I've been diagnosed with pernio/chilblains, but what I have doesn't seem to match what I'm reading here and the descriptions on the web.
I get the red nodules described, but also more widespread swelling on my toes. While cold -- specifically, below 20 degrees Fahrenheit cold -- triggers it, it continues to spread. For example, I stayed home because I had swellings on my toes and on one finger, and after 36 hours I got swelling on two other fingers, despite not going outside at all. The only cold exposure was opening the freezer, which I do every day.
The swellings don't ever itch, but they can be extremely painful. Thanks for any insight anyone can offer.
same here, its raynaud syndrome! our body freezes and is warming by itself ☺
Sounds like Raynauds to me as well Linda. I've suffered since I was a child (I'm now 61) and last year I decided to speak to my GP as before I always thought it was too trivial a thing. Anyway I had blood tests and have now been prescribed nifedipine. The chil lain I had in August very quickly disappeared and up to now I've not had any more. Take care and keep warm.
Interesting, thanks...I have Raynauds as well as erythromyalgia. But with my Raynauds' reactions I just get pain. These swollen areas persist for weeks, which is why I think they were diagnosed as pernio/chilblains.
raynaud causes chillblains.. i got huge painful problem in fingers and toes... they look like sausages... i try to protect them but they multiply.. just be patient, when summer comes they go.. its allergic reaction to cold temperatures
That sounds like my problem, indeed. I've been trying all kinds of folk remedies, as none of the medications help -- except Prednisone, and I don't want to take that all winter long as I have in the past. So far I've found soaking in warm water and Epsom salts brings down the swelling considerably and helps the pain. Also, Aloe Vera helps the pain but doesn't bring down the swelling.
hmm i trued aloe vera... it does nothing to me.... when i wake up i can't move my fingers.... my doctor told me to put them in cold water and right after in hot water.. it helps blood to move in veins. it helps a little. try it in the mornings.