I was rushed into hospital on April 1st, where they found I had a massive saddle pulmonary embolism and was given IV thrombolytics, in hospital for 10 days and came home on rivaroxaban.
But still after approx 18 weeks my chest pain is stillso bad, why is this?
My doctor has given me 30mg Zomorph (slow release) morning and night plus Oramorph to use as a break through pain relief, when need, which tends to be around 5ml every four hours,
I'm on other medication due to on going other health issues.
Hi Elizabeth I was diagnosed last August. So now a year on and I still occasionally get pain. mostly lower back now. This is a very long slow recovery. Some people are able to recover quicker but you really have to take it easy little steps until you grow stronger. You have suffered major trauma. It does get better each day. Good luck. This forum is fantastic. 💐
😊😊 During first part of recovery I had the crushing heavy pain across my chest. I think the lower back pain/ache is probably due to lack of exercise ,bad posture and weight gain which are all part and parcel of this illness. I am pleased to say I am tackling all those issues now. Have lost the weight I put on and walking further each day. Another issue was anxiety which this forum helps with . xx
People experience pain in many different places after a PE, Like you I am new to all this, I'm coming up to 4 months after diagnosis and I still experience pain in the original place of the clot (left calf muscle) leg still swells up every now and then, I get the text book PE chest pain but because I also suffer from angina I get the crushing/heavy feeling in the chest, centre radiating to left side, now depends which emergency doctor you speak to their opinions will vary, some say heavy/crushing chest pain is non PE related while others say it is.
I still get breathless quite easily even having a simple shower or getting up out of a chair, in the last 2 weeks I have been getting the (text book) stabbing type chest pains and back pain, upper and lower, different pain to my angina pain, does get rather painful when both pains present at the same time and often takes me off to the emergency department because one is just as dangerous as the other.
The reason I'd say people experience pain in the chest and back is because the closeness of the lungs to the heart , this is why people should get checked out when the pain comes back intensely as PE's tend to make the right side of your heart work harder, that's what they had found with me and I have seen others here with the same problem. If in doubt always go see your GP and if it is so bad that you can't get to your GP get seen in the emergency department.
The answers that were given to me when I asked my GP and other doctors concerned, is, recovery is slow, breathlesness and pains generally take 6 months to over 12 + months to resolve from PE's They say we are safe if we continue to take our prescribed blood thinners, but as we know the laws of science doesn't always work that way for a lot of people. The emergency doctor did tell me that If I ever had a fall, collapsed etc etc and hit my head not to ignore it and to get into the emergency department immedietly because there's a risk of a bleed into the brain, or you are vomiting or continually coughing up blood . Vomiting or continually coughing up blood can happen to some people who haven't even had a fall. This is where doctors have to decide whether it's the result of original or another PE or a side effect from the blood thinners.
Hi Elizabeth, I've been reading that recovery really depends on the individual, just try and listen to your body and do small things when you feel up to it. I'm just over a week since being diagnosed with extensive small clots in both lungs. On Fragmin injections twice a day. I can completely relate to your anxiety as I've had it my whole life, got an abdomen and pelvis scan tomorrow that I'm really really worried about. I think a lot of people that have PEs and can have an elevated anxiety level, I've been almost unable to eat for a week and haven't really left home. I'm sending you lots of positivity and good wishes and hope you start to feel better soon.
I'm sorry to hear of everything you are going through,
Yes it's really is scary and depending on which doctor or consultant you see, they all have different opinions/answers.
Which is why I joined this group to talk to real people that had, have and are also still dealing or should I say trying to live as normal a life as we can after a PE.
I know the one thing that has been said to me by numerous consultants and doctors is that I'm lucky to be alive.
And I think this should be said to everyone on this group that you are all lucky to be alive as so many PE's are found post-mortem.
My thoughts are with you when you have your scan and I wish you so much good luck.
Please try to eat, even small amounts as you need to keep your strength up as coping afterwards with any PE's is exhausting.
You are so lovely Liz and thank you for you lovely replies.
My name is Paul. I have just called up the hospital to ask about the coughing up blood and just waiting for their call back. These forums are great for talking to others who have had PEs, the doctors at hospital really didnt tell me anything other than to inject myself twice a day lol.
Anxiety really is a horrible thing and like you I suffered it for ages.
I hope you start to feel better soon and thanks again for you caring replies. x
from what i have been reading about other people Liz it's a real gradual process getting better and we have to take it easy and listen to our bodies. feeling quite hungry now so might take a slow walk to Sainsburys and treat myself to the biggest bar of chocolate i can find lol
I know just calling someone for advice can also be hard.
Fingers crossed you get someone that understands what you are going through.
My belief is you treat people how you want to be treated.
I agree these forums are great as on here we are all here to support each other as we know how it actually feels like to have a PE, not only physically but emotionally as well.
Take care hun and I know I've said it before but please try to eat.