Hydrocele May/2021

i just had a right side hydrocelectomy on 5/12/2021 I've heald up very good and i like the size its normal now and i dont have to be embarrassed about walking around with a big buldge poking out the front of my pants trying to hide it... i had the hydrocele since i was 17 but found out it was a hydrocele when i was 25 its got bigger since i was 17 but im 30 now and just got it fixed got it out the way... im very comfortable now my stitches heald and i only have 1 problem... it feels as if my testicle is sewed to my nut sack where the incision was made and i dont like it and it looks and feels weird... does anyone know if it will detach and hang again like normal or what? also i use neosporin on the incision where the stitches was and a wound cleaning spray from cvs that kills bacteria and staph and other infections, so it wouldn't get infected which is probably the reason i heald so quickly after surgery... my only problem is my testicle stuck to my sack sitting up... does that resolve or what?

Hey Lence,

When did you get the surgery carried out? I've read various forums posts from here and elsewhere and the general consensus is within 6-months post surgery.

I read that the 'stitching' you are experiencing is what the surgeon does to stop the testicle from acting like a cow bell during the healing time. But that the stitching should break down.

I am in a very similar position to you, except I still experience a lot of discomfort and it's too sensitive to move in certain movements or sleep on my stomach. Walking is also an issue for me.

Am I right in thinking your testicle is feeling attached really high up compared to your other one?

I don't want to scare you unnecessarily, but I also read a few guys saying they experienced the same and they left it too long and to deal with it and the scar tissue from the testicle sack itself adhered to the inside of the scrotum permanently. I phoned my GP a few weeks ago and explained my situation and he said he doesn't know the answers fully as it's not his speciality, but that he knows the right people to ask about treatment for the scar tissue that doesn't involve another invasive surgery. He mentioned a water treatment and I had asked him about rubbing directly on the scar, but he couldn't confirm anything at the time and would get back to me.

Keep in touch and all the best, you're not alone.

i just got surgery 5-12-2021 everything went fine everything feels fine except the left nut hanging up on the stitched incision and it does feel weird in certain positions and movements especially when i try to sleep on my side... i emailed my surgeon and he's going to schedule an appointment for me to come in for an examination but he said it takes months to go back to normal but i want to explain in detail i might even get 2 bags with 2 ping pong balls and make an normal example and our example so he understands and i will super glue one of the ping pong balls to the upper part of the bag to the fake incision... ill keep you updated when i go to my appointment soon

"right nut" (right side)

also if the surgeon doesn't understand what we are trying to explain to them then it makes you wonder whats really going on with the problem at hand.

Hey Lence,

Yeah, it really makes you think what is going on because no medically-orientated person I have spoken to has ever heard of this happening, but then I go online and I see other forums with guys all experiencing the same thing. So maybe it's just that guys experiencing this don't vocally raise it as an issue or don't have the confidence to follow up on it? I dunno, but I know that my normal life is significantly negatively affected by the location of it. The pain and discomfort are annoying but they wouldn't be as big a thing if it was free to move, but because it's rigid, it doesn't have that movement which is causing me so many problems.

Yes please, keep us all updated and I'll do likewise. What I've found so far is three methods of helping breakdown scar tissue (assuming the scar adhesion to the scrotum lining is the issue), however they include acupressure, frictions and trigger pointing. I don't know about you but I can't do much with it, or put much pressure on it, without getting that gut punch sicky feeling, though the acupressure option - where you block bloodflow and then release and the sudden increase in pressure helps break down any scar tissue - is the one that I think I could put up with the most. I'll be posing these options to my GP when he calls and see what he says

doc just scheduled for me to come in on Tuesday so ill let you know what he says, but the fact that he didn't seem to know what i was trying to explain to him (something that he should know right away) makes me worry now... once i go in on Tuesday for examination i will look into getting a second opinion and check up and ultrasound at another doctors office. but the surgeon that did my hydrocelectomy has been doing this since the 90's so there's no way he doesn't know what im talking about unless he did it on purpose idk...

Don't worry, I had the exact same issue trying to explain it to my GP, the surgeon and another GP, all of whom were male so I had hoped they would understand exactly what I was meaning.

I'll admit that I got a bit frustrated trying to get all three of them to understand what I was saying .. i.e it should not be this high and it shouldn't be so rigid in movement, it should be able to move up and down but it seems stuck and that is causing so many other issues.

