I ha e had hashimotos since I was 13 years old was taking 50 mcg synthroid and have been fine for years till last winter. I got a bad inflammation sub acute thyroiditis, was was painful and went through a prednisone and aspirin regimen. Pain has stopped (6 months later) and my labs are totally normal. Endo wonrxhqnge my synthroid dose says it’s fine but added Liothyronine (T3) and said it could help. It did, felt great and then the hair loss started. It scared the crap out of me! And worse was scalp pain that accompanied it. After a month and half I stopped taking it. Scalp pain went away but my thyroid is more swollen now and I feel pretty crappy (emotional, tired etc). Went to 2 other doctors who told me 2 different things. What should I do? Keep taking the T3 and hope the hairloss and scalp pain will stop eventually? Or stop it and just deal with swollen thyroid and mood swings? It’s a shame those are my options. Does the t3 hairloss eventually stop? I obviously don’t want to loose all my hair and it seems like when I shower a lot of is is coming out. Is the pain my bodies way of saying I don’t need the Liothyronine? Thank you for your help opinions welcome.
Where are you with the prednisone? It can reportedly cause hair loss.
I take 175 levothyroxine and 10 liothyronine per day with no ill effect (TSH 1.5-2.0). Used to take 125 and 20 respectively, also with no ill effect. But it made my endo nervous. Either way my thyroid is calm.
There are many autoimmune diseases associated with Hashimotos and it is possible something else is going on with you. I went through years of craziness before the doctors figured out I had something else which was causing all the trouble. You've seen several doctors, hopefully one would sit down with you and come up with a plan to sort this out.
Think if your Synthroid dose was higher than 50mcg you mightve not even had any thyroiditis episodes. You probably can increase your Synthroid and take much lower dose of T3. I dropped from TPO in 1000s down to less than 10. Didnt go gluten free or dairy free just took 200mcg of Levo. May not work for you and docs are afraid to raise dosages...but I never had a flare.
I told them to raise my dose of synthroid especially after a flair up I kept telling them there is no way my labs have remained the same for 15 years! But they don’t want to touch the synthroid. I’m not taking the prednisone anyone by the way that was just during the worstof it. I feel better with the t3 added but the hairloss is so scary... plus I have strange scalp pain which I can’t find in anywhere online. One Endo told me to just not take the t3 at all but then I’m swollen and so emotional that I can barely keep it together. Willthe hairloss eventually stop?