Hysterectomy @ 37 & terrified

I Ended up in hospital for 14 days last month and had an my left ovary removed, told two

Weeks ago that in actual fact was stage 1 ovarian cancer.   Have been told numerous times how lucky i am ( Lucky is not how I'm feeling &#128542 Although I do understand it's meaning  And as precaution now is best to have full hysterectomy- this is scheduled for the 1 st week in Jan .... I'm truly devastated & uncontrollably emotional at the whole situation. I'm

37 and have twins age 10 

I'm Petrified beyond belief, I've always been very optimistic person I feel like my world has now been turned on its head

I've had no pain / no problems with periods / no endometriosis I've Been for and healthy up to this point ... 

I had trouble goin to the loo for just over a week last month  doc sent me for scan and I'm

Now here ..reading desperately scary forums on what to expect when I come out from surgery. 

I'd love any advice on what to expect and really should I Be feeling life as I know and loved not is now over. 

Thanks for reading xx 

I am so sorry that you're going through this!  It is so terrible.  I completely understand.  I am presently under treatment for recurring uterine cancer.  I had a hysterectomy last year and was staged at 1a, nothing further necessary.  But I was diagnosed with a reoccurrence this August.  My treatment Is going well right now, it's a long road ahead but my doctor has a plan.  It's very flexible and I am hopeful.  

I'm just letting you know the situation I'm in.  I can't tell you what to do, but I can tell you what I'm trying to do each day.  The nights are worse for me.  I am trying to put my trust in God, daily.  I know that I have to trust my doctors, but I have to learn as much as I can about my treatment, so I can assist in my own care. Then, I have to trust that all will be well. Sometimes, I do panic, but I have the support of those who love me and who are praying for me.

Don't try to soldier on and keep it all to yourself.  That's because you'll need all the support and prayer you can get.  It means so much and the knowledge that others are praying for you and thinking of you buoys you up like nothing else.

I am hoping for the best for you and praying for you, too.  xx    

Thank you so much Lynda20916 

And I'm glad to hear your treatment is going well & long may it continue. 

I feel like I've been hit with a freight train .. so many tests I've had surgery for left ovary  etc then so much information & now feeling like I'm cramming for an exam in a foreign language that I've not even been given a hint as to what it is . The pysical surgerys 

I can cope with but it's the menopause I'm so young and healthy it  just seems I've won the worst lotto ever. 

Thank you so much for your kind words and prayers. 

And you will be in my thoughts and prayers 

Xx 

Del,

You are so welcome!  One thing I will tell you is to ignore people who tell you you need to remain positive "no matter what." It's a dumb standard for someone who is going through cancer--and don't feel "less than" when people want to tell you about or compare you to someone who "beat it."

You will be doing the best you can do, whether you're showing up for treatment feeling like crap (assuming you have subsequent chemo) or telling your doctor," I need some time to rest, " or if one day all you are capable of is crying.  Each person goes through this hell in their own way.  One of my friends asked me (after finding out) "Can you still work out? Does it help?"  They meant well.  Some people can do it, others find it impossible.

Menopause will be challenging because you're so young....but you will find ways to deal with it!  And, hopefully, find a little love and joy each day.

The ladies on this site are fabulous!  They will do all they can to offer wisdom, comfort and support.  

Please let us know how you get on! xx     

I am so sorry that you are going through this. I am 34 and had same symptoms so went to GP on 27th December, I have since had blood tests including CA 125 that came back abnormal and a TV ultra sound scan on Thursday and am now waiting for an urgent gynaecology appointment to discuss my treatment.

I am like you horrified at the thought of it all as I have scan result and know it is not good reading. I have an 8 year old daughter so I completely understand your situation.

I will pray for you, and please keep posting to let us know ow how you are doing.

Good luck, take care xx

Nicola, 

Sorry I've been out of touch for a wee while. 

I'm doing ok (today) it's been a rough couple of weeks but today I'm 8 days since hysterectomy 

.. I can't believe the rollercoaster I've been on in the last couple of weeks. 

I can tell ya I'm still feeling v sorry for myself by times. 

I'm still v emotional about the whole saga.😞 

Physically I've healed quite well 

I'm up and about doing little things but still taking plenty of rest. 

How are u ... have u had your apt ? 

Lyinda 

I hope ur well I've not been on for a while. 

I'm 8 days post hysterectomy 😞

But I'm ok 

How have u been ? 

Hi Del,

It's good to hear from you.  How are you doing?  

I finished chemo (6 treatments) a week ago last Thursday.  I'm to have a CT scan to assess how well the chemo reduced the size of my tumor and lymph nodes in about 10 days. My doctor will consult with the radiologist and a surgeon after that, and we'll make a treatment decision--radiation or surgery followed by radiation. I was very scared to have my 6th chemo, because each time, my reaction to the chemo was different.  But my 6th chemo went alright, and I feel stronger, though it's only been a week and 2 days. There are times I'm stressed and fearful and times when I feel more optimistic.  Still trying to take it 1 day at a time.

