OPINIONS PLEASE
I have tried and tried to reach a second opinion via pediatric haematologist but keep hitting road blocks as I am told the paediatric heamotolist team I see if the only one in our state. So no second opinion unless we travel.
My daughter has hereditary sphereocytosis from me. We have always generally been told that in my case my spleen should have been removed earlier then it was (3 years) as it caused complications which resulted in heart murmur and spleen 15 times its actual size.
Now with this I was hoping to have my daughters spleen removed early on in life before it had the chance to cause any of these problems in my daughter. However I was now told no and to wait it out and see how she goes... She now has gallstone and is having hole gallbladder removed, she also has a heart murmur now. I asked if she had spleen removed back when i wanted it done would she have these problems now?? the answer they said is no she would not have gallbladder or heart murmur.
even with that they still want to leave her spleen in and just remove the gallbladder. I worry about further complications arising with spleen the longer it is left in....
what would you do ? have you had spleen removed and gallbladder at the same time ? How would you go about this ?
please and thank you