hi there im46 years old and have just been diagnosed with pmr on 15mg prednisilone each morning first 48hours were great i could get out og bed on my own and get in an out of the shower with no pain or stiffness but thats as far as ive got! ive been on steroids now for 14days an no more improvment ive still got alot of pain in my kneck shoulders arms and no starting in my legs!! am i being inpatient!1 ive no energy and ive not been able to work (community care worker) for the past 6weeks would love to hear from u all take good care all mrs d x
Hello there If I was you I would go back to the DR PMR does seem to be confused with other things I would generalise in saying most of us feel at least 80% better instantly and are able to function normally on steroids The first time I had it and with the 2nd bout I have now I felt virtually no aches and pains within 2-3days I was started on 20mg both times With the 2nd bout my Dr did say not to worry if I had to go up to 30mg as my bloods were much higher than with the first bout but luckily that wasnt necessary Perhaps someone else on here will have had a more gradual improvement but it is supposed to be instant or they say its not PMR I wouldnt carry on suffering as getting run down doesent help but get back to the DR Best wishes Mrs G
thank you mrs g for the advise im back at my hospital in two days time so i will be having a long hard chat having a really bad day today!!!pains in my kneck shoulders hips seems to be all over xxx many thanks and fingers crossed for you in the future
Mrs D
Knowledge is power - go to www.pmr-gca-northeast.org.uk
follow the link to the British Society of Rheumatologists Guidelines on the diagnosis and treatment of PMR issued June 2009.
Failing that google the BSR and follow their links - it is also published on the NHS website.
Good Luck