Please let me know how you're getting on.  xx 

 

Dear  Ladies,   I  have  only  just  joined.  I  have  read  some  of  the  Forum  and  I  really  admire  all  of  your  strength.  I  have  had  tests  done.  They  have  found  Fibroids  and  Polyps.  The  hospital  keep  on  suggesting  a  Hysterectomy.  But  loosing  your  womb,  uterus,  ovaries  and  fallopian  tubes  means  loosing  your  'Lady  Bits'.  I  still  want  to  be  a  'Lady'  a  'Woman'.  Please  help.  I  will  pray  for  all  of  you.  Thanks  for  reading.  xxx

Hi booty1, 

I'm sorry you found yourself here ...but isnt it  lovely to talk it through ( I'd go nuts only for writing some of this stuff down) 

I didn't have much choice with what has happened over the last couple of weeks ( hysterectomy etc ) and I'm now 9 days post op for what it's worth 

I still feel like me. I have cried allot 

But I mean I've beeen through the mill. I'm

Not sure how things will change in the coming weeks but Im working on a day at a time for now. 

 

Xx 

Hi Lynda20916 

Lovely to hear from U. Xx 

 the last two days I've been ok ( as In im not literally falling apart by times) post op was emotional draining. But today I was out of the house and it felt a little normal. 

The op (hysterectomy) went well 

As per the doc and they advised on a round of chemo in about 8 2weeks. That's a whole new thing to worry about but I just can't go there just yet. 

Please god the news will be optimistic in 10 days, keep me posted. 

Xxx 

I'm glad that you got out of the house.  Each little thing you can do to help yourself brings good results, I think.  Right now, just try to take it day by day, hour by hour, or even minute by minute.  Please feel free to send me a private message if you want.  I'll help in any way I can.  xx 

Absolutely Lynda and it is a short as minute by minute sometimes 

Thank you so much for ur kind and warm words. I will talk to u soon

I hope ur in good form this eve 

Xx 

Hi Del, It's been a while and I'm wondering how you're doing?  xx

Lynda

How are you darling - how is your treatment ? 

I've been ok,

I've healed really well after the hysterectomy & I'm up and about and doing wee bits - nothing to major to be honest 

I'm

Due back in tomorrow, I'm

Sick to my tummy. I'm terrified, 

That's they have found more ( although it's unlikely.. however 😔wink 

and I've to meet oncology dept as well tomorrow for the next step in Treatment I've been doing so well no out burst of tears etc but today I feel kinda low and worried. 

I've had no menopausal symptoms just yet that's been a wee wonder. As any of my research said it would happen before I led hospital. 

Please let me know how you have been xx 

When  I  wrote  before  about  my  ' Lady  bits',  I  forgot  to  about  to  tell  you  about  my  Son,   who  is  24  years  old.  My  son  and  his  girlfriend  are  going  to  make  me  a  Gran  in  2  weeks  time.  But  I  am  still  thinking   about  the  operation. 

 Love  Booty  I.  xx

Ah that's wonderful news hopefully all will go well & before U know it you'lol be home playing the dutiful granny 😬

I'm now four weeks passed my op and thankfully I've had no menopausal symptoms- was with gyni last Thursday and he's said if they have not started they probably won't ... but fingers and toes x 

Passed that I'm due for chemo in two weeks .. again its precautionary measures- but 

I'm dreading the thoughts 

Bloody heck non of this crap is easy but we'll keep looking and moving forward 

I hope ur in good spirits today ..

On the positive side the quicker u get that op done the quicker you'll be passed it 

Xxx 

Keep in touch 

Hi Del

I was brought into hospital by the ambulance on Friday night with agonising pain, they had even managed to control the pain but in the meantime my results have all come back and I have been told today that I need a total abdominal hysterectomy and they are doing It on Thursday.

Worried isn't the word xx

Hi, Del.  So sorry I didn't get back to you!  I didn't get the notification of your message until just this moment.  Please let me know how your appointment went, and what your treatment will be.  

I am having surgery on the 13th.  Because the general surgeon will have to use surgical mesh to reinforce the muscles in my abdomen, I can't have the radiation there that my oncologist planned.  I may be able to have radiation where the lymph nodes in my groin will be removed.  But, as of now, surgery is enough to face.  neutral

Please let me know how you're getting on!  xx  

Oh Nicola ah I'm so sorry .. 

it's a lot to take in & allot to give up and allot to think about  ... like what will come of it etc ( sadly no one can answer that until it's all done ) But For now all u have to is get yourself ready for op ... the rest will follow in time. 

u will need pre made dinners etc & if u have offers of help take it all

From school runs to shopping ( nothing lasts forever so make the best of it )

 if they are doing lapo

Hopefully you be home with four days maybe. 

I know it's an awful desperate time and the tears are probably plenty- let them fall. Sometimes we actually feel better. & we'll take that when we can. 

There's light my lovely 

Only this morning I was out drivin and shopping- I can tell ya 

Only three weeks ago I thought I would never be the case but deep breaths help. 

I hope ur ok today I've tried to give ya practical information up top but please if u have any questions please just ask 

If u need to vent please feel free..  I'll listen . I know it's lonely ( if that's the right term but don't feel alone ) xxxx 

Keep in touch xx