Hi
I was diagnosed with CS at the age of 36. I am now 43. The CS has affected my upper body strength very badly - I no longer work, drive, dance or swim. I cannot lift heavy things, or garden. I cannot make a bed, and I cannot hoover, or iron. (No great loss there then!!). Some days, I struggle to open packets, or peel potatoes.
I too suffer from pins and needles and numbness in both arms, sometimes pain in the legs.
I have CS in the left side of my neck, it is my right side that feels the pain, demonstrates pain, etc. I also have a mirrored weakness in my lower back - right side of course. This pain is real - it stops me from doing things = sleeping, moving etc. I am imbalanced.
You work as a whole - if something does not work properly, then the effects will be felt somewhere else. Muscle pain can be incredibly painful in its own right. It also needs to be looked after.
I have had a lot of physio, (18 months) and a lot of chiro, (4 years +),
Physio did a lot - I had lost 50% of all movement Some of which I did get back even if it is limited. Chiro does maintain movement. It is not a cure however. It wlll never provide a cure for me.
I have had an MRI, X-Rays, I have seen 3 Ortho Consultants, 1 Neurologist, 1 Rheumotologist, 3 Pain Management Consultants
I have also recently been on the long term pain mangement programme at St Peter's Hospital.
This I found difficult. I wanted to go on this programme, because I had run out of answers. I struggled with what I found - CS is a chronic condition - the truth is that you have to learn to live with it and manage it accordingly. This has messed with my head, because all the methods I had been using to manage this condition, were really not doing me any favours - loss, depression, for starters. They are saying you have to learn to live with, and manage this condition - there is no cure. The choice is up to you - if you really want to do somehting, you will do it, but you will pay a price. The rest is about managing your life, and accepting your limitations. That is very difficult, and is a long term solution.
This is not the solution for everyone - this is just the conclusion that I have reached.
I hope that this helps.
Regards
Juniper