Please keep me up to date but remember, Upper Cervical chiropractors are the best in dealing with this issue. You may have to call many chiropractors in order to find someone qualified!
Good luck!
Merci beaucoup pour la grande réponse. Ma vie a été un zoo ces derniers jours, donc désolé pour ma réponse tardive.
Je vais sérieusement envisager le traitement à la gentamicine. Mon ORL m'encourage à le faire car je suis un excellent candidat pour la procédure. Il me dit que l'acouphène n'est généralement pas affecté...... c'est un symptôme que je ne souhaite à personne. Mais, j'ai lu que l'injection peut aider certaines personnes. Donc, je m'adoucis sur cette procédure...... je reverrai mon ORL et je vais essayer. Je pourrais devoir attendre jusqu'en novembre, car j'ai trop de choses en cours pour risquer le temps de récupération jusqu'alors. Il a dit que cela pourrait prendre quelques semaines de récupération et qu'il y a une faible chance que je doive subir une deuxième injection.
Merci encore pour l'encouragement et la générosité de me parler personnellement. Je vous tiendrai informé de mes progrès.
Merci pour l'information. Je vois mon médecin ORL la semaine prochaine et nous discuterons de la suite. Cela fait plus d'un mois depuis la chute/attaque de vertige et tout s'est bien passé. Mes crises de vertige semblent assez rares, ce qui est une bonne chose. C'est l'acouphène qui me rend fou. Il semble que chacun ait une variation différente de la MD et qu'il s'agisse de trouver la bonne voie à suivre pour vos propres symptômes.
David, et al.
I have had a Meniere's diagnosis for about 17 years but have likely been symptomatic for a lot longer, but undiagnosed. I gave been on betahistine dihydrochloride (Serc) for most of that time, and currently take 24mg three times daily. For the last two years I've had six to eight weekly injections of dexamethasone.
I have had two drop attacks. The first, about 5 years ago, was almost a carbon copy of yours. Sitting on sofa watching TV and without warning, the world tips upside down, clinging on for dear life. This was followed by a four hour porcelain hug-in, and the best sleep ever. The second attack came about three years ago while travelling home from work. Fortunately I use the bus for work. I was sitting, caught a glimpse of a speed sign go by the window, then found myself clinging on for dear life as the world went mad. Fortunately it was short lived, I didn't progress to vomiting and was able to leave the bus at the right place and make my drunken way home.
I am under an ENT Consultant in th North East.
For about out two years I have had very few episodes and then only very mild dizziness. I thought the dexamethasone had sorted me. Until two months ago. Since the I've been in full Meniere's mode. Full blown night and day episodes, the vicious vomiting accompanying some and multiple daily vertigo of an hour or so at a time.
I have been off work for two weeks, but hope to return next week.
DVLA, after consultations with the Consultant agreed to allow me to drive so long as I have warnings. Drop attacks are obviously rare enough to be an acceptable risk, but I never drive far alone. I bus most places and never consider driving while symptomatic.
I am due to discuss the potential for Gentamicin treatment in early November. I hope it's a goer and successful too.
Merci pour vos informations. Je pense avoir eu deux attaques de chute pendant mon sommeil depuis mon dernier message, mais je suis en période de trois semaines sans incident pour le moment. Je reste éloigné de la voiture jusqu'à ce que les choses se stabilisent davantage. Mon ORL a suggéré la Gentamicine comme prochaine étape, mais la permanence de ce traitement m'inquiète car j'ai encore une certaine audition dans cette oreille.
Toutes mes meilleures pensées
I’m so glad I found this support group. I’ve had Meniere’s for only seven months. I had about 30 attacks during that time and had one sudden drop attack. The sudden drop occurred on a tile floor as I dropped backward like a fallen tree. Somehow I threw my elbow out and braced the fall as my head hit a cabinet. Dodged a big one. I’ve gotten the gentamicin injection in the affected ear and although it’s only been three weeks, I feel confident the vertigo has left. My doctor, the vertigo authority at Penn Medicine, feels that one shot did the trick. I’m currently concerned with my balance which is totally gone from my right ear.
