaroach, and grass.
I have turbinate hypertroph which the ENT says is caused by the allergens.as you see the allergies i have r every place.
My meds r zrytec, singular and dymista at this moment i have just returned from getting my allergy shots.
No surgeries because i have not heard of anything good coming from it. Trying various supplements. Just took out the rugs in my apartment. Increasing my neti pot usage. Bed and pillows r covered. Also checking for mold in my apartment hearing that it can excerbate sinus issues. But u r not alone. Right now i have nothing
Goodness, this is a horrible condition (I have others as well) mine started after a head and nasal injury, I have posted elsewhere as the GP has dismissed me without further investigations and said "nothing will work - have to learn to live with it". I see that may well be the case but I'm miffed that I have no investigations just in case there is a cause or other dx. I may move to another practice as this appraoch is getting old now - every time it is live with it, take otc remedies etc. Really hard to get any referral.
I cannot offer anyone else advice as I am working through the advice others have given me. Currently having teeth checked for infections in case they contribute - I had some damage to front ones in the fall. I have digestive problems and am informed that this can also lead to sinus issues from silent reflux and such.
I also suspect some underlying allergy or reaction to pollutants as a child I did have a lot of catarrh which I grew out of unless had a cold and the GP tried allergy shots at the time which did nothing much and advised to live near the sea air! Now alas, I live really far from the sea and in a built up area, not from choice.
Sorry that you have no success with all your treatments Jo. Since I have become ill I realise that medicine still has a long way to go with some conditions. If I make any progress I will also post and share. Take care.
I wish I could also offer you some advice, but it just seems like pot luck weather ot not I get an episode or not...
Rachel abit more about your self.
Do you work with Pc Monitors ?
Do you smoke ?
How much Alchol do you drink ?
Are there times when it's better than other times ?
Hi there, I had 2, one was a septoplasty and one was to open the passage into the sinus and remove pollups.
I couldn't agree more, it's like she took one look at my scan and said yep your all better nothing to do with sinus,
Is it possible the scan was taken on a good day when they were clear ?
Are there any tips you have about dealing with them ? Any sprays, anything really finding it hard at the moment.
I feel your pain it can be hard can't it.
Are there any times when it's better than others ? Any sprays you find good ? Or suppliments ?
If i'm honest surgey has probably made it worse, so I wouldn't advise unless your sure it will help.
I agree totally, good luck with your battle.
Also another questions guys that have replied.
Do you get colds / Flu ?
Do you get any nasal drippage ?
I don't get ANYTHING out of my nose at all, which I find very strange if my sinuses are in good shape as the consultent has lead me to believe.
Hi, with the septoplasty was that because you had a deviated Nasal spectrum / nasal spur? That's what I'm on the waiting list to have because of my nasal spur hitting a turbinate.
Omg, me too - never discharge!!! I always wonder about this as sinusitis is usually when you get green stuff ie infection whereas mine is all internal - when I have an infection it's characterised by tooth scheme and eye pain on the left side, where the nasal spur is.
I rarely get colds but when I do sinusitis is worse! Asthma too but nothing like those damn sinuses.
The fact that we have dry conditions suggests they are not working properly surely!
Hey Jo
Same here. It's pot luck.
I work with a PCs. About 8 hours a day
I don't smoke.
Occasional drinker but I know alcohol makes it so much worse
I've tried cutting out dairy. Made no difference. Although if I eat cheese it's worse
I drink gallons of water as I heard that helps. It doesn't.
I took an antihistamine for months. Didn't make a difference.
Evening primrose. No improvement.
Steam. Sprays. Antibiotics. No improvement.
The surgery was to help with drainage. But my nose is completely dry.
It's hell. The only tiny bit of relief I get is when I lye on my left hand side. It helps the pressure a bit.
It's just a constant pain. It really interferes with my quality of life ( I'm sure u know what I mean)
Sorry this post is so negative. It's a miserable thing.
Rachel x
I meant to add. My surgeon has said the next step is to treat me for migraines. I really don't think that's what it is. But I'll try anything x
It some times better at night, the worst time r upon waking up. No matter what time. Even when i take a nap. Upon waking up i feel the pressure as if the mucous is bum rushing my nasal passages,pressure right over the nose in the forehead area,teary eyes, nasal drip which can last from 1-3 hours.
No sprays have worked, the supplements i have not seen anything yet. But i hear they must be taking over a period of time to help build up the immune system. Evening primrose and grapefruit extract is what some have mentioned
I am at a point that i can not tell if it is a cold r not. I do get a lot of drainage. From the nose and post nasal
I'm sorry to hear that, I understand exactly how you feel.
I went abroad this year and had 7 days off the headaches was bliss, still can't figure out what made them better.
Stress ? Atmosphere ? Heat ? Pollen ? Allergies ?
I'm in the middle of a really nasty bout of it at the moment, blurry vision, dizzy, brian fog.
Do you have it as soon as you wake up ? Or does it come on more as the day goes on ?
Yes deivated sept and polups, I hope it works out for you, intially after my 2nd op i noticed an improvement had a good xmas, but since then it's been awful.
Good luck, keep me posted on your results.
Mines usually the op to yours, wake up feeling ok, then as day goes on it gets worse and worse.
It's odd isn't it, I used to get colds alot, I think i still get them but nothing comes out at all, it just gets clogged up in my sinus.