Hey all, I'll try to keep it short :) *I have Lichen Sclerosus since I was a little girl, and been diagnosed with a biopsy in 2011 at age 19. *Since then I had used the standard topical steroids cream/ointment + pelvic floor physical therapy (when I had the mental patience for practicing at home...). *The steroids attracted HPV and yeast infections constantly. *A year ago I pressured my gynecologist to stop the steroids and find a different treatment. READ THIS: Since last October (a year now) I've been using a special compound of: Traumeel in Petrolatum 10% My gynecologist prescribes it to a pharmacy in Philadelphia that compounds it especially for me. What is Traumeel exactly? I'm not exactly sure. Some kind of anti-inflammatory. A fixed combination of diluted plant and mineral extracts. Petrolatum is just the "carrier" and it's basically what we call Vaseline. There is a shelf product called Traumeel that is used mainly for muscle pain - my gynecologist had advised me not to use it. He only experimented with the special compound and never tried the shelf product. But in general - he doesn't like shelf medications. *Moreover, I use Coconut oil twice a day. *The Traumeel compound + coconut oil twice a day + pelvic floor physical therapy once in a while = - I am currently in full control over my LS. It is the best it has ever been in my entire life!! - The HPV is Gone! - The yeast infections are Gone! Is there anyone here that has the same experience? Kisses, DO21103
Hi…I have had LS for 4 years and see a doctor (Dr. N.) in Philadelphia - when u said u were from there also I would LUV to speak with your doctor and see IF I, too, can get off of steroids…would u please share info…thanks…Vickie
For those who want to read an NIH article describing this apparently popular inflammatory in Germany, Austria and 50 other countries:
I am totally confused as this medication (Traumeel) seems to be used for muscle strains - what does this have to do with treating LS???
please help lichen sclerosis the discomfort is making me ill my nerves are in shreds
I’m not using the shelf product. I’m using a special compound prescribed especially for me.
Do you see a specialist? how do you treat the LS?
Best to remain a bit skeptical on the article given that it was funded and supported by the manufacturer.
Sure.
But again, I’m not using the shelf product. I’m using a special compound that my doctor prescribes to a pharmacy in Philadelphia.
I couldn’t find any information online regarding Traumeel and Lichen Sclerosus, and I don’t know if there is any research happening as we speak.
But I do know that this is a little experiment that we are doing. So far (a year now) it has been good. I also know that he has another patient that has Lichen Planus that is using the same compound.
I was desperate to stop the steroids and find a natural solution so I took the chance. I kept taking pictures of my vagina every week to make sure it looks good. And also don’t forget that I’m using dilators and coconut oil obsessively.
your info was the most information I have ever heard…thanks for sharing…I also, see a doctor in Phila…is it possible for u to email me directly with his name? TX…Vickie
I wasn’t recommending it as this is the first I’d heard of it and have never used it. Just putting the info out there for people to read. I’m going the Tacrolimus route right now and hoping for the best with that.
oops. meant anti-inflammatory
Here’s more info on Traumeel injections. It is a Homeopathic remedy, apparently.
TRAUMEEL Injection Solution is an anti-inflammatory, anti-edematous, anti-exudative combination formulation of 12 botanical substances and 1 mineral substance. TRAUMEEL Injection Solution is officially classified as a homeopathic combination remedy (1).
Botanical ingredients:
Arnica montana, radix (mountain arnica)
Calendula officinalis (marigold)
Hamamelis virginiana (witch hazel)
Millefolium (milfoil)
Belladonna (deadly nightshade)
Aconitum napellus (monkshood)
Chamomilla (chamomile)
Symphytum officinale (comfrey)
Bellis perennis (daisy)
Echinacea angustifolia (narrow-leafed cone flower)
Echinacea purpurea (purple cone flower)
Hypericum perforatum (St. John’s wort)
Mineral ingredients:
Hepar sulphuris calcareum (calcium sulfide)
Injection Solution: Each 2.0 ml ampule contains as active ingredients: Hepar sulphuris calcareum 8X 200.0 µl; Belladonna 3X 20.0 µl; Calendula officinalis 3X 20.0 µl; Chamomilla 4X 20.0 µl; Millefolium 4X 20.0 µl; Aconitum napellus 3X 12.0 µl; Bellis perennis 3X 10.0 µl; Hypericum perforatum 3X 6.0 µl; Echinacea angustifolia 3X 5.0 µl; Echinacea purpurea 3X 5.0 µl; Arnica montana, radix 2X 2.0 µl; Hamamelis virginiana 2X 2.0 µl; Symphytum officinale 6X 2.0 µl. Each 2.0 ml ampule contains as an inactive ingredient: Sterile isotonic sodium chloride solution.