My surgeon is a string of qualifications and acronyms after his name and has similarly been practicing this for many years, so I wouldn't think he would do it deliberately. But I am concerned about how little they seem to know about this as an issue compared to how many guys and forums of guys I'm finding of men in a very similar position to us

what did they tell you when you described it to them? did they say it will detach and hang freely again? i have my follow up/check up on Tuesday.

The first doctor (female and not my normal GP) I spoke to said that they were supposed to be different heights so not to worry about it. The second doctor (male, but not my normal GP) I spoke to said that he hasn't heard of this happening before but it's very unusual and the degree of impact to my life would mean it should be seen to ASAP. He referred me for an ultrasound scan as an urgent outpatient. Unfortunately, the scan didn't show anything abnormal. I wanted them to find something because then there'd be some sort of plan to fix it. The surgeon who actually carried out the procedure said that he hasn't heard of this happening before but it sounds quite serious. Because of Covid, he was going to personally write to the urology consultants at my local hospital to get me seen to see what can be done. My own GP said that he isn't familiar with urology conditions as he specialises in cardio, but that he could only imagine how it would be affecting me and the range of impacted areas (walking, sleep quality, sexual and mental health) means that it should be seen to quickly as my quality of life is highly impacted by it remaining like this. He mentioned the possibility of a water bath treatment, but couldn't give any more details yet and despite him not knowing the best course of action, he knows the right people to ask who could advise better. So I was to leave it with him and he would get back to me. That was over 3 weeks ago now.

I'm very apprehensive about leaving this too long only for them to turn round and say that unfortunately it has adhered permanently and invasive surgery to fix it is too risky. One post on a forum said that was what his doctor had told him because he had left it too long to sort it out without another surgery and another surgery could lead to the exact same situation if it adhered wrong again, so there was nothing that could be done

one guy or 2 from what i read they said theirs was the same way and it eventually detached after 6-8 months but i seen like 2 other people that said its been 3 years... but i dont get how the actual surgeon doesn't know about it if he's been doing this for years and went to school, like they dont teach them the things that could happen in school after hydrocelectomy this whole shit is just very strange its like we are invisible like we are the only ones understanding whats happening but not the surgeons who actually performed the surgery and have a degree... very strange...

i cant wait until Tuesday for my follow-up i need closures or answers to where do i go from here... my surgeon didn't seem to know or really have an answer when i emailed him so im not really expecting good answers at my appointment in the back of my head i probably just gotta except that fact that i might be fucked... crazy how you go to get one problem fixed in return for another problem.

my nuts would be perfect if they weren't attached up to the inside of the scrotum everything else is fine no pain just minor discomfort from it being attached during certain moments

You've just said exactly how I feel. It really is strange how all these medical professionals don't seem to have heard about this happening before. And it does feel like we're invisible when we raise it with them and they don't seem to understand what the issue is. It takes going into painful and simplistic detail for them to grasp what we are telling them.

Again, I totally get what you mean by that second comment. We went to get something sorted and that one issue may have been resolved but it sounds like it's created many new problems that never existed before. Solve one and create several others doesn't seem like a good tradeoff to me! I think I've also seen those comments you refer to about 6-8 months and the other mentioning 3 years and still not improved. I totally feel your comments about it being messed up. I've had many nights where I've struggled to get to sleep because of the discomfort and wondered why I ever went through with it. I have always been fairly fit and active, playing lots of sports, exercising and a regular at the gym and now I'm unable to do much that involves my legs. I'm planning on phoning my GP on Monday to schedule another telephone appointment, though my waiting times seem to be around 2-3 weeks before he's free to talk.

And to your final comment I agree also. If the testicle was not attached, and free to move, then the other issues I'm facing wouldn't exist because it would be possible for it to move out of the way naturally like the other one. But because it doesn't move properly it's causing so many more issues that never used to exist

i believe there is a surgeon specialist out there that can help i believe there is a solution, also i still haven't went to my appointment yet on Tuesdays so hopefully there is some good news about the issue and they dont be like it is what it is just accept it and learn to deal with it... but if i dont get any good news i will be going to emergency rooms and lots of urologist specialists i will get to the bottom of this... by the way how long has yours been this way? mines just a little short of a month.

to be honest i wish i read all these comments and issues before i had the surgery because then i could have asked the surgeon about it and if he didnt know about it i would have not proceeded unless he was knowledgeable about the exact issue...

There must be someone who knows about this. I don't believe that not a single doctor or surgeon is aware of this being an issue.

