I have been using Tibolone (Livial) for three years now. I previously used HRT patches but due to the length of time I had been using my GP suggested that Tibolone would be better for me.
I have had previous hysterectomy and bowel resection due to Endeometriosis.
I am now 49 years of age and HRT started at approx 29 years old. I had one son at the age of 27 and had a miscarriage at age 29 when I was 5 months pregnant.
I have some concerns regarding Livial as I am currently experiencing -
Joint Pain
Severe Muscle Pain
Some Visual blurring
Fluid retention
Very low metabolism (despite trying very hard to motivate and move around as much as possible)
Require rest and sleep often
Unexplained weight gain or fluid retention ?
I have been attending my GP for the last 4 months back and forth with muscle and joint problems and also some swelling in the neck area.
Some blood tests have been done but at the moment nothing has been found. Apparently Thyroid results are normal.
A swelling ocurred on the lower right side of my neck around early February. I have not to date received a scan to diagnose the problem despite repeated visits to the practice and also visiting a private consultant in Murrayfield Edinburgh who wrote to the GP practive a number of weeks ago and who recomended that this should be done.
I was suspicious at first that I had a thyroid problem but the blood results do not show.
My concern therefore now is that Livial is causing my symptoms and I need to establish whether this is the cause or not and whether to continue with livial or not under the circumstances.
Visiting the web site has been of benefit to me in order that I can read current research on Livial as I am extremely concerned that I have gone from a fit well active person to the current pain and progressive problems I am now experiencing.
Regards.
Brenda Barclay
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I have just returned demoralised from an appointment with my Consultant. In fact I have been left feeling almost fraudulent as my experience with severe joint pains, muscle aches since taking Livial do not seem to register with the Consultant as a possible side effect. I am 39 years old in 2004 after suffering since the age of about 13 with IBS I was finally diagnosed with endometriosis and started on a course of monthly Prostap injections. 6 months ago I started taking Livial as well to mitigate the menopausal systems. Your comments above reflect the predicament I now find myself. The constant joint pain most severe in my neck and hands is interfering with both my work and home life. Like yourslef thyroid problems were suspected by my GP but blood tests proved negative. I am currently pondering on the options open to me which is quite difficult when my symptoms are not recognised by my consultant.
Best regards
Debbie
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I have been taking livial for five months due to having both ovaries removed Iam forty seven years old and this past month Ifeel seventy years the joint pain I am experiencing is getting worse it first started with mt hip now it has gone into my feet knees and hands Ihave experienced weight gain and swelling of my fingers I am going to my Gp it will be interesting what he has to say I thought it must be the hormone as I have never exoerienced anything like this before I feel so much better in reading other peoples effects of the drug as I thought it was just me experiencing this joint pain
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I'm 51 years old and have been taking Livial for only three weeks but it feels like three months. I'm experiencing neck pain and pain in my head with visual blurring. I also have joint pain in my fingers and abdominal swelling. I have no energy at all although I have been on T3(triiodothyronine)for two and a half years for a Thyroid problem. I'm considering going off Livial asap but am awaiting an appointment this week with my Consulatant as he asked me to wait on Livial for a period of three weeks. I have been using patches before this and had continual bleeding on a daily basis so came off it after four exhausting months. I'm so thrilled to find this site and these comments as I was begining to worry about all sorts of illnesses thst I may have. I hope we all get something more suitable very soon, I'm thinking that the menopausal symptoms couldn't be worse than this! Margaret
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Im so glad I saw this post I have been taking tibolone since December after a tah/bso in August. It was suggested I take something for my bones. I have felt so exhausted the last couple of months that I would fall asleep about 6.00 pm I just didnt feel myself at all, my hips would ache and also my vision has been really bad that Im was thinking I needed to go and get my eyes tested. I thought all of these problems were down to recovery from my hyst. I stopped taking tibolone just over a week ago after consultation with my GP and in this short time my energy levels have gone right up. my hot flushes and night sweats have returned but I can live with them.
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I have been taking Livial for 8 months, I'm 49. Everything was fine to start with, but in the last month or so,I have been suffering from intense neck pain as well as headaches.I also have a monthly bleed which is painful. What I fail to understand is why am I still having hot flashes and palpitations at night?? Where are the benefits?? I wabt to come off it, but don't know whether to stop suddenly or gradually. Which s worse the side effects, or the symptoms??
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I have been takingLivial since Nov 05 at first I was fine but the last tree months I have had various degrees of monthly blee. I have no hot flushes but my Fibromyalgia pain seems worse.I did'nt want to take any medication but the hot flushes were so bad I thought I would try now I really wish I had not I spoke to my GP this afternoon and he advised me to go in for an examination next week and a probable scan now I am besides myself with worry wish I had not gone down the HRT road. I was told that as I was 3 years postmeno not to expect any bleeding has anyone had these side effects. Yes and some headaches and mood swings sometimes I feel like pulling my hair out.
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Interesting reading i have been on Livial for over 10 years and i have Me/fibromyalgia and sciatica and mytral valve problems. I have had a problem with my skin which i am not sure is the Livial? Anyone else having skin eruptions? I have come off the Livial a few times and yes the muscle pain decreases but as my flushes are every 20 mins day and night i had no option bar to go back on it. I cannot take progesteron type hrt.
fi:roll:
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If you go onto www.Livial.com and send e-mail to them - they will make contact with you and send information on Livial long term usage to your Dr - that is what i am doing as at the moment there are a few trials being ongoing - Livial is made with Petrol and its tested on rats.
