I was diagnosed with hyper mobility syndrome 3-4 years ago, it started off with my hips and now my back, shoulders and knees are having problems, but for the past 2 weeks my hips have been so bad.. Especially my left hip. It started of with a little bit of pain and now it's got to the point where I can barely walk and sometimes it causes me to lose balance or even fall over. Has anyone got any advice, I'm on a 6 month waiting list to start physio again and I've got painkillers but they aren't helping. I'm really struggling to walk and stand.
Hi usually in women hip pain is worse when your period is due this is because your ligaments become more lax because of hormones. I never work mine out, I know when I'm due on because of the pain that I'm in. Sometimes different contraception makes pain worse. It's really important that you keep active and don't let your muscles get weak as you can't improve ligament laxity so you need your muscles to support your wobbly joints. Try and prevent using a stick because they can be the cause of scoliosis (curvature of the spine) . When something is out of alignment it sets something else off. For 15 years I was treated for pain in my knee, then I discovered it was coming from my back. Try and get a referral to a podiatrist if you have wobbly feet as they can prescribe insoles. Good luck
Hello sam38459
I've already got scoliosis in my back and my hips are tilted. I'm 19 which kind of sucks, I try and keep active as much as I can but have been told I'm not allowed to the gym. But about the contraception, I have recently had the implant fitted so maybe that isn't helping with the pain.
Yes that is probably what is causing your extra pain. I had the same problem with the implant. I was OK on the coil but it kept stabbing my partner which was great contraception! I think hormones play a massive part with hypermobility. When I was pregnant with my first child I had no pain while I was pregnant. I've been in pain since the age of 16 , I'm 42 now. It's really tough when you're so young. Hopefully you will find something that will work for you.
Yeah I didn't agree with the coil and wow really! Bless you that's such a long time to be dealing with it. Thankyou for the reply
Bonjour Seren81986, ma fille a EDS-H/SFC et a suivi une kinésithérapie pour l'arthrose de ses hanches, en raison de la laxité des tissus ne soutenant pas l'articulation de la hanche, cela a frotté et causé de la douleur. Elle souffre des pieds (très plats en raison de l'EDS), des chevilles instables, des genoux......elle a toujours eu des douleurs dans toutes ces articulations, mais on l'a envoyée chez un podologue pour des semelles intérieures qui sont en cours de fabrication....(sa deuxième paire)......cela a fait une énorme différence pour sa posture, ce qui a un effet en cascade sur l'alignement de ses chevilles, genoux et hanches....j'espère que vous trouverez bientôt une solution.
Hi I'm 51. Had joint hyper mobility syndrome diagnosed at 17. Not much was known about it in NZ back then. I later found out I also had hip dysplaysia. From trial and error I can say that being on the pill helped quite a lot. Being pregnant was ok to.
Swimming and static bike helped the most. Tried my best to keep muscles toned but with low impact.
Dealing with pain that is endless is another matter entirely. Each person is different there.
I managed ok over the years. Kept my hip replacement away till this year.
Good luck