I’ve made good progress over the last two weeks and am undergoing vestibular balance training. Not much is written about the loss of balance or what to expect or for how long. I hope I can fully function soon. I can drive now and walk a straight line. Tennis may be out for good. Any advice on balance restoration would be helpful to me. I must say the trade off for taking the gentamicin shot (eradicating vertigo)and sacrificing some loss of balance was well worth it. Good luck to everyone. Vertigo is a monster to be exorcised.
anthony ,
Im also so glad i found this support group after years of suffering vertigo not knowing what it was i’ve finally been diagnosed with menieres not that it helps with knowing what it is but finally have people who i can relate too and you dont feel so alone , sounds like you too have suffered? its a awful disease " scary" anixety provoking disease , im forever walking round holding onto things or i look drunk trying to walk normal whilst trying to hold myself steady with the off balance issues , please can you let me know what works for you etc any advice at this point would be a blessing
clairebear x
ive been having drop attacks for 6 months but recently having them every day. Most times im sitting but when standing i drop to the floor. Cant drive or ride my bike. Am on steroids at the moment but they’re not helping. I’m trying to find out how long they last.
i wouldnt have gentamicin as i read it destroyed your hearing. ive had stetoids injection but that didnt last long plus a sac decompression. Again that sorted bad attacks. But now its changed and I’m having drop attacks daily. Im on steroids orally but no improvement. ive trained with a PT ive had accupunture and chiropractic sessions. At first training and accupunture worked now nothing i do is making a difference. Im careful most times with diet and am about to embark on a strict diet for the next 2 weeks to try and stabilise myself. There is a new procedure out that cuts the circular canals but im not sure if that will stop drop attacks. No one seems to say how long drop attacks continue for thats what im trying to find out. Ive had MD for 9 years.
I,ve had many drop attacks, some very severe, others i can just close my eyes and be still and it passes… when they are severe, my world flips sideways and i throw up until i dry heave… one attack so severe, I ruptured blood vessels in my face… after a severe attack, I eventually sleep and 99% of the time upon waking, it has passed but my throat is raw and my stomach feels like ive done 1000 crunches
Hi Gentlemen,
My name is Melissa. I live in the US, I was diagnosed in with Meniere’s 2017. My dad also has it in both ears. I take a prescriptions, water pill, 2 carbinoxamines, 2 antiviral a day for preventative treatment. Have dissolvable Hyoscyamine or ondansetron for nausea and diazepam for dizziness.
diet 800 mg of sodium or less daily, no alcohol, no caffeine, no chocolate, UGH!
I just went through a really bad phase from April until this month including drop attacks.
no you should not drive if you are having these.
I fell about 6 times and also had 3 more sitting down and yes they scared the crap out of me.
the bad one was on sidewalk, ouch! when my vertigo spells became almost daily and numerous daily in April my doctor start giving me the dexamethasone injections in my inner ear , (yes they hurt) which did help the length of attacks and amount of nausea, but they did not stop. Then I started having drop attacks, only way I can explain is regular vertigo your world is spinning but I could always crawl to restroom, but drop attack with vertigo you are spinning but you go down like a tone of bricks that were hit from one side of your body.
I am sorry you are experiencing this. it is horrible.
Had to go through the hours of testing including the chair again, vng, nerve test, etc. then couple of test after each gentamicin injections to see if levels were in better range. So the doctor had 2 options for me as I was in bad shape and scared to death to hit my head. Surgery or gentamicin inner ear injections. Well I chose the injections. 1st one put me in constant state of being unbalanced, had to use a walker, but 2nd higher dose worked almost immediately. I was on short term disability for over a month. Today is my 1st day back to work. I wish you both well. Take care.