Ich bin 20 Jahre alt. Ich leide seit 5 Jahren an einer Harnröhrenstriktur. Vor 5 Jahren hatte ich eine direkte visuelle innere Urethrotomie (visuelle innere Urethrotomie). Seitdem habe ich mich selbst gedehnt. Nach 2 Jahren Selbstdehnung riet mir mein Arzt, damit aufzuhören. Ein Jahr später entwickelte ich wieder eine Verstopfung. Mein Arzt führte eine Dehnungstechnik durch (ich weiß nicht genau, was es war, aber es war keine DVIU). Danach war ich wieder mit Selbstdehnung beschäftigt.
Jetzt habe ich kürzlich meinen Uroflowmetrie-Test gemacht. Alles war gut im Bericht. Aber kürzlich, während der Selbstdehnung, fühlt sich das Rohr sehr schwer zu schieben an, am Ende (am Punkt, an dem der Urin herauskommen soll). Ich habe das seit den letzten 3-4 Malen gespürt (ich mache Selbstdehnung einmal pro Woche).
Ich habe meinem Arzt das Gleiche gesagt, er hat mich angerufen und die Dehnung selbst durchgeführt (mit dem gleichen Katheter). Er sagte, alles sei in Ordnung, und gab mir einige Tipps, um den Schließmuskel zu passieren. Aber ich konnte es wieder nicht schaffen, also hat er mich jetzt wieder angerufen und will mit einem Zystoskop in die Harnröhre schauen (Er sagte "Durbin se dekhna padega" auf Hindi). Ich möchte wissen, was ich in meiner Situation tun soll und was der mögliche Grund für die Schwierigkeiten bei der Dehnung sein könnte (ich meine, mein Arzt konnte es schaffen). Sollte ich mich für die von ihm empfohlene Methode entscheiden?
Hi rohit43331,
If you can feel the stricture tightening, I would recommend you perform self dilation at least twice a week .this is what my doctor recommended. Also at the point of the stricture give a loud cough and push through at the same time. This definitely helps.
I had the same procedure over a year ago and now my structure has come back unfortunately. Will be going in for a repeat procedure soon and perhaps perform dilation again twice a week.
Urethrotomy is not a cure for this issue unfortunately but it helps us get by. I would certainly listen to the advise of your doctor and relax whilst performing your self dilation.
It may also be a good idea to get a appointment booked with a urologist specialist to make sure everything is OK.
Hope it goes well
Billy
I am a 51-year-old male, I have had stricture for about 25 years until it was almost impossible to urinate. I had DVI you once and about 12 months later it failed about three weeks ago, October 10, 2016, I had a urethroplasty. I Highly suggest a urethroplasty because it's got a 95% and above 6S right and it's a lifetime repair. The surgical procedure is significant and there is some pain involved however you'll be finished completely for the rest of your life and peeing like you should be. If you have the opportunity to get a urethroplasty, in hindsight looking back, I would say do it.
Typographical correction to JT465's previous post:
"95% 6S right", should have been "95% success rate".
Hi JT465,
Glad to hear of your success with urethroplasty.
The probl3m I have is I am 30 years old and about to get married mid next year. I know there are risks involved so I am trying to be cautious in terms of anything which can go wrong. But I am definitely considering it for the near future.
What do you think?
Thanks,
Billy
I completely understand what you're saying, and your concern. Please read other posts in other forums and you will see that Doctors provide medication after surgery so patients don't get erections while they heal. No one can predict what will happen in each individual case but my experience has been that I've had several erections since my surgery 3 weeks ago. Statisticaly you'l be fine. My advice to you is to select a surgeon that performs urethroplasty operations several times each week if you can. This is an important surgery and is a lifetime repair, do it right.