Clinical Pharmacology
The exact mechanism of action of TRAUMEEL Injection Solution is not fully understood. Various cellular and biochemical pathways appear to be modulated by the product ingredients. The mechanism of action of TRAUMEEL Injection Solution does not appear to be the result of cyclooxygenase or lipoxygenase enzyme inhibition, as is the case with nonsteroidal anti-inflammatory drugs (NSAIDs). TRAUMEEL Injection Solution does not inhibit the arachidonic acid pathway of prostaglandin synthesis. Instead, the mechanism of action of TRAUMEEL Injection Solution appears to be the result of modulation of the release of oxygen radicals from activated neutrophils, and inhibition of the release of inflammatory mediators (possibly interleukin-1 from activated macrophages) and neuropeptides (2).
In vitro studies show that the ingredients in TRAUMEEL Injection Solution are noncytotoxic to granulocytes, lymphocytes, platelets, and endothelia, which indicates that the defensive functions of these cells are preserved during treatment with TRAUMEEL Injection Solution (3).
The anti-inflammatory, anti-edematous, and anti-exudative effects of TRAUMEEL Injection Solution have been demonstrated in clinical trials as well as in in vivo experimental models including the carrageenin-induced edema test and the adjuvant arthritis test (3).
Indications and Usage
TRAUMEEL Injection Solution is indicated for the treatment of symptoms associated with inflammatory, exudative, and degenerative processes due to acute trauma (such as contusions, lacerations, fractures, sprains, post-operative wounds, etc.), repetitive or overuse injuries (such as tendonitis, bursitis, epicondylitis, etc.), and for minor aches and pains associated with such conditions. TRAUMEEL Injection Solution is also indicated for the treatment of minor aches and pains associated with backache, muscular aches, and the minor pain from rheumatoid arthritis, osteoarthritis, gouty arthritis, and ankylosing spondylitis.
Well, I just tried posting info on traumeel injections but it was blocked. Anyone interested can google.
I am in the UK and we only have the Traumeel for the muscle stuff. Can that be tried as a last resort? I don’t think I could get your version made here…
hey Vickie 00010 - i sent you a private message with my doctor’s information.
I am not familiar with Traumeel INJECTIONS. I’m using a topical ointment.
Try to find a pharmacy in your area (or that is able to ship to you) that can do
compounds by request.
What you need to request is - Traumeel in Petrolatum 10%.
They will know what to do.
If they require a prescription then ask your doctor to prescribe it.
Petrolatum is the carrier for the Traumeel.
I was offered 4 different options for the carrier. I tried each one for a week (plain, without the Traumeel) and chose Petrolatum since it was the carrier that i felt the most comfortable with. Other options burned a little bit.
When you contact the pharmacy ask if they can send you plain testers for different carriers so you could choose the one that is best for you. Try each carrier for a week.
I hope that helps!!
Thats so helpful than you very much. I am trying olive oil now but if it doesn’t help will get this sourced somehow. x
Oh DO! Thanks for your wonderful detailed message. It’s wonderful to hear about other peoples responses to steroids. I’m not in your age/stage of life (73), so my experience is way beyond menopause. But just to share: I haven’t taken the steroids at all in the last 2 years since diagnosis. I have used a whole slew of autoimmune nutritional supplements that I read up on online that are validated by NIH and MD’s and such professionals.
Most of us here eat a pretty much anti-inflammatory diet. Was that ever recommended for you and your mother when you were young? I’m so happy for you that you finally got old enough to notice that steroids have terrible downsides. Many blessings. OH, and if you ever want to change it all up, you could have your compounding pharmacy put the Traumeel in the soothing, healing aloe vera gel instead of the petroleum product. A health food store nutritionist told me about that a year ago when I was having a flare… SO wonderful. YOu might find these useful that I wrote up about 18 months ago for us all.