I have had an irritated bladder for 6 years, but they can't find anything wrong, I keep getting cystitis I feel better taking antibiotics but as soon as I stop it comes back again. Does anyone else have this?
Oi, sinto muito que você tenha visto médicos por seis anos e não conseguiu um diagnóstico adequado. Isso deve ser terrível para você. Você tem visto um especialista, um urologista? Também, tomar muitos antibióticos não é bom para você. Espero que você esteja tomando um bom probiótico todos os dias. Minha ginecologista me disse que a IC não pode ser ajudada com antibióticos. Você precisa de uma certa quantidade de bactérias na urina para atingir esse nível de infecção. Acho que ela disse que era algo como 100.000 unidades... eu nem cheguei perto desse número, então não foi considerada uma infecção verdadeira. Eu acho, para mim, a dieta certa ajuda... mantendo uma dieta mais alcalina e evitando os alimentos e bebidas "ruins", bebendo muita água e muito frequentemente, exercícios, principalmente pilates. Se você ainda não tentou, talvez possa tentar alterar sua dieta e depois ver se isso ajudou. Os melhores votos... eu sei que é doloroso. Uma crise pode surgir a qualquer momento, não importa quanto cuidado você tome. Isso é uma merda real.
I too suffer regular bouts of cystitis and have been given a low dose of Trimethoprim to take after sex and when I feel irritated I have found this helps a lot. It was also recommended to me to buy cystitis the complete self help guide by Angela Kilmartin in one of these threads and that was really good. I read it all in one sitting it gives a lot of tips to manage and help avoid the frequency of the cystitis and it was only a couple of pound so well worth a read.
Hope you get some relief from this soon
Yes I have seen urologists, they say they can't find anything wrong with the bladder. I do eat healthy and exercise as well. I keep urine strips at home because I can't tell the difference always if it's cystitis or not. I am just getting over a bout of cystitis, but as my bladder is always irritated it is very difficult. I don't always have to keep going to pass urine as well. So I am not sure if I have this or not. I find ice packs help a lot as well.....
Os urologistas não conseguem encontrar nada de errado com sua bexiga, mas você continua sofrendo. Eu não entendo. Você pode pedir diferentes médicos? Eu sei que isso pode parecer loucura, mas não conseguir ajudá-la nesse tempo todo me intriga. Parece que você está fazendo todas as coisas corretas, incluindo dieta. Quando você diz que come saudável... você está ciente de que com IC existem certos alimentos considerados ácidos e que devem ser evitados? Se você tentar evitar esses alimentos e bebidas, talvez isso ajude? Além disso, seu urologista já lhe deu um cistoscópio? Este é um procedimento leve em que um tubo fino com uma câmera e luz na ponta é inserido através da sua uretra e na sua bexiga para que o médico possa visualizar o interior da bexiga. Sua uretra é o tubo que leva a urina para fora da bexiga. Eu imagino que se seus médicos disserem que não conseguem encontrar nada de errado, você já pode ter feito esse exame. Só me pergunto por que eles não conseguem encontrar o problema. Só para você saber, com os meus sintomas, só sinto urgência quando estou tendo uma crise. Para mim, isso pode acontecer ao beber cafeína (ainda não desisti do meu café), além de outros alimentos considerados muito ácidos (como tomates... até vinho). Uma vez em uma crise, sinto dor pélvica que pode variar de leve a grave. Acho que se beber muita água destilada isso ajuda muito, assim como o exercício (a maioria das vezes). Às vezes, a dor pélvica parece cólicas muito fortes. E quando tenho que ir ao banheiro, posso sentir pressão antes, durante e até depois de urinar. Desde que isso começou comigo há cerca de nove meses, acho que se me manter com os alimentos corretos, água, etc., consigo controlar as crises um pouco melhor. No início dessa confusão, eu estava tendo dores horríveis o tempo todo. De qualquer forma, sinto muito não poder ajudar mais. Seus especialistas precisam ser capazes de diagnosticá-la corretamente... esse é o trabalho deles... e não dizer que não sabem. Se um especialista não for capaz de diagnosticar corretamente dentro de um período de seis meses, talvez seja hora de procurar um médico diferente. Espero que você se sinta melhor.
I have had a camera put in the bladder, and also seen 3 different urologists, the only thing is I do have osteoarthritis in my back, and they said it could be that what is irritating the bladder. I have always suffered with cystitis but it's getting more often now. And when I don't have an infection it still feels like I have. I know all about the different foods and not to eat anything to acidic. Thanks anyway
I hope you feel better but
I was having a lot of uti symptoms but no bacteria and my doctor said it could be cystitis. He recommends that I take cranberry supplements daily
Have you had any hematuria?
Have you had a cystoscopy?
Scan or ultrasounds?
Oi, li sua resposta e fiquei curiosa para perguntar se você tem tomado os suplementos de arando. Quando fui diagnosticada, minha ginecologista me deu uma lista de alimentos para evitar e um deles é o arando. Só estou curiosa para ver se os suplementos te ajudam de alguma forma.
I have had cystoscopy, scans and ultrasounds. A lot of the time I have the symptoms but there is no infection. Do the cranberry supplements help?
No I haven't started yet, not sure if I will. I know lots of people who have the same as me and all they say is you have an over active bladder. What they mean is the age thing..
