By no means take my case as any kind of indication on how your daughter recovery will progress, but here is my story.
I was rushed to the hospital with liquids pouring down my legs. I've stayed there for a month, was put on strong duretics, in first 4 days in the hospital I lost 15 KG of weight - that's how much liquid I had in my legs, and it was a very small portion that dissapeared in that time.
2 weeks after getting out from the hospital, I started college. After a month in college I was not getting better and I was put on Tacrolimus, which is a medicine most commonly used with organ transplants. The side effects hit me very badly, and in addition to the feeling of tiredness and lack of energy which heavily impacted my ability to focus and learn, I started to vomit and suffer from diarrhea on daily basis. I was forced to drop college for a year. In that year, I had up and downs, but managed to come back to college and finish a full year of it. Sadly, my condition worsened at the end of vacation and I entered my second year in college with huge legs from oedema and a small wound of broken skin from which liquid was dripping. Because my legs were still swallen, the wound didn't close and got bigger. The wound got worse, oedema got worse and bymas that year I couldn't my my jeans on, because my legs below the knee were bigger than my thigs (I am an obese guy). The wound wasn't closed. got bigger, a few more appeared and by January I officially had leg ulcers. Google leg ulcer and you will know this is not something that you would wish on anybody. For 2 years, I lived in constant pain, because the ulcers didn't close and were inflamed often. Living with constant pain is something that cannot be truly described, trust me. Now my legs are healed, although I will have huge scars for the rest of my life. My kidneys are better and I am beggining to reduce the doeses of medicine I take.
What you read above is a story of, what I have been told, an extreme case. I've been not showing imrovement for a long time and I was under threat of kidney transplant too, however, in the end I am ok.
I must admit that most of my hard recovery was due to me being obese and not moving due to pain/ lack of energy.
As I've said in my previous post, your daughter needs to move daily. You need to explain to her that she is sick and anyone defining her by the side effects of a terrible illness is not worth her time. If this doesn't work, you have to either (a) get her to move up and down the stairs, if you have them in your house, for however long it takes her to tire, at least twice a day; or buy her gym equipment to train at home, e.g. thread mill or execrise bicycle.
She can also help in reducing oedema by not standing or sitting in a chair if she is at home. What is best is laying down in bed or in a armchair and having her legs propped up on another chair + pillows so her feet are above her thighs. What my nephrologist also suggested was that I reduce the amount of water I intake daily to 1 liter. DO NOT DO THIS WITHOUT VERIFYING WITH YOUR DAUGHTERS NEPHROLOGIST! I am not medical expert and have no information about her blood tests etc., so ask your doctor and they will tell you if she should reduce fluid intake.
Going back to your daughter being self concious about her condition, it's a bit hard to me to give you adice as I am a boy and couldn't care less about what others think about me. What I can tell you however, is that you should be there for her as much as you can, get her to interact with her friends too. The illness will affect her as much as she allows it. If she is going to stay in the hospital, I advice you to spend all time you can with her, becaue NHS hospitals are true hell. Again, this may be different for her, because she is a girl, however, I was put in a room with 3 old men, one of which was dying and didn't recognise his family. another 2 were moaning in pain whenever they were awake and all three of them were not able to go to the toilet so they were soiling themselves in bed. If you can, try to pressure the nurses to put her in a room with girls similar age and condition. It is not always possible, but it's good to try. I don't know which hospital she will be in if she ever gets put into one for longer time, but make sure she has access to books and or wifi if she is addicted to internet so she has something to occupy herself with in there.
Sorry for unloading this on you, however, I will say it again, most likely your daughter will never experience what I have, but you need to be ready. Keep her company, explain to her as much as you can and encourage her to go out and exercise, because there is nothing wrong with being sick. Do not be afraid to pull her out of school if she gets bad, because her health is more important than education or friends. Talk to her doctors as much as you can. They will reassure you more than I can, because no matter how bad she is, they've helped people to come out from worse. Nephrotic Syndrome is an annoyance comparing to what other people have to be treated for.
Oh and to top it off i looked like i was 9 months pregnant and my face swelled up to the side of a watermelon ( its called moon face) Anyway my list of side effects could go on and on .