With you getting married you need everything in working order. Do you need it right now or can you wait. If you can wait do have it done in a few years or until you have to. This way you have your wife by your side. When you need it done have a urethroplasty done with the graft this way there is no cutting of the urethra. They would not the graft from the side of your mouth and open the urethrs where the stricture is and put the craft there. This way you have no penile length taking away. If you have a end to end. You don't know how much they will cut out. One man on here had it done and his doctor told him that he may have to take a each but when he woke up the doctor told him that he had to take 3 in of the urethra and it kind of mess up his sex life. Before you have anything done get all the information you can. Take it ease and good luck Ken PS I have a stricture that is ok right now thank god
Kenneth1955 has a valid point. I have been married 28 years and have been dealing with this stricture for at least 25. My stricture was 8 cm in length which is just over 3 inches, the doctors performed a buccal mucosa graft (BMG) which did not affect my length at all. Having my wife by my side was without doubt of most value during and after this surgery. Take all of the advice that people offer you and make the best decisions for you and your wife, she will appreciate being involved as you are now joining your life together.
Hello JT Yes having your wife by your side helps alot. You should not deal with this alone. My stricture is checked every 3 to 4 month's to make sure it ok. Did not even know I have one. They try to catheter me in the hospital and could not get it in tryed 3 sizes. My urologist said that they would have never got anything in that size. I have papers from himsaying if I have to have a catheter it can only be a 12Fr or 14Fr coude catheter so it will not mess it up. Take care all and be careful Get all the information you can and don't let a doctor cut ANYTHING OFF Ken
Where r u from? Where is your procedure taking place?
If you dont have any difficulties in passing urine, no blood, no pain or burning then you should stop worrying...
Hallo JT465,
Sie empfehlen eine Urethroplastik. Aber ich kann normal Urin lassen und meine Berichte waren auch in Ordnung (Uroflowmetrie-Test). Ich habe nur Schwierigkeiten, den Schlauch zu passieren, und das auch nur am Ende. Ich wollte dazu nur einen Rat.
Und ich wollte wissen, ob ich, wenn ich eine Urethroplastik möchte, in bestimmte Krankenhäuser gehen sollte oder ob das Verfahren überall gleich ist.
Ich komme aus Indien.
Ich komme aus Indien und werde im Apollo Hospital behandelt.
Ich habe keine Probleme beim Wasserlassen.
Aber das Problem ist das Selbstdehnungsröhrchen.
Ich muss es einmal pro Woche machen und kann es kürzlich nicht (wie oben erwähnt). Deshalb mache ich mir Sorgen.
As long as your passing urine I would not worry about it. How big is the tube maybe you can use a smaller one . Ken
I'm not a doctor nor do I work in the medical field. I've had a large stricture for 25 years and I have had a failed DVIU surgery in 2013, 3 weeks ago (Oct 10, 2016) I underwent a BMG urethroplasty. I'm only qualified to speak of my own personal experience.
I recommended urethroplasty because I could not pass urine at all and the pain was excruciating. I consulted a reconstructive urology surgeon in the U.S. and he and I agreed based on my dire case, reconstruction of the urethra via urethroplasty was the best long term solution.
The urologist completed many tests to confirm the presence and length of the bulgar stricture before recommending surgery. His approach was very methodical and comprehensive.
Make sure you're completely forthright with your doctor and read, read, read on your own. Together, as a team, you'll arrive at a solution that will work for you. Good luck my friend.
Vielen Dank, Herr, für Ihre Vorschläge.
Können Sie bitte etwas genauer erklären, was ich genau lesen und tun muss, um ein Team von Ärzten zu sein?
Ich meine, in meinem Fall gehe ich einfach zum Arzt und mache, was er vorschlägt.
Was your pain like a burn and very discomfort like needles pricking you? Did u bleed at times?? did it hurt when u ejaculated??
Where r u planning to do your urethroplasty? I am in the USA and looking for an appropriate doctor/surgeon.. Do not have insurance just worried about the cost
Not sure how it all works without healthcare insurance. I have insurance and I know my Urethroplasty cost over $60,000.00 The Buccal Muccosa Graft (BMG) inside the cheek requires one surgeon, the urethroplasty is another separate surgeon, thats two surgeons, two operating room tables, a team of anesthesiologists and about 5 hours in surgery on average. My stricture was 8cm (over 3 inchs) long and I was in surgery for 9 hours.