Tengo 48 años y acabo de someterme a mi segunda cirugía de cadera hace 2 semanas. Mi primera cadera fue reemplazada hace 5 meses. Mi primera cirugía se retrasó unos meses debido a enzimas hepáticas elevadas. No pudieron encontrar la causa, pero finalmente me dieron luz verde para la cirugía. Realizaron más pruebas antes de mi siguiente cirugía, que fue hace 2 semanas. Ayer recibí una carta del hospital diciendo que tengo hemocromatosis y debo contactar a mi médico para una biopsia de hígado tan pronto como esté fuera de la warfarina por mi reemplazo de cadera. Aún no he hablado con ningún médico sobre esto, ya que acabo de enterarme y debo esperar hasta que se pueda hacer algo.
Solo me preguntaba qué debo esperar a continuación.
Hi Chris
Welcome to our group, firstly your GP should do further blood tests
Then depending on what your ferritin levels are,if very high they will
Refer you to a hematologist, who will study your results, and if they are
High he will recommend therapeutic phlebotomy, basically you will have
Pints of blood withdrawn through venesection with a view to bringing
Your levels down.
But no good speculating see your GP first and get a proper diagnosis
Let us know who you progress???
Cheers philx
If you have been genetically confirmed that you have haemochromatosis, ask for a referral to a haemotologist to start venesections. You don't have to wait for a liver biopsy. The sooner you start treatment, the better.
No doubt the need for hip replacements was caused by the haemochromatosis - as was mine. Mine was avascular necrosis - they explained my blood was so thick with iron that it could not get into the finer capilliaries to feed the bone, so the bone died and broke up. I had had other severe haemochromatosis symptoms before that but they were ignored.
Contact your country's haemochromatosis association for information, booklets, etc. and take one along to your dr. You must self educate for your own good.
Has anyone ever sued them for medical negligence when this happens? I suppose there are things they can hide behind to get away with it.
It is a dream, isn't it? On top of that, one of my hip replacements by same surgeon, was botched. It leaves me in constant pain ever since. A barrister told a lawyer friend of mine, that this particular surgeon was used to verify work injury against the patient, so they (the barristers) could not now claim he was incompetent. Besides, in general, other medical practitioners will support another no matter what, and you have to get other medical practitioners to support your claim.