I got mine done in October 2020. By November 2020 I knew something was up due to lack of movement, so I spoke to the female GP who told me without medical records she couldn't comment as my vas deferens may have been cut and shortened and that they were supposed to be at different heights. Really infuriating trying to explain to her over the phone what the issue was and it being dismissed. My surgeon was supposed to phone me by December 16th but he never did. The clinic closed for Christmas (private clinic) and so in January I started phoning daily to get a hold of him and eventually I did. After talking to the surgeon, and him claiming he had never heard of this before, he wrote to the urology consultants near to me, but I'm still waiting to get my appointment. Urgent cases have a waiting time of 18 weeks and routine cases are 80 weeks. So it depends on what he described my case as being for when I'm going to get a second urologist's opinion.

I totally regret ever mentioning the hydrocele issue to my GP. I've spent many nights full of self-hatred about why I did that because the whole process has caused me nothing but problems and now there's the prospect of having to compromise the rest of my life because of this. I can honestly say that I've never had such dark and morbid thoughts about the future than I have in the past few months. It doesn't feel like I'm living my own life any more and instead it feels like I'm living a false lifestyle that is just not who I am or what I enjoyed out of life

dont trip we gonna get through this there is an answer out there and when i find a surgeon with the answers and solutions ill refer you to him also but i still need to hear what my surgeon is going to say he might have the answer and solution and he might not but theres no way after he told me he's done hundreds of hydrocelectomys that im the only patient that brings this issue up to him... like this must be like some kind of rare condition that happens to a small percentage of people or something idk maybe its a rare side effect condition ima get to the bottom of it...

I spoke to my GP today and he said that he explained the situation to the urology staff at the hospital and based on their responses, there isn't any sort of rubbing or technique that is likely to produce any useful results. He said that he left it with them and if he hears back anything then he'll let me know but as far as it stands, he thinks the most likely outcome is a second surgery to correct it.

We spoke about waiting times and the fact urgent cases are 18 weeks and routine cases are 80 weeks. I asked if he knew what list I was on because I had been waiting about 16 weeks so was checking the post daily incase I got a letter for an appointment early. He confirmed that as the initial surgery was completed, unfortunately what we have will be classed as routine and as a followup. So I'm looking at an 80 weeks wait for an appointment to confirm what is wrong and what needs to happen, before another wait on the surgery list.

He said that the surgery list is significantly lesser than the appointment list. He said that one option that is open to bypass the 80 week waiting list would be paying to go private for a consultation with a urology consultant. Once the consultant confirms what needs to happen, they can write to my GP and then I'll get put on the surgery list instead of continuing to wait just for an appointment.

He said that he knows a private clinic that he has sent a few patients before to get an earlier consult and get a surgery faster. I asked how much it'd cost and he said he doesn't know as he has nothing to do with payment, but consultancy fees would be expected to be "a good couple of hundred".

After the call, I had the idea to contact the surgeon who carried out the initial surgery and I got the receptionist who emailed the surgeon. If the surgeon accepts to take me on again, then all costs will be covered by the NHS as this is a complication from an NHS surgery. I'm hoping he accepts purely because I've had to explain the issue to three different doctors already and each one of them picks up on a different aspect and not the entire thing. I find it exhausting having to explain it all over again from scratch, so if the surgeon that carried out the initial procedure says yes, then he will already know what he did, why he did it and if there were any issues at the time that may have caused this to occur.

If he doesn't accept then I'll have to choose between paying for a private consultant or continuing to wait for the 80 weeks, by which time I think I'll have already moved to a different health board.

My GP ended the call by apologising, saying he knows how much of an impact this is having on me and he wishes he could do or offer something but there's nothing he can do right now except prescribe me something to deal with the pain and discomfort and hope that helps live a normal-ish life. Not going to lie though, I'm not keen on the idea of paying for a consultant to then advise surgery, having my body cut open again and running the risk of this not even fixing the problem, or even making it worse somehow.

What are your thoughts? Would you go for another surgery even if there was no guarantee that it'd solve the problem? What if you were asked to pay anywhere between £300 - £600 for a brand new consultant to confirm what you already suspected?

let me see what my surgeon says tomorrow first and then ill give you my opinion on what i think next based off what ever my surgeon tells me be it good news or bad news... i really hope he knows what the hell is going on man this shit is stressful i dont want to walk around the rest of my life with my nut sewed to the side of my sack and nobody knows what the hell is going on... i never wanted my balls cut open to begin with and im not trying to have em cut open again... thats the thing with me i did it to get it over with and put it past me and never look back and it being normal now we deal with this shit... but ill know something tomorrow at my appointment.