Does anybody know if merinere's can effect you everyday? Mine has been crazy for a week now everyday when will it let up?
Unfortunately Meniere's is going to have some effect on you to a greater or lesser degree every day. Once you get on an effective medication it will settle down but you will still have good days and bad days. I have had MD for more than two years and although a lot of the symptoms have abated I still deal every day with the feeling of fullness, frequent headaches, hearing sensitivity and really bad balance. That is much better than it was though. The vertigo is reduced to what I call side slips and I haven't had a drop attack in a long time. The frequency of the migraine headaches have dropped to almost nothing also, for which I am grateful. Things do get alot better and with vestibular retraining or some sort of therapy you can help to compensate for most of the balance issues. Hang in there and don't give up.
Yes it's the new stage you are in. It happened to me this year as well. You will have to make some adjustments. Are you on any meds?
A week is too long for an episode. Is this your first episode?
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
No not my first I have been dealing with it for 3 years but the ringing off balance and dizziness this week has been crazy and I get really weak spells and I just feel like poop! Been trying to stay close to the house in fear of going anywhere it's really taking a toll on me. And I get shaky a lot also. I'm not taking any meds right now I been trying to tuff it out but I don't know how much more I can take of this it's coming up the holidays I don't want to stay cooped up at home. Any suggestions would be great?
Not taking any right now been trying to tuff it out I hate taking meds canot take dexamethason that is a devil drug lol they gave me dyzide but worried about those cause my blood pressure runs around 105/65 on the lower side. I just don't know what to do! I feel like my life is over I been dealing with this for 3 years
Also the fullness in my ear is wow none stop
Afraid to say yes is the answer. Mine went on for 2 months before any release then a few days ok before it started again. I was given Bethastimine 16mg and didn't feel any better till I was upped to 32mg 3 x daily. Actually having a fullness ear day today after 3 weeks of nothing. Good luck hope it passes soon.
Episodes usually do not last longer than 6 hours, but over time there appear left overs inbetween episodes, which can progress.
Intratympanic steroids may be indicated in your case. Ask your ENT doctor about this.
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
Thanks for the info. I had the injection about 2 years ago might of helped a little hate to do it again cause it took me awhile to get over that. It's hard to figure out if it's the ear or anxiety some time. What meds would you suggest now for fast relive?
Thanks for the reply! This mess is taking a toll on my body and life big time.
Very temporarily, dimenhydrinate (sea-sickness medication).
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
Thanks. I have valum they gave me guess I could try them.
Is this a pill or injection?
Pill, like what they give you on a ship cruise with bad weather.
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
Dear Daniel,
I'm so very sorry that you're suffering so much right now.
I know that everyone is different, but prior to proper treatment, I experienced one or more symptoms of Meniere's everyday, for very long stretches of time. One day it might be dizziness and nausea, another day it might be loss of balance and wooziness, and another it might be raging tinnitus, fatigue, and maybe a little nausea thrown in. But I have felt too sick to function normally, or truly incapacitated, for long stretches of time..
Steroid injections into my inner ear, however, showed me that I didn't have to live that way: I had 16 beautiful weeks free from vertigo!! I did have occasional ear fulness during that time, and a stumbly moment now and then, but nothing that lasted.
Unfortunately, the effects began to wear off, and I was having persistent ear fullness and increased tinnitus for 3 weeks. I had the flu and pneumonia (along with a good dose of denial), and didn't get in for treatment. That resulted in my having full blown attacks with rotational vertigo and vomiting last Friday night, and then again Monday evening. In between episodes, I've been really sick...very dizzy and nauseous and off balance, and feeling like any moment, it's going to turn into full blown vertigo. I feel depressed because I can't do anything!. My ear remains very full, and my hearing and tinnitus fluctuate. I have an appointment for Monday for another injection, and I'm counting on it to restore some normalcy to my life. I know I might need more than one injection at this point, but I've experienced the results, and I want to have that quality of life back again.
RE: The Dyazide. I also have low blood pressure and had the same fear. But I take two tabs per/day and my blood pressure has remained stable. I do have to be mindful to drink lots of fluids each day though, to stay hydrated.
I know what you mean about feeling like your life is over. You get prettty isolated when you're having symptoms, and depression can easily set in.
Please don't lose hope. Make an appointment with your ENT, and ask about steroid injections into the inner ear (this isn't like taking steroids by mouth - you experience NO side effects from the steroids when they are injected into the inner ear. They simply reduce the inflammation there, thus reducing symptoms of vertigo, dizziness and nausea.) The injections will not eliminate your need for a low salt diet and diuretics, but for some of us with sever cases, it makes a tremendous difference in quality of life.
I hope I didn't bore you with my story. It's just that I have felt what youo're feeling, then felt better, and now I find myself back there again! But I know there's hope. Don't resign yourself to being incapacitated indefinitely.
I wish you the very best of luck.
J-
I know I've already talked too much, but I just wanted to add one thing:
I did not mean to imply that the results would be instant: My doctor told me that on average, his patients find complete remission with 3 to 4 injections. Injections are given once per month. However, during that time, there is a gradual and noticeable decrease in the intensity and frequency of symptoms. For me,, it took 9 injections to be vertigo-free, but that was unusual. Still, it was worth the wait.
J-
Hi, did the injections help with the ear fullness ? As that's my main problem at the moment as I am already deaf in one ear.
Thanks jmj! When I had the injection it was a 3 day deal not sure if it really helped or not for me I went to therapy and it really helped a lot but of course my insurance changed and now it doesn't cover. I did have an appointment today with my ENT but I had to reschedule because I just don't feel good at all today and knew what the ride would bring so the next appointment is Jan 24th I got to the shea ear clinic. I did go to my regular doctor this morning just down the road from my house he said I have a lot of pressure on my left ear witch is the one with MD told me to start the steroid and the fluid pills and also gave me some Antivert 25mg and I also have 2mg valum he said the steroid and fluid pills should get that pressure out. My problem is I'm scared to death of taking meds because of side effects! I'm in a mess! Hope I didn't harm my self by rescheduling my ENT appointment I just know better than to ride that far when I feel like this.
Hi Vicky,
It helped. A lot with the fulness, but didn't eliminate it entirely. Every couple of weeks I'd feel and increase in the pressure and tinnitus, but it would pass in a few hours.
I wish you all the best.
J