Hiya. I'm new here. Just been diagnosed with fibromyalgia, didn't know what it was until I started to do some research and realised I've had the symptoms for quite a while and being overweight doctors put it down to that. Seen a new doctor and feel relief that someone is listening to me. The worst pain I get is in my neck and shoulders which is constantly there! But also elbow, hip, ankle and big toe! Has anyone been diagnosed then it's disappeared? Can anyone recommend treatment to ease it? Hubby saying "oh a good massage will do" however it's too painful for anyone to touch because he can't physically see what's wrong it's hard for him to understand. Trying to get a grip of things!
Hi Kerry. I too have the constant neck and back pain. I descibe the feeling as wearing a heavy back pack at all times. There are numerous medication cocktails that doctors can try to help find what's right for you.
Stress, illnesses, and certain foods can trigger symptoms. Minimize nightshade vegetables, sugar, caffeine and processed foods. And physical therapy, chiropractor adjustments, as well as, accupuncture can help. When they do a massage they put a numbing solution on my back so that they can work the muscles without me screaming
Don't worry you are not alone! People who don't have it don't understand it. We are here for you! Keep us posted.
Hey Kerry
Having massages are painful and it's not for the faint heart but it's only a temp fix. I do not think I have every spoken to anyone who has said it's disappeared for me it's worsen. Excercise helps as long as your consistent. I'm just starting a new Med for infamation so we'll see if it works 🙂 One day at a time
The thing with Fibro is that most people (at least with me)...give me a look like there is nothing wrong with me.
I wish they would come out with a test that FOR SURE tells people they have fibro.
Mine was diagnosed after ruling out Lupus and RA.....
Massage really does help me.....but my mother does not like massage with her fibro she says it hurts too much.
Nice hubby thou...I would take him up on it.
I had all your symptoms and Gabapentin & Melixicam Helped and unfortunately once fibromyalgia started to flare it never went away ; it's been six years now
Hi Kerry . No massage makes me worse so I had to stop. Yes your right it is an invisible disease and people don't see how bad it is. As you walk around with a sign on your back saying I'm sick or I'm hurting lol . You know what I mean. So people are could in that way . I know it's hard but try to just ignore the rude comments people will say to you. From Snoopy
Thank you Kiki I had a few tear reading your comment to know other people are going through what I'm going through and your not just making it up. Got the doctors again next week to talk about what medication to take xx
Hi Misssy, I wish there was a test as well. It's all very new to us and it hard enough to get my head around it I'm sure hubby will catch up lol. Neck and shoulders are in too much pain to have massage yet but hopefully they will settle soon. Xx
Hi Claudia. What's gabapentin & Melixicam. Guess it's something we just going to have to get used too. I'm never ill the doctor think fibro was triggered off by a bout of neuralgia I had beginning of the year 
xx
Hi snoopy. It's so true because you look okay people don't understand. I will get there it's all new to me. It's great that this a such a supportive group. Thank you xx
Ice at night before bed helps me sometimes.
The Gabapentin works..but I hate taking it all the time...its 300mg 3x a day.
What medication did they give you?
Hi Misssy.
Just taking ibuprofen and paracetamol at the mo got doctors apt next week. So hopefully they will sort something a better as on max daily dose at the moment xx
Hi Kerry,
So sorry to hear you was dx with this .. it is challenging some days we all have to find what helps and positve and people who support us do help us alot. Thank God for my hubby...
There's only a couple of people that I even bother telling when I have a bad day because most people don't really want to hear that you're not well they get tired of it real fast there's some sympathy when your first diagnosed but after awhile people just want you to get over it ; unfortunately fibromyalgia just doesn't go away
I am also on the gabapentin twice a day and I take meloxicam for arthritis that I have as well as the fibromyalgia.
Yeah my doctor wanted me to go have a massage and I tried to explain to him that most days my skin even hurts with just somebody putting light pressure on it and it was no way I was going to let somebody massage me so unfortunately I have a doctor right now that doesn't really understand fibromyalgia
I take the gabapentin it's supposed to help with nerve pain . the meloxicam is supposed to help with my arthritis ; together they take the edge off the pain but I haven't found anything that takes it away: I find the best medicine is reading novels that are engrossing so that I can be distracted
Hello Kerry,
have you seen a Rheumatologist yet, if not ask to be referred to one as they are much more knowledgeable about the condition than a GP.
The area's you mention are where most of my pains are, the hip being the worst. To be totally honest, for me anyway, medication only really numbs it a bit, it doesn't take away the pain. I recently tried hydroxychloroquine, but had to come off after almost 7 weeks as it was making me really ill.
Not many people understand the illness, because they can't see it, but I'm one of the very lucky people that have a really supportive hubby who does understand. If you havent already seen a Rheumatologist, do it as soon as you can. x
Hi Sukes,
True !!
Yes, we find it hard for others to believe us as we look pretty fine on the outside...my suggestion is to find a Dr that knows about fibro and ask if they can refer you to see a rheumatologist.
Good luck Kerry!