Contact Livial.com and tell you GP about the site so as he can register and check for himself, he will get more information and will understand what the words are actually saying.
fi
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I am 32 and had my fourth Prostap injection two weeks ago. I was prescribed Livial after being on the injection for five weeks as the hot flushes I was having were horrendous.
I've been suffering with really bad pain in my right hip for the past two months (it started a week or so after starting Livial). I had an x-ray of my hip last week and it is thought that there are changes to the hip joint although I am waiting for the x-ray report to be forwarded to my GP to find out exactly - if anything - is wrong.
I also have a pre-op assessment today prior to having surgery on my left shoulder - I need to have some of the bones shaved and 'stuff'! The shoulder has been a problem for over a year but the hip is a new problem. I am certain it is related to the Livial.
Any suggestions apart from shooting me ('if you were a horse you'd have been shot by now!' as I feel like a 70 year old and I'm only 32!
I have only just come across this site and thank goodness for that! I have been taking Liviella for 3 weeks and am really suffering with water retention. My face resembles a football and appears to be retaining more water every day, my fingers and legs are suffering too - does anyone else have this problem? I have tried several HRT therapies non of which my body seems to like. Is there anything else out there? I am going through the menopause early which is why there are numerous HRT therapies out there which are not suitable for me (due to the high risk side effects). I am beginning to despair. Feel fat, ugly and very, very old. HELP someone please!
Just came across this web site and am glad I have. To be honest I did have joint problems before taking livial. Iam 46 and had to have total hysterectomy 3 years ago. I too feel so tired I'm sure I could sleep anywhere. My eyesight is also poor after having good eyesight in the past. Most worryingly I was diagnosed with a goiter and have continuous discomfort in my throat but as with everyone else the blood test come back normal. The problem is when I was put on premerin instead all I could do is cry and behaved like a banshee. I itched so badly too!!
Hi just doing a google search and came across this site, im 38 and had a total hysterectomy 3 years ago, after coping for so long without HRT i decided to start taking 2.5 mg of tibolone daily at first i thought i was coming down with the flu , my legs, hips knees hurt so bad i thought i was gonna die, also my energy levels are so bad i think my husband thinks his wife is 90 not 38, i will have to return to the doctors on monday its ruining my life i just wanna sit round the house in my pjs and when i walk up the stairs its like mount everest.....HELP....
:cry: i have taken tibolone for 8 days,three days in my neck hurts,my whole body feels aches,all over.
i feel bloated,my uniform fitted last week, today it feels tight. no energy,i went back to work,last week, but i feel i need more time off,i feel so weak. everyone just says give it time,????????
WOW..... im amazed!! i was just googling and came across these posts. I thought i was the only person in the world feeling like this.
I am 39 had a total Hyst 3 yrs ago due to Endo. I went on Livial after 6mths due to really bad hot flushes and a range of other usual menopause symptoms. All seemed great for a while. However i have spent the past 18months having xrays, scans and blood tests to try and find out what is causing the constant pain and aching in my hip, buttock and thigh. I have also put on about 12 kg.....ALL on my stomach. I have always been really tiny and have never had weight issues. Im constantly tired and will stay in my PJ's for days if I could.
My gut (pardon the pun) feeling all along is that the Livial was causing these health issues. When you suggest that to a Doctor, they look at you as though you are a neurotic idiot.....
Im now feeling really depressed at all the weight gain and was about to go back to a Dr and ask for patches..... hoping that they might help.
Has anyone tried the BIO IDENTICAL Hormones???? Most GP's go into hysterics if you dare mention this...... sighting that it is not scientifically tested or proven...... as opposed to the chemicals that they freely give us that have been tested and proven to have some incredible side effects. ironic really.
I would love to hear from anyone further to discuss this topic.....glad I found you girls!!!
I have been seriously worried about my joints - constant aches - feels like my hips and shoulders are actually going to dislocate - I was anticipating knee and hip replacements before long - and then i found this site - much as livial is great for my mood - it seems like I'm not the only one suffering side effects, including horrendous acne - I am booked in for xrays but now I think it must be the livial!
Please share your experiences - i need to know whether there is any alternative out there for someone who has become my worst nightmare since an early menopause - impossible to live with and any excuse to do nothing...not good for the kids who just don't understand.
Hi there............am I glad I found you all.........same as...same as.....
I have been using the liveal for nearly a year now, with the prostap injection. I was given this because my PMT symptoms were so bad, I was suicidal to the point I had everything ready to do it! I just couldnt have gone on living the way I was.........
I am suffering excrutiating pain in my arms, now starting in my legs....forgetful, not sleeping and still having the sweats! and I think Iv also turned into a \"moaner\" I never used to moan!! On the bright side, Im no longer suicidal, but have to say I am no longer anything, no ups, no downs..........no nothing...........gained weight...quite a lot around my stomach and bum area! Nothing fits me anymore! But what do I do? Rock and a hard place comes to mind!! I just want to be me, who ever that is! I really dont know anymore! :? :x
Wow i cannot believe it, i am the same...taking livial...had an early hysterectomy...feel like i have been hit by a bus...
Anyone find anything else to replace it??
I did try a nasal hrt which was brilliant but they stopped it in England...now i might try going without anything as i am so moody i might do someone some damage!!
My wrist and knees are so so painful and it feels like i am been strangled...