Oi... eu sei que a bexiga hiperativa parece afetar principalmente mulheres na meia-idade. No entanto, a CIC pode afetar mulheres (e alguns homens) em qualquer idade. Eu já respondi a mulheres neste fórum com idade a partir de 20 anos. Algumas mulheres que escreveram sobre bexiga hiperativa começaram a fazer autocaterização. Isso as livra de ter que ir ao médico com tanta frequência e não é conhecido como tendo cistite intersticial.
I printed out the diet for I C and cranberry juice was one of the juices not to drink. All citrus as well
Nova neste site. Nos últimos 9 meses, várias infecções do trato urinário e cistite. Fiz ressonância magnética, tomografia computadorizada, cistoscopia e flexível. Ontem, fiz uma cistoscopia rigorosa e um cateter foi colocado por uma semana para ver se dói menos antes de outro exame especializado. Meu Deus, às vezes eu desejo estar morta em vez de ter essa dor. Lyn, sinto sua dor, lamento saber que você está há 6 anos sem diagnóstico. E eu reclamando de 9 meses x
Hi Lyn. I am 61 now, was diagnosed with IC when in my 20s. On and off problems, but this past 4 months HUGE flare. Urine negative as usual, and this time the antibiotic (personal stash, because providers wont prescribe it) didnt work. I went online and found some you tubes of physical therapists showing how to use a device "pelvic wand" (it looks creepy, but i was DESPERATE.) I got one by mail, read EVERYTHING i could, and now i am doing the personal pelvic muscle therapy, which is basically applying steady gentle pressure to the trigger points. Interestingly, the trigger points on the pelvic muscle mimic the urethral and bladder sensations! The pressure is held for about 5 minutes while deep breathing, NOT HOLDING BELLY IN.
Someone out there in you tube land associates the CONSTANT HOLDING IN OF OUR BELLIES (we all do it, dont we) as causing overstimulation of the pelvic floor muscles. Makes sense, all muscles are attached down there. So now, i have been IN CONTROL of the spasms. Once a day. Takes about 30 minutes.
When i got flares in the past (seems mostly related to wearing tight pants! Vanity, thy name is woman!) I would ice the area immediately for instant relief. Then take an aleve or two, then half a benadryl and drink lots of water. Then, a hot bath with lots of epsom salt.
Now i follow this with the wand therapy. And trying to retrain my bladder to wait at least 30 min to an hour (if i can stand it, hahahahah, usually cant, but that first relaxed voiding is like heaven.)
AND MOST IMPORTANTLY, NO MORE KEGELS. NO MORE HOLDING IN THE GUT! I practice letting my pot belly GO in the car, at home, or anytime i dont think anyone is watching (really now, at my age no one is watching!)
So, i hope this helps. Hope you dont have to wait till your 60 to get control of this thing.
I havent changed my diet, but i do avoid acidy drinks (but sometimes still do, not a trigger like the tight pants thing). Dont give up! Doctors werent much help for me. The physical therapy thing has been a godsend. Apparently there are physical therapists who specialize in this thing "pelvic muscle dysfunction" here in the u.s., not sure about u.k. good luck!
Dear me. I am waiting for cystoscopy for painful bladder and I also have bad degeneration of spine. I didn't know it could be connected. I will ask my consultant at my next appointment !!
Hi,
New here, so sorry for any mistakes!!
I can relate with what you are saying definitely. I’ve been having problems since March and my Urologist has decided I have Interstitial Cystitis. I’m having the same sort of issues as you... I was initially on and off antibiotics because my pee tests never showed any infection on normal tests but antibiotics ALWAYS helps my symptoms.
My main symptoms have been some discomfort (not unmanageable currently), feeling like all the energy has been removed from my body (which has affected me most!!) generally feeling a bit unwell, slight temperature and a tonne of anxiety/depression.
I do pee tests almost daily and there is almost always Leucocytes and Protein at some levels.
I’ve had an ultrasound and also I had a cystoscopy earlier this year which didn’t show anything in particular.
After this, my urologist left me to suffer for a bit and i had to beg antibiotics from my GP just to keep working to pay the bills until i managed to get back to see him.
As my Urologist didn’t seem to know what to do, I suggested longer term antibiotics which he didn’t expect to help, but at the moment they are just about keeping me going (which really surprised him last time I saw him), but not fully as I really struggle with energy, feeling a bit pants all the time and my anxiety is through the roof some days.
I’m now on a low dose of Trimethoprim nightly for the foreseeable, but i feel like I’m being fobbed off a bit and I don’t know at what point they will stop working or what I should be doing next.
I’ve also been taking D-mannose for a few months although I’m not sure if that helps and also daily probiotics.
I’d be really interested to hear from other similar people to see what they think and what they have tried and whether I should be pushing for more from my Urologist (or a second opinion) or just learning to live feeling so drained all the time and struggling from week to week.
Much love to everyone here!
Hi all,
I'm due to have a cystoscopy for "IC" diagnosis. Pretty sure it all started 2 years ago when we moved back to the UK from Canada.
Most of the time I had the urine dip test, it was negative......I also keep the test strips at home for flare ups.
If this urine lab analysis comes back negative, I'll be referred for the cystoscopy, but I'm also going to have some ob/gyn tests done to confirm all round health "down there".
JC
Does anyone know if "IC" is an auto-immune disease, as I've read that experts think its several diseases which is why its difficult to diagnose.