Hi I'm currently on low d la care but higher mobility so I have a car. Recently bought second hand scooter as I can't walk far at all now.
But had a p I p assessment... Even though she'd written I can walk more than 20 meters without being out of breath. Plus spinal problems. Then ticked the 50-200 M box. No points awarded on the planning a journey section. Even.though my b f has to drive me places. I don't go out socially. Suffer with depression and anxiety. Partly due to breathing etc. Has anyone had the same? Looks like I'd not even get standard mobility let alone enhanced. I have had an infection since the day before my assessment so am pretty I'll yet she said I looked well.......
sorry to hear this Caroline my husband had a similar scenario a few years ago he had been on the sick for almost 14 years with chronic arthritis 4 vertabrae are fused various other problems including depression and anxiety when he had his review lost his claim as the lady had put down he could walk with ease sit down for a long time and walked in the room with a large bag in both hands he was in the room 5 minutes walked with a stick and had a small bag with his medication in he has never had a penny from benefits since and is unable to claim they say unless he get progressivly worse or suffers stroke heart attack or cancer it is disgusting especially whe i am the sole earner and i have been off work with pneumonia etc for 5 week i am by no means better but have no option to go back to work we cant pay our bills otherwise x
Sounds awful. They are killing us all off slowly. Never slept wheezing all night. Start to gather up evidence ready this week.
If heard so many horror stories. I hope you feel better soon. But keep fighting I will x
Made me chuckle she put I attended alone. But my b f drive me and stayed in.waiting area apparently he's invisible.
X
I think your husband should apply again and if he gets refused then appeal. It's too late to appeal the original desision.
Morning Caroline79096, I understand just how you & others feel I've had to appeal several times I won the first time for both esa & pip then I was called back way before the pip ran out I had an appeal against both esa & pip in the end I got through but not without the help of a Welfare advisor attending the tribunals! I'd advise to get an advocate or a Welfare advisor or see someone from citizens advice, I was also lied about I could do this & that & I could walk 45 meters around the assessment centre without stopping which was an absolute lie & that was even with a witness a Welfare advisor with me they knew he was because they ask who the person with you is! So I know full well how it is & sure a lot off other people on here have experienced the same or worse! Please Don't give up, & allways if you can make sure you have someone with you! Please let us know how you get on! Xx
we did appeal the original decision and even his Doctor at time was upset said his hands were tied and showed us the email sayin on what circumstances he could claim this was 2 and half yrs ago so may be worth when he goes to doctors again to see if he can re.apply x
I actually had a pretty decent nights sleep first one for 5+ weeks still wobbly wheezy etc but chest not as tight as yesterday hopefully may be on the slow rd to recovery heres hoping x
Thank you. I got o points with e s a due to him lying but appealed won. If sent in the report to my Dr. With my notes added.
Going to see c a b Thursday I hope.
Glad I asked for the report strait away. Didn't wait for the award letter. They are holding off for a month.
To give me time to gather evidence. It's despicable all I hear are bad stories. Now I'm really I'll in bed. Can't sleep oh well I will keep onto them. X
That's good. I got about 4 hours. Hopefully better tonight. Good luck x
Hi Caroline! So sorry your ill in bed I'm not surprised they have that effect on us they cause us to feel ill, it don't matter to them how many lives they make worse some of them, some off them can are caring but a lot of them aren't unfortunately, I hope they stop calling us back for assessments off esa & pop when they have all the evidence in our notes from our Drs/hospital or nurse/clinic whichever as it's pretty clear it's real evidence & it's not going to get better unfortunately! It's ok for them because they're not the ones suffering like we all do that have ill health & disability! We will not give in, meanwhile Caroline get plenty off rest be kind to yourself & take it easy, wishing you Well very soon & please keep us updated! Xx
Hi Caroline just correcting myself it was meant to read ESA & PIP
Hi Caroline! My mind is definetly departing from me Lol! For got to ad I hope all goes Well for you with your appeal, please keep us updated & We are all here on your side good night & some Angel or Celtic Meditation might smooth your mind, to take the thoughts of this hellish time aside while waiting for your next appointment with advisor/appeal if you can get to play some music as suggested might help,hope it helps! 😊Xx
Might Sooth your mind not smooth!
Hi Caroline, the British lung foundation can give help with benefits, advice any way and Age UK will come out to your home if you can't get out, citizens advice bureaux is you next option to get help with the form.
On next application you can request them to come and assess you at home or you can take someone with you to the assessment.
I know its very difficult the key is to keep focussed on what you can't do when they assess you and filling in the form, even when they ask what its like on a good day, , think of it as a better day and mention the restrictions even on a good day. I found when I did it they disregarded entirely what I couldn't do and just picked up on what I could.
Ask on the blf site at healthunlocked, there are lots of posts already on PIP application, assessments with links.
Good luck with it all and take care of yourself.
By the way you can't walk 20 metres without being out of breath, especially when you have an exacerbation and if recovering from pneumonia, mention the exhaution, slowness, need for rest breaks, paint etc. What we are coping with day to day becomes normal every day for us, we don't like focussing on what we can't do its upsetting, but that is precisely what we have to do and communicate it on the form and at the assessment without candy flossing any thing in order to get any where near a successful claim.
Thank you. I've joined up with Fighting for Justice. There's some brilliant advice and information. So lots to read!
Chest slowly getting better but mainly stress I expect t. The assessor was a nurse but didn't take b p oxygen pulse peak flow nothing. Yet that's my main.problems. When I go into Dr or nurse it's always done. Usually 3 b p as it goes up high if I've walked even a few meters. So fingers crossed Dr can help prove it. Thank to all who replied x
Haha glad Not the only one who gets muddled plus auto correct on.phone didn't help lol.
Thank you and yes it's common.since I'd think. My bungalows tiny but still if I walk from front room to kitchen I'm puffing. That's only about 12 meters. And my b p and pulse shoots up. Even the nurses have realised once I sit for 5_ 10 mins it goes back down.
I'll check out the lung website thank you.
Morning Caroline! That's great taking up the fight for justice! Is that Amnesty international or change org I sign a lot off petions, good on you & don't give up the fight, stay Strong! Hope your feeling less stressed & a bit better though we are not going to feel great a lot of the time, take it easy & keep aswell as you can & please if you can keep us updated! X
Hi it's a group by that name. They help people like us get p I p e s a etc. Legally trained but free/small donation.
Still got chest infection but rest as much as possible. Probably all the stress picked up germs. I've got Citizens advice Thursday all being well.