Hyperthyroidism :(

hello all,

been diagnosed with having hyperthyroidism for the past 6 months now. i've had 4 blood tests since and have been on 40mg carbimazole everyday.

just had another blood test last tuesday and awaiting results, hopefully i get sent to see a specialist as according to latest doc i should have seen one a while back.

my resting heart rate has dropped from 126bpm to 80's bpm which im very happy with but it's the sweating, especially on my back which isn't getting any better . really embarassing!

im off to vegas this sunday for 10 days lol, my back should love that!

hopefully my recent bloods are in tomorrow and i can see the doc, is there anything i can ask for that will maybe help with my sweating?

and is there anything i can take to help my eyes? i recently got the nickname bugeyes at work (standard banter) so looking to ask doc for something for this too?

i'm 26 male,

thanks,

evan.

Hi Evan. Welcome to the forum. Sorry to hear you're hyper. Not very nice is it? I hope your latest bloods come back ok. Excessive sweating is a symptom of hyperthyroidism, so once your thyroid is properly under control it should settle down. I know that's not much help to you now, especially as you're going to Vegas. You maybe should have settled for the North Pole. smile You'll feel better now your heart rate has settled down. Mine always seemed worse in bed, but probably just because I was taking more notice of it.

I hope you get referred to an endocrinologist, GPs don't seem to know an awful lot about thyroid problems.

I have slightly protruding eyes, and I was referred to a thyroid eye clinic. I had to travel quite a way to get there, but I was reassured that they weren't getting any worse, and I can go back if I'm worried at any time. My eyes tend to be dry so I use artificial tears that I get on prescription.

I hope everything goes ok for you. Keep in touch. I've found the forum to be a great help. We all support each other.

Take care.

Marigold

Evan,

I can really relate to the sweating with GD and know it's no fun. For me it's loads of spots on my forehead and chest, the GP said it was acne (at my age) caused by sweating. When I was euthroid it just went as quickly as it came. I'm back overactive now and the spots are back although I havn't noticed bieng really hot as much.

I've been diagnosed about 6 months too and am still waiting for RAI to do it's stuff.

This website is fab as there are loads of others who have been where youre at and can help you realise that you are not on your own.

Jane

hi marigold and jane, thanks for the replys.

i just got back from my review, latest bloods came back good, they only measured T3. the doc i saw said they should have measured T4 too.

i'm still getting the sweating and had a good chat about that today and the doc precribed some propanolol, she was debating between that and citoplam?

ive never seen this doc before but she was really good, shown lots of interest and said she will book me in with the specialist.

so hopefully onwards and upwards.

for my eyes i got some opticrom eye drops seem ok, i just seem to have on and off days with them.

vegas sunday! :lol:

hope you're all well,

Evan.

also forgot to add that my white blood cell count has dropped so i'm just having a quick google on that.....

8)

back from vegas, all went well, didnt sweat aas much as expected which was a huge bonus.

got a eye specialist appointment and an appointment to see thyroid specialist, things are looking good. will update once seen specialist, hope you guys and girls are all well...

evan smile

Hi Evan.

Glad you had a good holiday, and the sweating wasn't as bad as expected.

You'll be pleased you've got appointments with the eye specialist and endocrinologist. It helps if you see someone who knows what's what. smile

How are you feeling? I'm feeling fine, a bit tired, but definitely back in the land of the living. smile

Keep in touch.

Marigoldx

Hi again,sorry for such a late reply.

i just come back from another holiday smile was pretty amazing.

anyway just an update to say i have vistied the eye specialist who has sent me for an MRI scan which is tomorow as there maybe some muscle build up behind the eyes, he did say though that visually they didnt look bad at all which is nice to hear.

after the MRI im off the see the endo and see what they say, then its back to the eye specialist 4 weeks later.

so far so good, still suffering from the back sweats but im back in cold uk now so it has some benefits haha!

i think it could be anxiety related, will have to wait and see.

hope everyone is well- hopefully we get some sunshine soon smile

evan smile

also just read its 18 months ive had it for now not 6! smile

Hi Evan.

I'm glad you enjoyed your holiday. I have problems with my eyes too. They both protrude, the right more than the left. I don't think they look too bad. I saw a thyroid eye specialist last year, and he was trying to talk me into having an operation on my eyelids. They're a bit droopy and he said they could cut the excess skin off. They have to do it under a local anesthetic as you have to be awake otherwise they wouldn't be able to tell if they were going to remove the right amount. I said no thank you. The thought of it gives me the creeps. :lol:

Let us know how you get on with the MRI scan and the endo.

Take care,

Marigold

Hi Evan, hope the propanolol is helping, I don't know how I would have coped in the early days without it and it definately helps with the anxiety I think. Did you find out about your low white count ? Good luck with the eye specialist, from what I hear they are very good. Hope you are feeling better very soon, and I'm always available to carry suitcases for anyone goind on holiday ! Take care. Bess x

hi peeps,

just phoned the eye spec, they said i have a appointment on the 1st sept to discuss results and go from there.

endo is on thursday so not entirely sure what will happen there...... i deffinetly feel better these days.

anyone have any info regarding this... i work nights from 10pm-07:00am, my endo appointment is at 9am, its around an hours drive from work, can i be expected to work still?

i will have to then return to work that folling night, how long roughly will my appointment take?

sucks as we are under new management and my old manager was good as gold and completly understood as his mum had over active too!

my work bring out all of these stupid rules with 12 hour minimum rest and so on and whenever you try to use it they arnt happy one bit.

anyway, that's my rant over for now.

how is everyone doing? all good i hope.....

bess can you cook? ha-ha

evan smile

Hi Evan. Glad you're feeling better.

When I went to see the endo he started by asking loads of questions, then he examined me, then I had to go for blood tests and have an ECG and a chest x-ray. (I had an echocardiogram another day). It was the hanging about in each department that took up the time. There won't be anything that makes you feel ill or anything. I hope not anyway. smile I hope it goes well for you.

We don't tend to get a lot of sympathy as most people have never heard of Graves Disease or overactive thyroid. I explained to a friend one day that I had an overactive thyroid and she said 'oh, our cat has that'. I thought charming how's that for sympathy. :lol:

If you take Bess on holiday with you to carry your cases hide your biscuits.

Take care.

Marigold

hey marigold,

glad youre good. i will update this thread again after thursdays appointment and go from there. hopfully work see sense and allow me the night off rather then turning up all tired and wanting to sleep! :lol:

did you guys notice a yo-yo effect in weight?

evan smile

update;

just got back from specialist, i went to the diabeties centre, bit strange?

he said my last blood test results the tsh was all normal. he sent me to have some more bloods taken today and another blood test in 7 weeks time then see him 1 week after second blood test.

he looked over my MRI scan said everything looked fine and not to worry.

next step is to drop down to a 5mg carbimazole dose and then slowly taper off, then see if it comes back, if it does he said it would be iodine treatment.

i must admit i do feel loads better, lethargic if anything like i'm going under?

hope everyone is well

evan smile

just to add, this was the first time ive seen a specialist for the thyroid and all they did was take bloods.... im debating asking to have an ECG done considering my resting heart rate was at 126bpm not so long ago, would put my mind at rest!

evan smile

Hi Evan. I'm pleased your blood test results were normal. You'd go to the diabetic clinic as the endo looks after diabetics too. I think we're the poor relations, we don't seem to get a lot of sympathy.

You might be ok when you stop the carbs. I started with Graves forty years ago, took a course of carbs, and was ok until last year, so you could be lucky too. I hope so. I had an ECG as the endo found I had a heart murmur, so it's maybe not something they do routinely. Your heart rate would be increased if your thyroid levels were high.

I haven't noticed a yo-yo effect with my weight. I lost a lot of weight when I was very hyper, and I haven't put any back on. I was skinny to start with. :lol: I lost a lot of muscle tone in my arms and legs, and I had problems getting up and down stairs and getting up from sitting in a chair. My legs are ok now, I suppose because they get plenty of exercise, but my arms are still very thin.

Take care.

Marigold

hello all,

long time and time to update. in november my endo dropped my carb dose to 5mg daily. had a few blood tests since and re visited endo again today.

results in and thyroid is back to square one, if not worse. Endo wants to remove thyroid and has put me on 20mg carbs ed with a blood test again in 6 weeks. when my levels stabalise he hopes to remove it within a month, but must be stable.....

no talk of RAI...he seems to be very keen to remove.

so thats all i know for now, all i can hope is it stabalises in time for my next endo visit. They can then get this bloody thing removed.....

the eyes havent got any worse (fingers crossed) but i now have to re visit the eye man untill its removed.

the joys of hyperthyroidism.

hope everyone had a brill xmas and new years..

Evan smile

Earlier this year February 2012, I was diagnosed with hyperthyroidism. I had a terribly fast heart beat, heavy sweating, shaking and a general low feeling and this is why I went in to get checked. 2 weeks after my results came back that I was hyperthyroid and I felt much better after that..my Labs were:

TSH Out of Range(0.00) Reference Values(.4-5.00)

Free T4 (FT4) Out of Range(27.26) Reference Values(9.03-19.09)

Total T3 Out of Range(162) Reference Values(58-159)

I was hooked up to an endo(who says I have Grave's Disease) by my GP @ school and she put me on 5mg of Neomercazole to be taken twice a day and 10mg of propanolol(betablocker), since I've been on medication I've felt terrible. Experiencing dizziness,feel like I have to get things done very fast and that I have to walk fast, I always feel like my body is ahead of me, I have terrible hand tremors when I extend them, having terrible head sensations, not headache just some weird head feelings and tingling,pressure and heaviness in my head, and my head feels like I'm out of it, I have hand cramping,neck discomfort, I also have times when I am breatheless, I feel heat inside my body, heat coming from both ears and now its June and I have been on medz from February and I am still having all these symptoms constantly and new ones: weakness in my hands, knees and ankles, there are days I don't know how I walk, and I'm having a general low feeling, no appetite, feeling sick (terribly sick). I did some new labs for my thyroid gland and my TSH is now 1.47, havent did my FT4 or FT3 yet..I did a CT Brain and an ultrasound of my thyroid and all is NORMAL.HELP! Are these ALL really symptoms of Hyperthyroidism ALONE from February till now July!!

Sorry you are not feeling good Evan. I also have this stupid condition. I dont have eye problems but can related all to well on the sweating and the heart issues. It is really tough but hang in there, and dont worry about what people say about your eyes. I am sure you are just as handsome as ever. The best thing I can recommend is getting a small office fan, and wearing like two layers, bringing and extra under layer and changing if you get to sweaty. I have found doctors to not be very helpful personally so all one can really do is adapt and keept a good attitude. Also just laugh at yourself. My big problems with thyroid disease have been intestinal issues tmi I know but i just try to laugh, vary my trips to the restroom and if I get caught to many times, ill just joke about having an important appointment. People rarely make fun of people who tease themselves. smile 

Wishing you well!

Amanda